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MS and mobility problems

Sj1Sj1 Posts: 1Member Listener
Hi my name is Sarah, I have MS, and have mobility problems and don't go out, I just do everything online. 

Replies

  • thespicemanthespiceman Posts: 4,311Community champion Disability Gamechanger

    Hello @Sj1 ; Pleased to meet you welcome.

    Thank you for joining and sharing. You come to the right place for support.

    I am one of the team of community champions. We guide, advise and help new members who join the forum.

    Please have a look around our website.   We are friendly, care and share.

    Please ask if we can help and advise on anything.  Some one will know from our community or a member of our team.

    Please take care.

    @thespiceman

  • Antonia_ScopeAntonia_Scope Posts: 1,783Member Pioneering
    Hi @Sj1 welcome to the community :) Thank you for sharing this us. Please feel fee to join our physical/mobility impairments discussions group. Please let us know if you have any questions.
  • Adrian_ScopeAdrian_Scope Posts: 1,903Administrator Scope community team
    Hello and welcome to the community @Sj1!
    Senior Community Officer
    Scope
  • wilkowilko Posts: 1,644Member Disability Gamechanger
    @Sj1, Hello and welcome, as a MS diagnosed person R&R not really given full and proper state of my MS so I am still learning about its effects. Not having an MS specialist nurse to call upon for advice and opinions is not good but I am able to seek advice via my consultant using email and his secretary helping to transfer my requests. I use two scooters one for shopping car boot and my bigger one off road dog walking. So Sj, if you feel or need to talk just drop a message.
  • April2018momApril2018mom Posts: 706Member Pioneering
    Welcome to the community. Please tell us a little bit more about yourself as well. If you have any other questions please feel free to ask. 
  • newbornnewborn Posts: 216Member Pioneering
    hi, good to see you here.    You mention you do a lot online, so please could you offer your views on an old theory I worked out when I was active in campaigning and working with disabled people?   I thought it strange that organisations don't look hard enough at the possibilities of engaging with homebound people via internet.

     It often seemed to be a huge waste of talent, of potential volunteer or paid help  (just as and when they were able to spare the effort or half an hour here and there).  People who are stuck indoors, as disabled themselves or as carers, or in bed, don't seem to be included much  to be consulted, to be able to work and research online, to  study, to view cctv footage,  to mentor or tutor or oversee,  to monitor websites, and generally  to make a great contribution to the world by participating.

    Prof. Steven Hawkins managed rather a lot, when he couldn't move or speak, yet somehow generally it seems taken for granted that the only people who can be considered part of the potential paid or unpaid workforce are all fit in mind and body, all willing and able to work standard hours, and also are all under 50.

    What do you think? 
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