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Spina-bifida and problem getting wind up- anyone experienced a similar thing?

Chris8Chris8 Posts: 1Member Listener
edited May 8 in Parents and carers
Hello my name is Chris and I have a 4 year old daughter with Spina-bifida and hydrocephalus.
She doesn't have control over her bladder/bowel movements and is a wheelchair user.
She has problems with getting her wind up. Sometimes it causes her to throw up - a lot!
My question is this : Is there anybody else in this forum who has experienced similar problems and if so then what did you do to alleviate this nagging problem?
I fear it's only gonna get worse as she grows.

Any help is much appreciated - thanks guys!

Chris.

Replies

  • thespicemanthespiceman Posts: 5,336Community champion Disability Gamechanger

    Hello @Chris8  Pleased to meet you welcome.

    Thank you for joining and sharing.

    I am one of the team of community champions. We guide, advise and help new members who join the forum.

    There will be members of our community or a member of our team be able to advise.

    Please have a look around our website.

    Please ask if we can help and advise with anything.  Some one will know from our community or a member of our team.

    Please take care.

    @thespiceman

  • Chloe_ScopeChloe_Scope Posts: 5,837Administrator Scope community team
    Hi @Chris8 and a warm welcome to the community! I hope you are able to gain advice from the community about this. Have you spoken to a medical professional regarding this? Please do let me know if there is anything I can do to help :)
    Chloe
    Online Community Officer
  • Kate_ScopeKate_Scope Posts: 74Navigate Pioneering
    Hi @Chris8 and welcome to the community. 

    my daughter is a full time wheelchair user and we sometimes have problems with wind with her. 

    we are lucky she can stand holding onto her wheelchair so we stretch her about a bit and she generally feels relief from that- i get her to stretch her arms in the air and move her waist from side to side. 

    The other thing is the GP, a lot  of kids who are wheelchair users are on gaviscon and similar products to relieve the pain and provide some relief. 


    Kate 
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