If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
Spina-bifida and problem getting wind up- anyone experienced a similar thing?
Chris8
Community member Posts: 1 Listener
Hello my name is Chris and I have a 4 year old daughter with Spina-bifida and hydrocephalus.
She doesn't have control over her bladder/bowel movements and is a wheelchair user.
She has problems with getting her wind up. Sometimes it causes her to throw up - a lot!
My question is this : Is there anybody else in this forum who has experienced similar problems and if so then what did you do to alleviate this nagging problem?
I fear it's only gonna get worse as she grows.
Any help is much appreciated - thanks guys!
Chris.
She doesn't have control over her bladder/bowel movements and is a wheelchair user.
She has problems with getting her wind up. Sometimes it causes her to throw up - a lot!
My question is this : Is there anybody else in this forum who has experienced similar problems and if so then what did you do to alleviate this nagging problem?
I fear it's only gonna get worse as she grows.
Any help is much appreciated - thanks guys!
Chris.
Comments
-
Hello @Chris8 Pleased to meet you welcome.
Thank you for joining and sharing.
I am one of the team of community champions. We guide, advise and help new members who join the forum.
There will be members of our community or a member of our team be able to advise.
Please have a look around our website.
Please ask if we can help and advise with anything. Some one will know from our community or a member of our team.
Please take care.
Community Champion
SCOPE Volunteer Award Engaging Communities 2019
Mental Health advice, guidance and information to all members
Nutrition, Diet, Wellbeing, Addiction.
Recipes -
Hi @Chris8 and a warm welcome to the community! I hope you are able to gain advice from the community about this. Have you spoken to a medical professional regarding this? Please do let me know if there is anything I can do to help
Scope -
Hi @Chris8 and welcome to the community.
my daughter is a full time wheelchair user and we sometimes have problems with wind with her.
we are lucky she can stand holding onto her wheelchair so we stretch her about a bit and she generally feels relief from that- i get her to stretch her arms in the air and move her waist from side to side.
The other thing is the GP, a lot of kids who are wheelchair users are on gaviscon and similar products to relieve the pain and provide some relief.
Kate
Brightness
Categories
- All Categories
- 13.3K Start here and say hello!
- 6.9K Coffee lounge
- 97 Games lounge
- 478 Cost of living
- 4.6K Disability rights and campaigning
- 1.9K Research and opportunities
- 229 Community updates
- 9.6K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 805 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 662 Dating, sex, and relationships
- 373 Exercise and accessible facilities
- 835 Transport and travel
- 31.8K Talk about money
- 4.5K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 5K Universal Credit (UC)
- 6.4K Talk about your impairment
- 1.8K Cerebral palsy
- 882 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.3K Mental health and wellbeing
- 328 Sensory impairments
- 830 Rare, invisible, and undiagnosed conditions
Complete our feedback form and tell us how we can make the community better.