Suprapubic catheter — Scope | Disability forum
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Suprapubic catheter

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cat1932
cat1932 Community member Posts: 13 Listener
edited May 2019 in Disability rights and campaigning
Dear community friends 

my doctor suggested I should have one of these.  Can anyone give me information are they comfortable do they help quality of life. 
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Comments

  • Richard_Scope
    Richard_Scope Posts: 3,648 Scope online community team
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    Hi @cat1932
    I have found some information from BladderandBowel.org
    I hope that it is useful
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

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  • MickConnon
    MickConnon Community member Posts: 56 Courageous
    edited April 2019
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    Hi @cat1932 I look after adults who have these and they don't really complain about them. They are less intrusive than urethral catheters but need an initial incision in your stomach below the belly button straight into the bladder. My late Dad had one and he said it gave him more freedom. I know having spoken to Urologists that they generally look at doing  Suprapubic when the person is still sexually active. Otherwise it just gets in the way :smiley:
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  • April2018mom
    April2018mom Posts: 2,882 Disability Gamechanger
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    I have no experience with that specific type of catheter. However they are usually only recommended for people who are sexually active. Ask your urologist for more information. Get as much information as you can possibly get about the whole thing.
    Prepare a short list of questions to ask them too. 
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  • Martin1957
    Martin1957 Community member Posts: 24 Connected
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    Hi all I'm 3 weeks in now on having it all fitted. The upside is I'm able to have more control  
    Downside it is still settling down and still giving  me problems on bypass and leakage  but all in all when it eventually settles down it will be the est option. I have had to have it fitted due to Caudia equine syndrome in 2019 and 2 major  spinal operations which has left serious nerve damage 
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  • Tori_Scope
    Tori_Scope Scope Posts: 12,492 Disability Gamechanger
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    I hope that it settles down for you soon @martin1957! Are your medical team being supportive? :) 
    National Campaigns Officer, she/her

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  • mollymandy97
    mollymandy97 Scope Member Posts: 32 Connected
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    I have spc I can't lie and say always smooth sailing but definitely is life changing for better I have mine on flip-flows
    Which mean I can empty into a toliet you live full life and yes have sex. If what ask anymore questions I'm happy to help
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  • Tori_Scope
    Tori_Scope Scope Posts: 12,492 Disability Gamechanger
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    Thanks for sharing your experience @mollymandy97 :) Do you mind me asking how long you've had the SPC for? 
    National Campaigns Officer, she/her

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  • mollymandy97
    mollymandy97 Scope Member Posts: 32 Connected
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    2-3 year now i had trey a few different types and advise you to get under they continence service which helped find right catheter and bag plus flip flo for my body which is a open tip advise as well as distract nurses. get a supply company much betty then pharmacys  
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  • mollymandy97
    mollymandy97 Scope Member Posts: 32 Connected
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    https://www.facebook.com/groups/348489945885768
    this might be helpful its support group run bladder&bowel a charity 
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  • mollymandy97
    mollymandy97 Scope Member Posts: 32 Connected
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    plus entitled to free ryder key when you have bladder or bowel condition  
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  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,978 Disability Gamechanger
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    Thanks for sharing your experiences with us @mollymandy97. I am sure your experiences will be invaluable for people experiencing similar things.

    It sounds like this has been really helpful for you and a really positive thing. How are you finding everything at the moment?  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
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