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Spinal injections

fatherinpainfatherinpain Posts: 85Member Connected
will/do they work? If not what next?

Replies

  • Ami2301Ami2301 Posts: 5,271Community champion Disability Gamechanger
    Hi @fatherinpain Unfortunately, we are not medical professionals therefore we cannot advise. Is this to relieve symptoms of a specific condition?
    You're a fighter. Look at everything you've overcome. Don't give up now!
  • poppy123456poppy123456 Posts: 12,719Community champion Disability Gamechanger
    Hi,

    You really can't compare anyone else to yourself. What may work for one person, may not work for another. I tried a spinal injection to manage pain but it didn't work for me.

    As Ami has advised, we are not medical professionals and can't give any medical advice. You really should speak to your consultant for further advice.
  • fatherinpainfatherinpain Posts: 85Member Connected
    I’m after a general opinion, which I kinda thought an open forum was for,  I have bad ddd which is limiting movement as well as constant pain, I’m not after any form of diagnosis or treatment plan just people’s opinion as to if they work and if not what potential options people have had after trying them 
  • maggieomxmaggieomx Posts: 128Member Courageous
    Iv been having the facet joint and cordyl injuections in my back for 16 years sometimes they last and sometimes dont.
    Mostly they do last.
  • fatherinpainfatherinpain Posts: 85Member Connected
    So in hope that they can be good?
  • Zec RichardsonZec Richardson Posts: 147Member Pioneering
    It is a case of trying if you feel that it might help and that will be the only well to tell.
    I have a friend who has the, he says it is painful and for 2 weeks after it causes issues but then he feels the effects and it is worth it!
  • maggieomxmaggieomx Posts: 128Member Courageous
    Id say you need to have a couple of the injections to get the benefits ? As its not an instant fix 
    I found benefits after 16 years .
  • Antonia_ScopeAntonia_Scope Posts: 1,783Member Pioneering
    Hi @fatherinpain how are you doing today? 

    There's some information from Guy's and St Thomas' Hospital on Spinal Injections.

    Please speak to your Doctor for further advice, and some of our members may able to share their experiences with you.
  • fatherinpainfatherinpain Posts: 85Member Connected
    Hi Antonio I’ve been to pain clinic dr has said because the area is to big I’m not eligible for them 
  • fatherinpainfatherinpain Posts: 85Member Connected
    Stating I have a lot of nerve ending around lower to mid back, to try Versatis even tho he believes they probably will not help before moving onto other options which don’t include injections to try and fix my ddd
  • bonnielassiebonnielassie Posts: 22Member Connected
    why don't you ask guys and st Thomas about their spinal implant programme? I also have degenerative spine and have found the implant and training programme helped a lot.
  • zakbloodzakblood Posts: 317Member Pioneering
    edited May 20
    myself a long term tablet user, 20 years now, it seems things have moved on quite a lot from what i was offered 20 years ago, so will extra information from online and advice from others, there's more options now for everyone who suffers, so sharing is caring, so yes GP and doctors know best, just ask the right ones, and the advice comes in the end, but it's never easy so again it's a long haul and slow road to progress, so depends on how good your GP and doctor are and where you live, for how quick your seen and sorted, so good luck
  • bonnielassiebonnielassie Posts: 22Member Connected
    @fatherinpain in pain
    @zakblood
    Hi both of you- how are you feeling today? I noticed somebody else had suggested St Thomas, but @fatherinpain I might be wrong but it sounds as though you went to the ordinary pain clinic. What you want is the input pain management section. They should really help you. They're on 02071887188. It's worth a try, and if I got it wrong I'm sorry. @zakblood. You seem to have given a link to the right department thank you.
  • fatherinpainfatherinpain Posts: 85Member Connected
    I’m now referred to pain management by the pain clinic dr. these patches do nothing for me in all honesty after taking it off after 12hours I seem to get an intense burst of pain. I will ask about st Thomas when I see pm team thank you for this advice 
  • bonnielassiebonnielassie Posts: 22Member Connected
    [email protected] I hope they at least make a referral for you to go to st Thomas. There is a residential course and then the implant of the spinal modulator. It's ongoing care is easy, and I won't go into that here. You can see a video of a spinal modulator being inserted online, I'll see if I can get you the link. If you have any questions, please ask me, I'm happy to give you more information if you need it. Good luck.
  • maggieomxmaggieomx Posts: 128Member Courageous
    I’m on I’m on patches they can take up to 3 days to start working think you may of taken them off too soon ??
  • maggieomxmaggieomx Posts: 128Member Courageous
    I’m now referred to pain management by the pain clinic dr. these patches do nothing for me in all honesty after taking it off after 12hours I seem to get an intense burst of pain. I will ask about st Thomas when I see pm team thank you for this advice 

  • maggieomxmaggieomx Posts: 128Member Courageous
    Type hiya iv been having the injections for 17 years just checked ????
    im on patches been on them years(over10)
    i think you may of taken it off too soon mine starts working around 3days for it to be absorbed into the skin ? Then after 3days I have to re apply a new one .
  • fatherinpainfatherinpain Posts: 85Member Connected
    Dr was quite specific 12hours then reapply same time next day. With regards to st Thomas would they refer me as I’m not in there area?
  • maggieomxmaggieomx Posts: 128Member Courageous
    Im on duragesic patches which is fentynal you might be on a different patch iv to replace mine on every 3days
  • bonnielassiebonnielassie Posts: 22Member Connected
    @fatherinpain hi I was referred to St Thomas hospital from Shropshire. There are other hospitals that do the implant but I was told that St Thomas was the most experienced so I chose to go there. I don't know where you live so I just recommended St Thomas
  • bonnielassiebonnielassie Posts: 22Member Connected
    @fatherinpain hi don't forget that pain management is  not what you want at St Thomas, but Input Pain Management. You'll be assessed by a psychiatrist, physiotherapist and/or an occupational therapist. Just realised I said I'd send you the link. I'm so sorry but I get forgetful - I'll do it now!
  • fatherinpainfatherinpain Posts: 85Member Connected
  • CJMCJM Posts: 9Member Listener
    hello fatherinpain thought I'd just check in and see how you're getting on? Might also be worth talking to Dr about trying a course of SCENAR therapy, it's also something you can look up, doesn't work for everyone but worth trying to find out for yourself? Hope you are finding some relief in the meantime. 
  • zakbloodzakblood Posts: 317Member Pioneering
    @fatherinpain in pain
    @zakblood
    Hi both of you- how are you feeling today? I noticed somebody else had suggested St Thomas, but @fatherinpain I might be wrong but it sounds as though you went to the ordinary pain clinic. What you want is the input pain management section. They should really help you. They're on 02071887188. It's worth a try, and if I got it wrong I'm sorry. @zakblood. You seem to have given a link to the right department thank you.
    im back at the pain clinic on Monday at 8.30am so will let you know, what i was offered 20 years ago, wasn't such a high success than what is now done, so i'm now hoping that i get offered something else to suit me and tbh i can't cope with it getting much worse than it is now, while at first 20 years ago it just made me grind my teeth somewhat some of the time, the pain is now starting to effect me more and more and the Tramadol no longer is working for my back let alone my sciatica, as that's about as bad as it's gets for me, and while 20 years ago i had it maybe once every 3 or 4 months, but only lasted a short time, less than a week most of the time, but upto 2 some of it, now i'm having a flare up almost once a month, but depends each time for how long it last, a week or 3 now is somewhat more common, so find it now harder to live with, and the reason for going back to the pain clinic on Monday, with a bit of luck they will either take me off Tramadol and put me on something stronger, as 12 years for now it seems to have run it's coarse with me and my body, or shoot me and put me out of my misery lol, but as these are now the first port or call before getting offered surgery, i'll let you all know how i get on, and what's the next stage for me, fingers crossed it's not too long a waiting list, but what's time when i've had it 20+ years already, mind you first diagnosed back in 1999 doesn't seem now that long ago tbh, so good luck everyone and yes i know what your going through, and yes i also know there's plenty worse, been in the MR room and seen 12 year old with the same, which must be a lot worse, as i've had at least most of my life ok.
  • zakbloodzakblood Posts: 317Member Pioneering
    oh and before i forget, i failed a WCA for the ESA in April of this year, so 58 days ago now without a penny until the tribunal hearing is sorted after MR, i'm in MR atm, but that won't get a reply for another up to 2 weeks then maybe a year or longer as there behind for Tribunal where i am, so 20+ years with a confirmed illness and still under treatment on a yearly basis and still the DWP says i'm now fit for work, lol after now 5 assessments, ah well they like us to jump through hoops, so i'll just hop through another one and smile and be grateful for the handout, then grin
  • dowhatyoucantdowhatyoucant Posts: 11Member Connected
    Hi @fatherinpain, this is my first post but you're in the very same situation I was a few years ago and I've joined this community because I want to help people like you learn about options that can help mange pain like this that perhaps you have not yet learned about.

    I was diagnosed with DDD back in 2013 (and 2 bulging discs), and received 2 spinal epidurals to try and manage the pain. The first one worked wonders! I felt zero pain, for about 3 days, then it came back as if it'd never gone away. The second epidural was about 50% as effective as the first, so I decided not to do those anymore. Bad risk to benefit ratio.

    I tried dry needling next, and that worked surprisingly well, but again only for a short period of time. What you'll learn is that all these pain interventions are are only temporary. What ultimately has to happen to prevent further degeneration of your already degenerating discs (and other joints) and possibly undoing some of the damage is utilizing the body's own mechanisms for addressing pain. This is NOT a secret or a foreign concept, I literally just heard a doctor talking about this on the radio yesterday, but it's simply loading those vulnerable joints with what the doctor yesterday referred to as "odd loading", aka "progressive resistance". 

    It's the body's basic ability to receive a stressor (appropriate one), recover from that stress, and adapt for future stresses. One day builds on another, and for me I went from struggling to tie my shoes and sometimes even stand up to being able to resume normal sport activity and even lift hundreds of pounds (half that in kilos, lol) over the course of a few years.

    The process involves a combination of things - learning proper posture, exercising with the body in these better postures, stretching muscles that have shortened from bad postures or prolonged static positions, and then progressively loading your bodies musculature through its anatomically functional movements. Sorry if this sounds overly complicated, but it simply means learning how to incorporate resistance training into your recovery so your body (bones, muscles, joints and soft tissues) get stronger every single week. 

    I had been active and even exercised almost daily for more than a decade and still wound up with DDD, but after learning what proper posture actually is while sitting, standing, walking and doing other basic movements like a squat (sitting down then standing up), hinging (bending over to pick things up), lunging, pushing, pulling, etc., all of a sudden my hips were looser, my back wasn't tight, everything got stronger, and my back hasn't gone out since I started training differently! 

    Hope this is helpful to you and I'd be happy to share more with you if you think it would be helpful.

    - Ben 

    Ben C.
    CSCS/CPT/SNS
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