If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

received ESA report in full this morning, yes on a Bank holiday Monday

zakbloodzakblood Posts: 397Member Pioneering
to say it's full of inaccuracies is somewhat on the minor side, and here's my part reply to the assessment center so far on the parts i've looked at and commented on,

As this report is supposed to be based on facts, let me correct just some of the inaccuracies written, and so called spoken by me on the day, on reading the whole report, it's as if it was for someone else, kind of like me, but different in a number of ways, which I can now go into, with the follow errors corrected.


Again done by a Nurse with little to no understanding on my medical conditions or even with a minuscule ability to write / type what a person speaks word for word, as most of this in the report I was supposed to have said doesn't tally up with not only my 5 previous statements / reports or what I said, as there is no recording of the exam, even though I asked for it in advance on the form and on the day ( only to be told when asked, it would mean a failed to attend if I cancelled it now because of the lack of it) , in the end it's my word against hers, but as I have 4 past statements, I can at least say without any reproach to myself that any sane person would disagree with this report, and the persons competence with the amount of errors corrected.


Page 2 item 1


Medical conditions extra missed off, but mentioned on the day and in writing supplied and photo copied in advanced and sign and dated as received.


Report states, back problems, when I said the correct terms,


spondyloarthropathy, spondylarthritis.

canal stenosis with posterior disc bulges at L2/3 and L3/4, sagittal and axial T1 and T2, degeneration of lumber spine.


A degenerative disorder of the lower back, can see why she failed to write it down, maybe had no idea on the words, as both degeneration and degenerative both implies getting worse with age and wear, so doesn't really tally in with a 0 score she gave, points 1 to me,...


and where is, in the client states no other health problem?


chronic back pain, Sciatica, Panic attacks, anxiety, stress, frozen shoulder and trapped nerves to name just a few missed out!


Page 2 item 2


Medication, report states I brought none with me, well funny this, as if you go onto my last Tribunal hearing, when it was noted I carried everything with me in a bag brought with me, same one I took and was noted carrying in the above said report, so as I provided all medical notes and all tablets, as I cut the labels out and just keep the name of the tablet, the dose and who's it for etc, so dose, my name and tablet is all there in black and white and provided on the day and written in my notes sent in and received and signed for, so points to me 2.


Page 2 item 3


Medication, again errors in dose and tbh, if she is a Nurse, which beggars me to believe tbh wish such poor written and recording abilities, Paracetamol 1g dose? My god i'm so glad she didn't manage to be a Doctor, as one she can't read, and 2 she can't understand dosage what so ever , if she managed to look at the notes

provided for her and the tablet packets with my name on, she could have copied the correct amount down, not again just guessed something from memory or someone else, correct amount is 500MG, take 2 four times a day, it's not rocket science, it's written in black and white and was provided, so again points 3.


Page 2 item 4


Side affects due to medication,


drowsiness only? I'm sorry but you have got to be taking the wee wee, won't be rude, but as I explained on the day and on the form, side effect are mood swings, drowsiness, temper / aggression, lack of sleep, incontinence, IBS, perforations of the stomach lining (as mentioned in the hospitalized part of the statement) which again was provided but not read or understood. So again, lack of note taking, so another point to me, point 4 now....


Page 2 item 5


Description of Functional ability,


well tbh all of this is what I can remember, but more is missing, a lot more, I suffer from nerves and i'm a nervous talker, when i'm unsure or nervous my mouth wanders and I can blab on a bit, so I know i've mentioned more than this small part, don't agree with alleviate part either, for one with a keyboard and spell checker, i'm not the best of spellers, so tend to stick to words I can spell or get wrong that often that I leave how to use it, alleviate isn't a word I would have used, as my pain killers don't mask the pain some of the time, they are ok apart from when I have a flair up of Sciatica, where no amount of them helps, and where is the part of me saying “ it doesn't stop me from being so stiff, stiff as a board most days” end quote, as I say it so often, she would have been told, way often, as I mentioned how poor the chairs were in the reception compared to the last place, and in the exam, I kept moving as couldn't get comfy either.


Also disagree with the onset part, “many years ago” which sounds like it's not an issue today? Even if my treatment is ongoing? Lol, the more I read, the less I feel her ability to take notes and understand anything said or written, i'm so far going from incompetence to willful lying tbh in her written response, this isn't a verbal recording made for a report, it's fiction written after the facts, on part recollection on what may or may not have been said imo.


So i'll only go for ½ a point to me on this one, with her lack of recording my comments and errors missing some out...


Page 3 item 5a


Hypertension,


no mentioning again of out of breath getting up steps / stairs and any amount of walking, so why so none?


When mentioned and on the forms??????


Bladder Incontinence, again don't agree with many years ago, as for the same reasons, i'm still having it today, it was first medically found and treated many years ago, but same as IBS, both are still going and part of my life, something stress and lies don't make any easier either,...


disagree with amounts also, as like I said, it various from day to day, depending on how many times i've taken, with what else I get as side effects from them, as bladder and IBS is linked to them, plus add on stress on top, equals worse day, more chances of accident happening.


Mirgraine,


onset, again disagree with wording for same reasons, was found with a MRI brain scan yes years ago, but related to high blood pressure and stress, which makes them happen more often.


IBS,


Ditto the onset part for the same reasons, far more details added, yes uncomfortable and private, something she had no empathy with or wrote more details down that she needed to, as I went into more depth, seems she either doesn't like the subject or doesn't understand the outcomes of having it.


Page 4 item 5b


Repetitive strain RSI, ditto on the onset part, as to me again it implies it's not an issue now, but still is and gets worse in rain, damp weather and if on the key board too long, addicted to the net, so my own fault tbh, but don't go out a lot, and not a lot else to do.


Hearing


I don't have my ears tested every time I have my eyes done? So again not something I said either, so another error to add to an every growing list of errors in what is or should have been a factual report!!!


Shoulder


this part is mostly correct, what I said more is i'm work in progress on this part atm, as under the CMATS team in my area, so no more information on it atm, which is why I said it's work in progress and may be arthritis in me shoulder as GP also thinks, as I broke my collar bone and had it pushed through my shoulder blade when I was younger, so maybe why i'm having the problems now that I am with it.


There seems to be a lot missing from this section, even though I brought the paperwork and gave it her on the desk, same as my tablets and medical history is my short condensed form, as the 80 pages of hospital and consultants and professors notes were handed in and signed almost a month before, and I asked on the day if she had received and read the on the day, which she didn't respond with a yes no answer, just went onto the next leading question, which tbh are only there to trip you up, seems I was too smart for her and she didn't like it either.


Arthritis of hip


this is also work in progress, as like I said and wasn't recorded again, seems she only writes what she wishes to portray, as clearly if I say I i'm on pain killers which masks a given amount of pain responses from the brain, to still say I feel no pain only shows ho she lacks the understand on the condition at all, or has the ability to write what a person says on the subject, which is the only reason i'm be transferred to the back specialists in the first place, to see why it's getting worse and the pain killers are no longer effective, so totally disagree with this part, again none factual in a report, if I was her boss, she would be moved to a cleaning job, as her level of understanding on anything on the medical side, is surly lacking in her replies....


Stress related illness


well this part really does imo put icing on the cake, with her lack of basic understanding on the working of side effect, condition overall and long term tablet use, spelling, grammar and missed out parts, and she is supposed to be the professional?

Has not ha any

had a childhood psychiatrist at school? No, I had a educational psychiatrist at school to help me with stress of day to day life, not exams, i've not taken a single exam at school in my life and just another inaccuracies to make me wonder about this person incompetence, you have a duty of care as a examining body to me sure your assessor are competent in the field they are doing the assessment in.


Social history,


error on the one flight of stairs part, again, word for word it should be, not something made up to sound better or worse, I said and mentioned I have dog leg stairs, which is 6 steps, then a landing, which turns at an angle then another 6 steps, as my history was from the building trade, it's a common use of the correct term, something else she fails to record, and has no understanding on what is communicated and has little ability to write even a simple report, word for word without making errors and adding inaccuracies, but it gets worse,....


Occupational History


stopped working many years ago, er no, I said and I quote, I was forced to pack in work 20 years ago, and last worked in 1999, last job wasn't a plasterer either, so again she didn't listen.


The main reasons for leaving was family issues?


Lol, now come on, I couldn't make it up? But seems she can? I have no family issues, so where as this come from? From her head, as it's not from my mouth, that is for sure,...


I was Married on the 17th of September 1988, and split up and got devoiced on the 21st of February 1992, as I was having issues with my back, had no idea on what it was, made me poor to live with, then again I was a workaholic so that also didn't help, mood swings, lack of sleep and other issue.


But I still worked for 7 years afterwards, so where was my family issue? In her head, the Nurse, who has no idea on illness, can't even type what a person says, then makes things up afterwards to fit a given picture, you have made my day, this so on only 5 pages will be laughed out, hope you didn't mind me uploading it online, as it seems plenty of others are having a right laugh, at my stress maybe, but tbh I'm so great full for you providing me with such a star, makes the care against you so much easier, and yes once won I will be also going against you, and her, as both are plainly incompetent to a degree which is beyond reasonable doubt.


So another point to me :)


Page 5 item 6


Description of a typical day,


stairs, nope, it's 6 steps, as all stairs are 13 steps for a standard house, so mines a dog leg, so it's 6 landing then 6 again making 13, if your going to do a report, do it right or not at all.


I don't do all the cooking, only when i'm feeling ok.

Same as washing and dressing.

Never sat for an hour in 20 odd years.

Never stated I could walk into town, I said when I was fitter, many years ago now, I could walk into town, now i'd be lucky to walk to the car and drive to town most days.


Not sure on this part, as again her typing just doesn't make sense, so I'll copy paste then amend it to what Ithink she said, as tbh it's anyone guess what she types or who she got it from with some of her comments, so here we go


He makes GP bla bla online,,,,, but has not been to the doctors in a long time”? Lol, a Doctor sees me most months about something, but the but that doesn't make sense is the part that I seem to now be female ?


because they refused to give her some tablets that the hospital recommendedi'm a he not a she, but again her mind is playing tricks on her ability to listen and understand and write a report accurately.


What she means to type and what I said, as it's my history, then in the past, with a previous doctor at my local practice, I was prescribed tablets from after a MRI brain scan, my own doctor at the time refused to give me a repeat proscription, so I argued the point with the practice manager and changed doctors after he said, “she can't change a hospital tablet without consultation with you and was wrong to shout at you in the practice”, all noted in my notes at the practice.


Atm I can do anywhere from 8 to 12 steps without acute pain in my back and hips, so stop every time to rest and recover, doesn't matter if it's on the flat or uphill, steps or anywhere, have enough witnesses who will swear on any bible that I walk like John Wayne, swinging my hips out as I was, are bent in the back, round shoulders and stoop.


See my answers on my page notes sent in on the form sent to you, it says it varies for everything on day to day, so he posts . Recount or report on this contradicts her assessments and replies on my so called Descriptions written on the report.


Another point to me,...


Page 6 item 6 from over the page addendum,


quite a lot still missing from this as well, but as shown, my nerves make me talk a lot, and it takes me a long while to settle down with anyone new, but won't say any of this page is wrong, just some missing that's all, as I waffle on far too much....




Medical Opinion


Page 7 item 7


so as I can't stand or sit without using a chair to lean on, seems she can't see


Client was able to sit in a chair for 55 mins? So was the same person not observing me when I move, alter position and even say “these chairs are about as comfortable as those in reception”?


Seems again she has no understanding on what's wrong with a person, no matter how hard they tell them how long they have prepared for a given assessment, like no food since a given time the day before so they don't need the loo, no liquid from the same amount of time, extra tabled taken to slow me down, quieten me down, calm me down an dull not only my senses, but my ability to feel well really much at all, seems she doesn't record or recollect my glassed eyes, even though she mentioned it on the day?


I know when i'm feeling calm and drugged up, I get into this state often enough to jump through hoops we have to do in life now days to get anything, so I'm now fit for work, on someone looks alone, no matter how many points I can prove she's wrong on?


So reaching, even though mentioned on previous pages, and struggling there and then, she can't see it?

Makes me wonder what the training involves,


as from looks, doesn't seem she was,

from recording, well hopefully I've shown enough of her lack of skills in this department.

From listening, well same answer from above, as what she hears, doesn't get written down, that is for sure, and her lack of typing skills and note taken alone, means she'd never get a job in an office, but medical skills, well none what so ever, i'd hazard a guess that more cleaner at any hospital can see much clearer than she can, and her understanding on anything to do with medical, is sub standard to a point which for me makes her incompetent at worse, inadequate and substandard at best, making not only the test and her not fit for purpose, but the training provided and ability to monitor and maintain and follow guidelines to a given standard, well below par.


So to sum in up in a brief statement now i've seen the full report,


after such insightful comments like,


looks well, coped well, did not require prompting, Behaved normally.... etc etc etc


most pages after 7 are copy paste of previous answers which have just be put in as to fill in a given part, no matter if there relevant or even true, so 28 pages of utter junk, if she is an approved disability Analyst then god help the nursing homes she goes into, and can fully understanding why the system as a whole is not fit for purpose any longer, see you at Tribunal, where medical evidence is read, guidelines are followed and assessors don't make half of it up, and write errors elsewhere to a standard which make me wonder if English has even been past any school level, let alone anywhere else, as not being able to write what a person says in a report accurately makes me wonder at her so called medical skills are altogether.


0 score,


meaning all previous assessments where null and void, so she is better than all the previous one, all 5, she must be such a help around the office and a credit to the NHS, who i'd say will be so sad to see her leave and do this as a job, i'd hazard a guess there were a whip round to see the back of her.


20 years of professors, senior consultants, consultants, and doctors have been over turned on a Nurses opinion from eye sight alone,

one who can't read, as too many errors in the report to say otherwise.


can't write, as the report speaks for itself, and farcical attention to details, mostly and sadly in my case wrong and inaccurate.


Then you wonder why 82% get over turned at Tribunal.


This is now being copied online to various web sites, to my local MP who I had a meeting with on the 18th of May 2019 and sent to the head of the DWP, for no other reasons to show others, how poor the system is, how it is abused and no longer fit for purpose, yes I keep saying this, as had it mentioned now by too many others, to think other wise.



Replies

  • zakbloodzakblood Posts: 397Member Pioneering
    mostly irrelevant as you only have my replies and don't see the full report, but just to show how many mistakes are made in reports by so called professionals  
  • clarkjohnsonclarkjohnson Posts: 209Member Pioneering
    Thank you for that it beggers belief how they can say they are straight and honest 
  • CockneyRebelCockneyRebel Posts: 5,246Community champion Disability Gamechanger
    Sometimes assessment reports fall far short of our expectations. All you can do is wait for your decision letter then put in for an MR.
    I can sense that you are a little miffed by the report.It would be a good idea to get trained advice from an agency near you.
    MR's and tribunal submissions are best served by showing that you meet the criteria, with examples to paint a picture of your daily life.
    Any complaint about the report or assessor should be sent to the AP as a separate matter, sadly The DWP will not be interested in anything oher than facts
    Be all you can be, make  every day count. Namaste
  • clarkjohnsonclarkjohnson Posts: 209Member Pioneering
    A little miffed I wonder why that is 
  • CockneyRebelCockneyRebel Posts: 5,246Community champion Disability Gamechanger
    edited May 27
    A little miffed I wonder why that is 
    :)
    Be all you can be, make  every day count. Namaste
  • wilkowilko Posts: 1,877Member Disability Gamechanger
    This is and must must be the longest post on this forum. We all know or should know by now that the HCPs are not specialists in any one field of medicine.  They are trained to use the computer software which has little room for covering every illness, disability and effects of medications of those claiming PIP. When we fill in our application form answering the questions in relation to the PIP descriptors and our abilities to preform them. The assessment then with the input from the assessors questions to you and I taken from our application form has to form an opinion, judgement, on our verbal answers, appearance and physical examination. The fact we can take or send in files of information confirming our diagnosis, illnesses and lists of our medications at the end of the day the assessment is about our, your and mine abilities to preform the PIP descriptors in a safely, repeatedly and in a timely manner. If we where to arrive for an assessment on crutches and said our hobbies where pot holing, cycling the assessor will draw their own conclusions on your abilities regardless of other information supplied. Hence why so many of us go on to MRs then a Tribunal.
  • clarkjohnsonclarkjohnson Posts: 209Member Pioneering
    Lol yes it would be difficult riding a bike on crutches very true might be helpful for pulling someone out of a pothole 
  • poppy123456poppy123456 Posts: 14,200Community champion Disability Gamechanger
    Hi,

    I did manage to read that but what i couldn't see or maybe missed, is the recommendation a group or fit for work?
  • zakbloodzakblood Posts: 397Member Pioneering
    Sometimes assessment reports fall far short of our expectations. All you can do is wait for your decision letter then put in for an MR.
    I can sense that you are a little miffed by the report.It would be a good idea to get trained advice from an agency near you.
    MR's and tribunal submissions are best served by showing that you meet the criteria, with examples to paint a picture of your daily life.
    Any complaint about the report or assessor should be sent to the AP as a separate matter, sadly The DWP will not be interested in anything oher than facts
    sent the MR the next day the letter came, still waiting for a reply, phoned once and as of yet, no reply as not dealt with, but thanks all the same, still waiting, also taken out grievances with the assessment place, so be told the WCA full investigation may take upto a moth also to complete, as assessment was in March only this year on the 19th and got the failed with 0 score on April the 15th, letter of MR sent a few days after, so it's taking it's time, but not to worry, i can wait, and look forward to the Tribunal and having them look silly again
  • April2018momApril2018mom Posts: 2,217Member - under moderation Disability Gamechanger
    Assessment reports are woefully in need of improvement. I briefly looked at the one that was sent to my apartment. I waited for a letter to come then I requested a mandatory reconsideration immediately. 
  • zakbloodzakblood Posts: 397Member Pioneering
    Hi,

    I did manage to read that but what i couldn't see or maybe missed, is the recommendation a group or fit for work?
    was on incapacity for 16 years, then they put me on ESA on my last assessment, had 5 now and always been in the not fit for work so support group for the last 4 years, now on nothing, as kicked off, with no time off for good behavior lol, got to laugh tbh as you couldn't make it up, the more i read on the forum, the more lack of facts i find, it's smoke and mirrors and so much is copy pasted, which contradicts other replies, seems she was rushed off her feet and just did a rush and poor job on mine and i'm so glad it's down on paper, as now others have looked at it, just a few points will go in my favor, all major ones mind you, and some minor ones, so i'll be awarded for sure at Tribunal, and just hope there's enough to make a claim against the nurse on the day, and the company i was assessed with, as i'm in the process of building a very strong case, or so i'm being told, will keep you posted.

    so apart from the extra stress and all that comes with it, i'm the same, getting older and worse each year, but on hind sight, i should have said no as soon as they didn't have the recording equipment which was asked for, and recorded on my paper and verbally on the day, but that's my fault, so i live and learn, i'm posting it here so others know, there not alone, and fight it, as when professionals do such a botch job, make them pay, when the DWP cares less, stand up and state, sorry i'm not a number, i'm a person with rights and the law on my side, and while i stay honest, seems not the same can be said with your assessors, the whole thing isn't fit for purpose and needs a review, to get a fairer, and medical assessment, not on looks alone, and done by the right people, those qualified to know, not some second or 3rd rate nurse who wouldn't get a job in the 3rd world country, let alone our NHS. these sort of people need to be removed, so there lack of knowledge and lack of understanding of simple medical details doesn't make others lives a misery with all the extra stress and worry that it brings,... 
  • zakbloodzakblood Posts: 397Member Pioneering
    wilko said:
    This is and must must be the longest post on this forum. We all know or should know by now that the HCPs are not specialists in any one field of medicine.  They are trained to use the computer software which has little room for covering every illness, disability and effects of medications of those claiming PIP. When we fill in our application form answering the questions in relation to the PIP descriptors and our abilities to preform them. The assessment then with the input from the assessors questions to you and I taken from our application form has to form an opinion, judgement, on our verbal answers, appearance and physical examination. The fact we can take or send in files of information confirming our diagnosis, illnesses and lists of our medications at the end of the day the assessment is about our, your and mine abilities to preform the PIP descriptors in a safely, repeatedly and in a timely manner. If we where to arrive for an assessment on crutches and said our hobbies where pot holing, cycling the assessor will draw their own conclusions on your abilities regardless of other information supplied. Hence why so many of us go on to MRs then a Tribunal.
    i'm on ESA, never done, eg filled in or applied or been ill enough for PIP, on or was until removed from the system and now supported by friends and family and my ever loving and caring partner, on zero money a week, as from April the 15th this year. have done MR and a successful Tribunal in the past, 8 years ago, when i scored a couple of points under, which they over turned as again too many errors where made, and proved beyond reasonable doubt that the report was wrong and inaccurate, and 3 proof able lies, amount of time in interview, when i had a car park extra ticket from the venue 10 mins away, so times didn't tally up, when the assessor said i was in the meeting and when i left, so he added on half an hour, which i proved i'd left before the stated time, faulty assessment details of % of movements in my shoulders, even after he wrote i'd refused any medical exams on the day, then seemed to have forgotten and wrote note no one can guess without measuring, which made the doctor smile at the tribunal as i asked them how much in degree's in my arm and held it up so he could guess it, which of course he couldn't, and again another major one, which he again contradicted himself with one page of notes contradicting another page, so as both can't be right, he just made it up or lied, so found the extra points and got the reward and took action there and then against at the time ATOS, who i found in Tribunal to have lied on 4 points so won my case fair and square, see honesty pays, lies always get caught out in the end once something wrong is provable on paper,...
  • zakbloodzakblood Posts: 397Member Pioneering
    Sometimes assessment reports fall far short of our expectations. All you can do is wait for your decision letter then put in for an MR.
    I can sense that you are a little miffed by the report.It would be a good idea to get trained advice from an agency near you.
    MR's and tribunal submissions are best served by showing that you meet the criteria, with examples to paint a picture of your daily life.
    Any complaint about the report or assessor should be sent to the AP as a separate matter, sadly The DWP will not be interested in anything oher than facts
    i'm more than capable in Tribunal, did one before on my own, and don't always see eye to eye on out side bodies, don't agree to a point on CAB assessment training course on how to pass a given test, while it maybe helpful to some, not saying i know it all either, or smarter than anyone else either, just i like to hold my head up high, and smile when others put me down, facts are great, as it's a two way sword, which cuts both ways, you can't have a given fact saying one thing, which contradicts another fact saying the opposite, either one is right, or both are wrong, if both are right, that's a contradiction on it's own. ESA WCA assessments are based on looks, and looks and feelings alone on the day, which takes into nothing into account on anything other than one persons views the assessors, so hopefully you get someone who has a clue, as most haven't from my experience, take next to no medical history into account either on the day, or if provided in advance, and don't read anything which you supply, as shown in my case and many others, it's pot luck and hit and miss if you get a good one, or a poor and or bad one, same as a driving test tbh, as there's also plenty on the roads which shouldn't be also, same as many people who say they can't walk playing golf each and every day, so yes it's there for a purpose, but this atm isn't for purpose, which is why i'm sending this to every site and MP and governing body and website i can find, as tbh i have nothing else to do while i wait, other than get back at poor practices, if it gets just one poor nurse struck off, so a good deed is done in my book, and if i get it back, or don't, either way the stress isn't worth the effort, but will carry in it, just to prove them wrong, then say i told you so, to the managers in the test center, which i'm also going out for,... 
  • clarkjohnsonclarkjohnson Posts: 209Member Pioneering
    Very interesting there seems to be numerous accounts of lying going on and liars should be made accountable because it’s a crime 
  • zakbloodzakblood Posts: 397Member Pioneering
    it may not be all like this, it maybe just be something as simple as over worked, or under staffed, or a combination of many factors, like hidden targets etc, as while any charity websites only show the bad news, plenty with me included have had positive comments from previous experiences as well, the DWP cares less about anything overall, and is quite happy that it's contracted out again no matter the outcome tbh, so with any amounts of fact given, the chances of a appeal succeeding in the MR stages are very low, don't have this years data, but someone may have, but the over turn rate for Tribunal last year was 82% success rate, which tbh makes a mockery out of the whole system overall, as it's just not fit for purpose, we all know plenty on it, which shouldn't be, who should get acting awards and not help, but on the other side of the coin, we all know someone, who deserves it and fails, so is let down by the system, through no fault of there own, for me what would make the system fairer is medical information must be taking into account at earlier stages , and with assessors being better qualified, not just some random Nurse who couldn't get or couldn't keep a job in the NHS or private sector being hired with little in the way of understanding medicine as a whole, and no idea what so ever on disability parts, which are varied and quite complicated and complex 
  • clarkjohnsonclarkjohnson Posts: 209Member Pioneering
    Yes I’ve said before I had penile cancer and the girl was in her 20 s at the assessment I mean how would she no the issues I have been put through. It was basically what time do u get up and can you move your toes she gave the impression of I couldn’t less mr 
  • zakbloodzakblood Posts: 397Member Pioneering
    after my second phone call to see how my MR was progressing, today i've been told, after 6 weeks and 2 phone calls, they still haven't even received it, and it matters less that i have a signed and delivered note saying other wise, as sent recorded post, so there's my first tip, and here's my second, both times i phoned, it was put onto my account, so they knew what i was phoning for, and also can't now say i've gone over the month to appeal with the MR either, so while on the phone, they made me a local appointment at my local job center where i'm off to on Monday and will take the copy of what i kept for them to photo copy and send to them asap, so seems either they lost it, or just are giving me the run around, but in the end, it will just now take longer, but this way, they said on a recorded message, that it will be sorted within 10 days of receipt, so only 6 weeks behind, but hay ho, what doesn't kill me, only gives me more stress, so record everything, date and time all phone calls and get names and make sure it's logged on your account, as proof,  
  • zakbloodzakblood Posts: 397Member Pioneering
    so to update this, i've taken out a formal complaint against the nurse who did my ESA WCA in the first place with the company who hired her, and also with the NMC, so no matter what the out come of the MR, no matter how late it is, i will still be fighting for my rights with the other 2 either way, can't see the MR working either, so still pin my hopes on the Tribunal, and will update either way, so stay strong everyone and keep alive and fighting, as they do try very hard to wind us up and make it so hard, most give up in the process.

    seems i won't go the same way, no matter the stress it causes and will take it as far as it will go, then fight some more to keep it going, for the others who can't, so in the end, the system changers, or i give up with old age and a care less attitude that some in the DWP have gotten into
  • zakbloodzakblood Posts: 397Member Pioneering
    well Monday soon came and almost went, been to the job center today and met a man with almost the same conditions as myself on the other side of the table, had a good old chat, while he photocopied my photocopies of the forms the DWP had already lost once and shook my hand and wished me luck, he said the DWP as he worked in the job center were very good employer's and made him at home and switched his tasks daily if needed to suit his needs, but no wheelchair access to the canteen, so has to crawl up stairs to get a drink and break, so not all roses there either, so finally they have my MR, only 6 plus weeks later, after losing one already after it had been signed for, so now i'm back on track, to be told no, and then to Tribunal,...
  • zakbloodzakblood Posts: 397Member Pioneering
    today the 15 of June 2019 only 61 days now after i failed a WCA for the DWP on ESA in the support group, so now only 61 days without money, =£0 from them, and still maybe a week or more before they say they will send me details from my MR, so still waiting DWP, then again the assessment center today has posted there findings on my case and formal complaint and it filled 2 pages and was full of well nothing tbh, apart from lip service, so that's one door shut with no interest, and now wait for the nursing and midwifery council to do the same, as tbh i don't hold my breath from either of them doing squat, as per normal the professional world just buries it's head in the sand, but it all add's up to more proof for me as soon as i go to Tribunal, so everyone reading, make notes, matters little how often you fail, it's how many times you try that matters in the end
  • drewdundeedrewdundee Posts: 49Member Courageous
    My medical conditions are almost the same as your but i have L1 and L2 herniation which leaves me unable to walk for anymore than 2 minutes then my legs give way, i also hold down a full time job. I work for a telecoms company, so there are jobs out there that require you to be on your feet all day, so if you fail to get back on ESA there is some hope. Wishing you the best.
  • zakbloodzakblood Posts: 397Member Pioneering
    edited June 16
    thanks for the reply and i met a person at the job center on the other side of the desk with the same condition also so yes i agree there are plenty with the same or worse that work, not something i'm shy of doing either, worked for long enough so yes always something i may have to do also if the MR and Tribunal finds against me, thanks for the best and also the same to you, i do have more than a few other issues which make it somewhat harder also, but i know where the comments are coming from and help offered etc, it does mean a lot to see others coping better than some, like me, as for me it varies from day to day so have what's called a fluctuating set of conditions, so no 2 days are much a like, something i can do ok one day i may not be able to do the next, and with tablet taken, like everyone here, that effects to some degree on how i can even cope at home, let alone in a work place, as i'm not sure many employee's would be flexible enough to have me on the loo all days some days and unable to much the next, then have days between being fine, once on tablets i can't drive or use machines, being dyslexic and with other issues means something others cope with i fail at, not a slow learner, far from it, but being able to recall it, isn't something i have each and every day, when my back and legs flair up, even sitting or walking or lying down is something i can barely do, and is now after 20 years of suffering it, has made me go back to the hospital on Monday the 17th for a chance to see if they can do surgery to make some of it better so i can maybe be more useful and in less pain, have tried a work coach and voluntary working with them at the job center to only be laughed at with others on coarse who had to go eg forced etc and i was the only one who didn't and then to be told by the work coach there is nothing they can do as i'm just not fit enough for them, for them to help
  • zakbloodzakblood Posts: 397Member Pioneering
    with now some time to think and reflect, aged 52 next month, ya! and not worked since 1999, i feel 50% of me is with fear, 30% is the unknown and the rest split between if i can, and how flexible are they now days?

    i've not spent my time lying down and doing nothing, as when i worked in the building trade a licence to print money tbh i was always fit and did voluntary work in the evenings and weekends with swimming coaching and waterpolo and also was a school governor for 20 plus years, so spent all of the 6 weeks holidays every year away on primary school camps as a school helper, then when i was made to finish work, i kept on the evening and weekend stuff until i could no longer able to do it, then as i had little in the way of formal school educational qualifications etc, not been found dyslexic at school or needing to have worn glasses, it's not until after i left and was diagnosed later at college and spent then 8 years studying in one thing after enough to try and retrain, and got kicked of 2 coarse then as someone shopped me for being on full time when i shouldn't have been, so made a 4 year coarse take a lot longer to finish as i couldn't do the teaching hours to do it, so 4 years became 8 to get a computer science degree, with plenty of help mind you, as while i was top of the class of near it for most of the time in the can do part, the paper work and test side of it, i only just manged to scrap a pass at and only then with lots of support and help, so re trained i tried to get a job in the field i was now qualified it, only to find out my lack of English and math's skills from school held me back, so the degree was just a piece of paper and without experience and other basic skills qualification, there was only closed doors in my face and sorry for year after year, so what then, you sit the basic maths and English and go again, and then no experience or relevant past work lets you down, so by now i kind of came to a place where i'm at now, too old, no experience and no one willing to give some one with my background a chance, not that i blame them, there's plenty of fitter, younger and more able to fill the gap, so also it doesn't help that i didn't need to the money, i came to be quite lazy and careless kind of type, which every time something i tried, made me step in a different direction, mostly backwards and more inwards, as why try if no is always the answer, not had an interview now for 12 years and then made it to the last 2 and didn't get it, so maybe i am work shy or just lazy, something that posts and comments from 3 people this year alone has made me think more than once on, but one thing for sure, it's not until the last few years that there has been any help offered to the long term ill or sick or just out of work older generation as a whole, so maybe that's why a given % of my aged with some issues aren't today employed, but not sure it's only our fault either, as society has some part of this to blame, not given us a try, when only a little help and support would have in my case gone along way
  • zakbloodzakblood Posts: 397Member Pioneering
    some one on here asked me if i ever thought of writing a book about it, and i laughed and said no, as tbh it's the most boring book anyone would have to read from time in immemorial, my life history and what i have and haven't done and could have done but didn't try if only someone had given me the chance, then on reflection, why should anyone anyway, if i wanted it bad enough, maybe i would have tried a bit harder for a bit longer, as the system didn't fail me, i gave up and didn't fight the system, just lived off it, so in the end and on reflection, it's my fault, not for having a illness, but not doing the best i maybe could have with it and lived a more normal life as some do, as every time i say i can't, it's sometimes me saying i don't want to, as my world is comfortable and the out side world some times scares me being honest, but it takes age and understanding to achieve this sort of reflection and it's not something that happens over night, so age seems to be where wisdom starts, but still i need to so something about it, not just write it and think it, and this is where i am atm, in MR, thinking are they right? and i'm i wrong?
  • drewdundeedrewdundee Posts: 49Member Courageous
    Hey Zak, thanks, i totally understand. I was offered the surgery to for my herniation, my consultant was honest with me he said the surgery would be a nightmare and likely not all that successful. My herniation snapped off from the disk so now i have a loose peice of ligament pushing against my spinal column. My days are very good and bad one day feel semi good other days i wrecked. On a litany of pills to, tramadol, max dose of gabapentin 2700mg, amitriptaline, ibuprofen and diazepam for the tough days not to mention i have oramoph for "breakthrough pain" whatever that is. It ain't easy to cope with. Your situation i think it's harder than my own though being off work for so long then your work experience being around the building trade is not something that you can just walk back into with a back issue. Surely that's what ESA is there for. I hope that your MR goes well and you get the support you need and deserve.
  • zakbloodzakblood Posts: 397Member Pioneering
    thanks, what was offered 20 years ago with surgery if my memory is now correct and not looking at the paper work as i type, was, a steel rod attached to my spine in 4 places with mesh, they said at the time it was a % chance to make me better with less pain or a % chance to give me less movement but also less pain, but the chances of making me worse 20 years ago to me, wasn't something i would gamble on, as then the odd's were too low of making me better and far too high for making me worse, or even in a chair as the worse case they said and wrote at the time, so i lived with it and took the tablets instead of the surgery and didn't even go for the pain injections as again that was into the spine, so yes building trade wasn't an option, but computers i hoped was, but in the end, my age and lack of experience wasn't on my side and just not got lucky in anyone giving me a chance, spent a long time voluntary in a local computer shop helping out getting the experience i needed, only to be told to get on in the field i needed to drive, as going out on site was part and parcel of the job, again something i can't do when on max tablets, as not road worthy at all and a danger to myself and everyone else, so while the tablets say no, some do risk it, i'm one who doesn't and say no i had enough, i'm not capable of driving today, so just don't go out, as everyone knows there own ability and is a good enough job, couldn't live with myself if i did something in the car that was my fault, so thanks for the comments, 61 days now off and with nothing, so hope the MR doesn't take much longer, will phone again in the week, as they said 2 week it would ago it should only be 10 to 14 working days, so hopefully not much longer, already think no is going to be the call, so Tribunal in a year or so while ill go back to the job center and re try as soon as i know one way or the other, as they have been really great, they are about the only ones who has seen me om my worse days, as neither has my own doctor, as getting in there at short notice with a 2 week window is next to 0 chance, so always see someone else, who rights and says what they see and finds, but would be nice once to see my own, as she only has my notes, hospital and my views on the subject and as yet to even see it with her own eyes, but is brilliant all the same with me and has always been there, so can't complain, it would have been nice if the work coaches around today could have sorted me out years ago, but 20 years down the line, some are now just forgotten and left to stew, until re tried etc and then see if you pass or fail, passed 4 failed one, so now in a boat no one wants to be in, money's not the issue, as tbh not needed it like iv'e said for most of the 20 years, ex builders are never short, i made more than enough to cope with what life throws at me, but 61 days with nothing, dent's even my poor life style and letting the other half do everything and then also bring in the extra money needed, has really opened my eyes to those who care, for nothing
  • zakbloodzakblood Posts: 397Member Pioneering
    edited June 16
    oramoph is morphine, there is nothing stronger, so yes your in the same boat, once on that, you can't get any higher so if you cant deal with the pain then, there's not a lot else they can offer to suit.

    Diazepam, first marketed as Valium is a godsend, but does make me rather dopey, so again no idea on how you cope at work with it, just makes me sleep, then again that's what i take amitriptaline for, as dual use as i have it for migraines as well.

    never had or needed Gabapentin as not for my condition, but with that, you must be in somewhat of a worse place than me, so are coping better, can i ask your age? if you don't mind, no worries if you wish to not say, just wondered.

    but not trying to be nosy, it never nice to see someone worse than you as i wouldn't wish it on anyone

  • zakbloodzakblood Posts: 397Member Pioneering
    most of my other side issues were caused by long term Co-Proxamol use & non-Sterodial anti-Infammatories tablets, given me IBS,  Umbilical hernia and several stomach perforations & bladder and kidney issues, then again they don't tell you this when you first go on them, only after your taken off in hospital when you wake up, you get some locum in my case a french one saying how long you been on them, and you say years and they then say it flashes on the screen while there typing, you shouldn't be on that concoction for more than 6 months. 4 years plus later waking up in hospital wondering how you got there and trusting doctors are doing the best for you, not just giving you the cheapest drugs to shut you up lol,...

    while Metoclopramide sorted that out mosly for me, the damage is now done and long term, Propranolol a beta blocker for high blood pressure keeps me from falling down when i stand up, take Oxybutynin so i don't spend all day every day wetting myself and Citalopram to cheer me up, when i'm low, like atm lol, yes i can laugh, bathroom ceiling came down the other day in the storm, and most would think i'd won the lottery as i laughed out loud, what doesn't kill us can only make us stronger, everything happens for a reason, maybe god also thinks i'm idle as 20 years ago i would have gone on the roof, even though i don't like heights and fixed it myself, then done the bathroom ceiling the same day, and painted it as soon as dry, job done, but now, sometimes leaving the house some days is a strain without taking a tablet a few hours before hand to give me a boost 
  • zakbloodzakblood Posts: 397Member Pioneering
    well some mind altering developments this morning for me and i'm still coming to terms with what's been mentioned and said at the pain clinic after i went to to day, the bottom of it is, i don't have any longer a issue with my spine, bone wise that is, but i now have a long time muscle problem, from wrong posture, too many meds, incorrect diagnosis back in 2014, back no longer a bone problem, but long time weakness of the muscles have led to the same amount of pain, outcome?

    well some with short term damage have been corrected in 6 months to a year, with my age and amount of time with it, maybe 3 to 4 years of slow and re training the body to walk, stand and move / bend correctly which isn't as easy as it sounds, as everything i do, i seem now to do wrong, so have to go back to basics and re learn and strengthen the muscles in my back, body as a whole, hips and then can have work done on my osteoarthritis in my shoulder and back, so does this now mean they was correct to have failed me for ESA support group and found me fit to work? as it seems i'll need physiotherapy for the next 3 to 4 years, so doubled edged that is for sure, glad i'm not longer have such a poor back regarding the spine, that's good news, but the muscles are so weak i need to strengthen them and then alter my posture for the hold body and re learn to walk and stand, and sit correctly.

    so good news for me, and they upped my pain tablets so well worth it.
  • drewdundeedrewdundee Posts: 49Member Courageous
    Hi there im 34 my spinal condition came out of no where i was fairly active then one day woke up with sciatica, then a year later couldnt stand more than 2 minutes was a bit of a shock. Gabapentin is a great drug if you can tolerate the side effects works brilliant on neuopathic pain. So if you nerve pain id recommend it. As far as muscle pain well its not something i have any experience. Really hope you do not have to wait any longer. The fact that they play with peoples lives like this really is unethical. You cant make people wait so long to get something reconsidered. Im very new to the whole benefits system but from what ive seen myself and what i've read the people that put up with this have to be so mentally strong as the system is so mentally challenging. Keep us updated please. Wishing you the best. 
  • zakbloodzakblood Posts: 397Member Pioneering
    edited June 18
    well had a txt this morning from the DWP, they say i will get a answer to the MR report, by July the 1st, that's 64 days since letter say i failed my assessment, and days 72 days days for a MR reply, as they lost my first recorded delivered letter and had to send another, so to have finally getting a answer on my birthday of all days, so can't be good news as can't see them wishing me a happy 52nd birthday on July the 1st :disappointed: so then to tribunal, and yes i wonder how many months that will take, shocking and can see how many go under before they get to the end, this had drained the pair of us, my partner works, but having the strain of living with me stressed out of my mind and dreading each and every day and letter than comes, have the council harassing us over minor details i just haven't got as yet, letter after letter, week after week, not surprised some break under the strain, i've been close more than a few times, and cried myself to sleep more than once, this is a poor and broken system, made so hard so many fail, thanks for the kind works and reply
  • Adrian_ScopeAdrian_Scope Posts: 3,858Administrator Scope community team
    Hi @zakblood, I’m really sorry you’re having to go through this and for the strain it’s putting on your relationship too. 
    Whatever the decision from your MR at least the wait for that will be over soon and if you have to go on to tribunal, at least you can get the process started.

    Senior Online Community Officer
    Scope
  • zakbloodzakblood Posts: 397Member Pioneering
    thanks, and once over what do you get, a respite until the next time, no sorry we made a mistake, no sorry for the stress we have put you though, nothing, once is poor enough, but doing everyone and failing so many, after so often, just makes you wonder why, yes and before anyone answers, i already know, money, to save a penny they would spend a pound, as it must cost a fortune to do and staff with courts and all, for what? for me, just over £100 a week, doesn't seem it's worth the effort, when i got free health and other stuff, then yes, but now, really not sure it's any longer worth the hassle and effort, most can get this amount from 2 days a week doing anything, and without the jumping through hoops and being treated as a piece of meat or just a number, i'm not even sure i'm going to the Tribunal, as even if i got it, which i have high hopes i would, may be better to call it a day and go and find the easiest job i can on minimum wage and get the extra bits on top for low wages, as this now for me isn't worth my relationship that is for sure, doing both of us no good, so why bother, will see what they say on the 1st, and then have a long think about it, tax credits from a one day a week job pays more than i'm getting now, so really can't see the point of it any longer, those that are more ill and need the extra don't get a choice, but i think i do, so will see how easy it is to find something sooner rather than later, then sit back and just smile and so no, not playing the DWP games no more, seem they win and do want most off, as my mental health and my partners well being are worth more than X10 what pittance i get
  • poppy123456poppy123456 Posts: 14,200Community champion Disability Gamechanger
    I totally understand how you feel but please do think about it. Maybe get some help, advice and support with the Tribunal if you get that far.

    Unless you're already claiming tax credits then you won't be able to make a new claim because all areas are now a full universal credit area and have been since December 2018. Any new claims will have to be UC and this is means tested which means you'll have to claim as a couple. Whether or not you'll qualify will depend on your circumstances and household income. Savings/capital of more than £6,000 also affect any amount you maybe entitled to and £16,000 and more means you won't be able to claim at all.
  • drewdundeedrewdundee Posts: 49Member Courageous
    edited June 18
    Don't give in Zak if you have to take them to tribunal do it, you will get it eventually and the more people that take them to tribunal and win will eventually start to show the inadequacies of the system and hopefully things will change. Just look at the recent pip change 1 million claims have to be looked over again cause the government failed. Fight the fight and dont give up for yourself and everyone else. 
  • zakbloodzakblood Posts: 397Member Pioneering
    the problem is, now i feel a fraud, as the issue i first thought i had and they said i got kicked off or failed, so correct, i haven't no longer got spinal bone issues, i have muscles one, so taking that now to a tribunal, is a whole different condition and i have no idea on the law part on that, so will have to takes some legal & medical advice, as rather pointless fighting a point that's maybe changed, and then saying all the way through i've been honest, only to have a technicality change my stance on condition etc, don't really care how they see it, i'm not happy with it, so will ask first and see if what they say and then make my mind up, but thanks for the comments, it does help
  • poppy123456poppy123456 Posts: 14,200Community champion Disability Gamechanger
    zakblood said:
    the problem is, now i feel a fraud, as the issue i first thought i had and they said i got kicked off or failed, so correct, i haven't no longer got spinal bone issues, i have muscles one, so taking that now to a tribunal, is a whole different condition and i have no idea on the law part on that, so will have to takes some legal & medical advice, as rather pointless fighting a point that's maybe changed, and then saying all the way through i've been honest, only to have a technicality change my stance on condition etc, don't really care how they see it, i'm not happy with it, so will ask first and see if what they say and then make my mind up, but thanks for the comments, it does help
    The WCA assessment isn't about a diagnosis, it's how those conditions affect your ability to do any type of work.

    I'm going to try and help you here. he most important question of all is...

    Even though you don't have what you first thought you had, whether it was misdiagnosis, or whether you thought you had something which you didn't have. Has this changed the way your conditions affect you? what's different this week to last week? Can you magically do more this week than you could do last week, or even several weeks ago?
  • drewdundeedrewdundee Posts: 49Member Courageous
    Exactly what poppy said, it is not about the diagnosis is is how you are is something magically changed with your c condition from speaking to the doctor apart from change of diagnosis. 
  • zakbloodzakblood Posts: 397Member Pioneering
    no Poppy it hasn't, while they say my mind is part of the problem, my whole muscle set is in need of retraining, so another long road, not a misdiagnosis either, i had one illness 20 years ago, then long term meds gave me a few others, now with the first main one gone, seems no one told me after the scans, and now i'm left with the wrong body posture to be able to walk, sit and stand correctly without pain, as on my powerful ones now than before the assessment, so seems my mind and the muscles are given me more pain not less, but at least it's something they can now work on, but 2 to 3 years is a long time for this high level of pain, and without support, i'm not sure i could work either, but getting advice and will comment once i've had it in July and take it from there, thanks everyone for the support, it's appraised, on twice the amount of antidepressants than ever before in my life, so no not coping with this at all 
  • poppy123456poppy123456 Posts: 14,200Community champion Disability Gamechanger
    As your condition hasn't changed then my advice is you should still go for the Tribunal, if you get that far. You said yourself the 2-3 years is a long time and it is. Maybe after that time you will be ready to try some work but in the meantime i think they were wrong to find you fit for work. One thing they want us to do, is to give up. Don't, fight for what you think you're entitled to!
  • Adrian_ScopeAdrian_Scope Posts: 3,858Administrator Scope community team
    Good morning @zakblood. I agree with the others here — your diagnosis is largely irrelevant. It may alter your medical treatment and mean a different outlook for the future. However, your ability to work won't have changed.
    Senior Online Community Officer
    Scope
  • poppy123456poppy123456 Posts: 14,200Community champion Disability Gamechanger
    @zakblood am i right in thinking that i read you said that you won't be paid assessment rate while waiting for the Tribunal? If, so then i'm assuming you're claiming contributions based?

    Have you ever spent any time in the WRAG since you transferred from IB?
  • zakbloodzakblood Posts: 397Member Pioneering
    edited June 19
    i was transferred and went straight into the support group from IB, so no never been in the WRAG part, and as i only failed one before, but that was 2012 and got it over turned at Tribunal, i would guess as soon as the MR on the 1st of July says no and keeps the same decision, which is what they seem to do with almost everyone, i then process to Tribunal, and back on being paid, or was last time? as atm, i've haven't had anything now for 62 days straight, so are living off my partners earnings only, with our joint small saving almost gone.

    if that's what your asking, and regards to ability to work, short term no, long term yes, as in 2 to 3 years if the physio goes well and my muscles strengthen enough to not give me the acute pain i'm in atm, and without the heart ache i'm having now and the extra tablets from it, i can't see any reasons apart from my age and no work history for 20 years keeping me from working once the physio's been done, hopefully fingers crossed that is, can't say i'd be going back into the building trade at my age, but a somewhat easier job i'd hope i'd be more than capable of.
  • zakbloodzakblood Posts: 397Member Pioneering
    edited June 19
    reading the letter it says i was on ESA and the support rate allowance, which together added up to £428.20 per month, saying i was on £500+ a week 20+ years a go, was a massive drop, but over time you manage and adapt, but now one day at work and support would net me about the same, so tbh it's something i've got to decide, as long term in the end, i will be back at work, if it's now or later doesn't matter to me, the money isn't enough to worry about, the stress is killing me and my relationship and i'm worried more about my ability to do one day and cope, than the lack of money i have, don't wish to do something and fail and not only be worse off health wise, but back where i started 20 years ago, as that killed my marriage with health issues, mood swings and generally not being well enough and strong enough mentally to cope, so my future health and my relationship is certainly my main focus atm, so will get some more guidance in the next few weeks and then once i start physio see what happens and then see if it's even worth trying to do Tribunal or not, as tbh i've come about as far as i want to be pushed mentally, and won't have a break down for a pittance of money just to make me correct and think i have a right for it, i'd prefer to stop and find something and see how i cope and tell them all to just get stuffed tbh, you all know how it is, they just haven't got a clue, the system is made for most to fail, and those who do, they care less about, and i really do feel sorry for everyone in the same boat, i've been here before and know what it's like, but im drained and lower than i've ever been before, and no longer stronger enough to fight, it just isn't worth it for me, i'm not on enough to warrant a hard fight and loose now what is more important to me,  my relationship, my dignity, my honesty and my integrity, i can prove without even doing very little how wrong my assessment is, everyone has already told me on the law side let alone the medical side how wrong it was, but in the end, it's me again against them, and can still remember last time  all those years ago in 2012, winning and then no one saying sorry we made a mistake, sorry for the extra stress and heart ache we put you through and sorry for you troubles for the many errors and mistakes we made, nothing, not one thing, i still had to fight ever after i'd won, as they just sat and did nothing, without my strength and support at the time to keep phoning and asking and reminding them i'd won and they lost, i still wouldn't have got anything back, you get sent a letter saying your in a support group, then quietly forgotten, until 4 years later until re assessed, which was passed with flying colors and had recorded, still have the recording and when feeling low, play it back and remind myself how i was at a given moment in time, and wonder where's that strength gone, i've been ground down, forgotten and left out and now just hate the system as a whole and feel really sorry for anyone who has to use it, fight it and be dealt such a poor hand and one sided deck, just to fit in
  • poppy123456poppy123456 Posts: 14,200Community champion Disability Gamechanger
    edited June 19
    zakblood said:
    i was transferred and went straight into the support group from IB, so no never been in the WRAG part, and as i only failed one before, but that was 2012 and got it over turned at Tribunal,
    Sorry i'm still confused. When you were found fit for work before was that when you were claiming ESA or IB? if it wasn't when you were claiming ESA and you've always been in the Support Group then you'll be paid assessment rate for 12 months. The time when you were on IB doesn't count for this.

    You'll also need fit notes from your GP to be able to claim assessment rate, backdated to the date your money stopped.
  • zakbloodzakblood Posts: 397Member Pioneering
    i was then on IB at the time of the last failed assessment back in 2012, this time i failed back in April i was still on ESA Support Group, and had a pass between them both and didn't know about the fit note needed, as never have one n 20 years, so will go and get one if needed, will see what the MR says first in July, then with more advice reply back
  • poppy123456poppy123456 Posts: 14,200Community champion Disability Gamechanger
    Then you'll be paid assessment rate of £73.10 per week for 1 year, if you decide to go through with the Tribunal. Do let us know the outcome of the MR and what you decide to do if that fails.
  • zakbloodzakblood Posts: 397Member Pioneering
    thanks will do, anything would be better than the £0 i have now, so just something else to thing on, medical first for me and some more understanding on if or how long they think and will they put it in writing first, then onto the money side after, then will make my my up after my 52nd birthday, as parents have paid for us to get away to try and for get it for a few days, then will see what happens when come back with hopefully a fresh mind, relaxed and hopefully less stressed
  • zakbloodzakblood Posts: 397Member Pioneering
    seems they decided early as had the MR reply this morning in the post dated the 19th and arrived on the 22nd of June, and agreed with previous decision and said 0 points, 5 pages of notes, saying basically what ever i did or say, they care less, as there so called expert is trained in what ever bla bla bla, seems no matter how many errors they make, they also don't care, so will now think on it, as tbh i'm worn out
  • poppy123456poppy123456 Posts: 14,200Community champion Disability Gamechanger
    I'm sorry to hear that. Most MR decisions are just a copy and paste from the original decision. I do hope you decide to go ahead with the Tribunal, do let us know what you decide to do. You have 1 month from the date of the decision to request the Tribunal. If you do go outside of that time frame then with good reason of course you have 13 months.
  • zakbloodzakblood Posts: 397Member Pioneering
    thanks poppy for the reply, i'm thinking long and hard on this one, not sure i wish for a year or so of the stress, but thanks for all the posts and replies all the same
  • zakbloodzakblood Posts: 397Member Pioneering
    filled in the online tribunal form, so it seems the process is ongoing, already had a reply they have received it, so at least it didn't get lost, but yes it also timed out 4 times, and it says it will after 20 mins of not doing anything, and for me, that was around the 10 to 12 min mark 4 times in a row, so as always have you information handy and backed up so you can just copy paste it in to the right box etc, good luck everyone who's with me
  • Adrian_ScopeAdrian_Scope Posts: 3,858Administrator Scope community team
    Hello @zakblood, I'm sorry the MR didn't go your way, but at least you're not waiting for that result any more and while disheartening, I think you probably expected the decision. Sadly the decision stays the same with the majority of MRs. 
    That said, I'm glad you've decided to go to tribunal. Please make sure to keep us updated on your progress.
    Senior Online Community Officer
    Scope
  • zakbloodzakblood Posts: 397Member Pioneering
    yes will do, also gone down the route of getting a work experience just in case and have started sending out CV, seems i'm a dinosaur now days in the jobs market but fingers crossed, either way, something will turn up, either the Tribunal will say something or i'll have a job by then and won't need it, but physio is going well, first session done, feeling better mentally, physically still a bit drained, but thanks for the kind words all the same, either way i'll keep trying, not saying i can do a job, might try and fail big time, then at least i'll know,...
  • zakbloodzakblood Posts: 397Member Pioneering
    edited June 26
    well a phone interview already and a interview at a place to day at 3pm, CV sent and accepted, so it's at place for the disabled, they were very understanding on my 20 years with no work history, age wasn't against me, seems i have the skills and know how for what they require, so at least i get the experience of a interview even if i don't get the job, either way it's a bonus so looking forward to it, got my Tribunal papers though the door this morning, so that's on track, seems everything is at last moving in the right direction, one way or another, i'll survive and as always thanks everyone, it's nice to know your not a lone at times
  • zakbloodzakblood Posts: 397Member Pioneering
    interview went well, 30 mins maths and english test first, then 30 mins quick fire questions on my knowledge, really did for like a dinosaur mind you, girls before me could have been my daughter lol, but at least i did the maths in my head, where as she did her's on her phone, they will get back to me with feedback and let me know if i have it in the next few weeks  
  • poppy123456poppy123456 Posts: 14,200Community champion Disability Gamechanger
  • zakbloodzakblood Posts: 397Member Pioneering
    thanks, seeing what's out there, and then seeing what i can or can't do, keeping all options open, as they can't complain about me not trying and looking
  • Adrian_ScopeAdrian_Scope Posts: 3,858Administrator Scope community team
    Hi @zakblood, that all sounds very promising. Have they said when they'll let you know? Good luck! :)
    Senior Online Community Officer
    Scope
  • zakbloodzakblood Posts: 397Member Pioneering
    yes either way they say there going to contact and give me feedback, and since i posted that, i have had two more interviews booked, so seems there's a shortage where i am for workers, and none so far has said my age or past 20 years of not working is against me, so fingers crossed, i hear something one way or the other, and way before i hear back from physio, as there supposed to be contacting me for same dates to start my long term physio to rebuild my muscles back up to full strength, at this rate i'll be either working or in Tribunal before they reply with dates
  • Adrian_ScopeAdrian_Scope Posts: 3,858Administrator Scope community team
    How has your weekend been @zakblood? Did your roof get sorted in the end?
    That sounds really positive on the work front. Don't forget, just because you've not been in work for an extended period, it doesn't mean you haven't been developing desirable traits and skills that are transferable in to the workplace. Be sure not to sell yourself short! 
    Hopefully your physio will begin soon too. 
    Senior Online Community Officer
    Scope
  • zakbloodzakblood Posts: 397Member Pioneering
    roofs sorted, had a friend come round and do it, interviews all gone well, but not finish until end of the month, so no news as yet, got my ESA back this morning, so now just waiting for a Tribunal date, but at least i'm on something so don't have to use saving to eat, thanks, heard nothing as yet from Physio, so no idea on how much longer before i start either as yet
  • Chloe_ScopeChloe_Scope Posts: 5,202Administrator Scope community team
    Thank you for the update @zakblood! I'm so glad you've managed to get a few things sorted, I hope that's made things a little easier! How long have you been waiting for physio at the moment?

    Wishing you a lovely afternoon :)
    Chloe
    Online Community Officer
  • zakbloodzakblood Posts: 397Member Pioneering
    8 weeks altogether, but that's not the real point, the real one is my GP, she should have told me in 2014 my bone scan came back clear and my 2016 MRI shows muscles inflamed etc, so i should have started physio back in 2016 at least, now i've got at least 2 to 3 more years of it to get back to being fit and pain less, or at least pain free anyway, i can't blame anyone really but myself, my own GP went onto maternity back in 2015 and it seems no one else took up the job of looking at anyone, well mine anyway, so kept proscribing my meds, not knowing i maybe no longer needed them, and should have been referred years ago, ah well looking more for the future now than the past, thanks anyway, another application sent off today and another interview next week, so it's all positive and experience atm
  • zakbloodzakblood Posts: 397Member Pioneering
    well phoned the DWP Friday to see where my back dated money was and was told, there waiting on my to provide a sick / fit note from a doctor, first i've heard of it i said, as my last letter from you was dated and also states, they will now be paying me after a 12 to 13 week wait etc now by tribunal has taken on the case, the said reading from a screen with no comments welcome, they sent you a txt and a letter stating it, which i replied i haven't received, and that's why i'm phoning now, so wouldn't they do a follow up? answer no.

    so made and got a appointment for today on the same day, last friday, which was cancelled today, as Doctor phoned in sick, seems she knew i was coming lol.

    so made another one for tomorrow, sick note please, backdated to april the 15th thanks.

    so will update once i've been and see how that goes, without one i get the standard £72 backdated, with one, i get my full amount, of £115 backdated, so can at least pay off some debt and go and grab food myself, instead of others feeding me.

    then wait until a date for the tribunal, and or a job comes my way,...

    happy days are here again
  • zakbloodzakblood Posts: 397Member Pioneering
    just come from the doctors and then a visit to the local job center to get my details uploaded onto my account, saves sending a letter, which can't get lost, even internally, so they scanned it and attached it direct to my account, so where im i at now?

    well doctor first, he was brilliant and very supportive, backdated my fit note / sick note from 14th of april to last day of december this year, meaning the DWP has now to pay me the full amount while i'm awaiting tribunal, so that's one less to worry about.

    had the felt sorted on mr roof by a mate, cost me a few drinks for him, so that's another worry less.

    need to phone the DWP in 3 to 4 working days and see what happens now and how long before the money comes, as i've already waited more than 14 weeks, so hopefully now the notes gone in, not much longer now, so much happier, interview on Thursday and another one at the end of the month, so while there's still no light at the end of the tunnel, it's not so dark, bleak and black as it was when i started, so my glass is still half full and not half empty, my chins up, each time they knock me down, i get up and smile as i'm alive, poor, but alive so careless 
  • Chloe_ScopeChloe_Scope Posts: 5,202Administrator Scope community team
    Thank you for updating us @zakblood. It sounds like things are all slowly getting there. That's great news about the doctor being so helpful!

    I hope things continue to go in the right direction. :)
    Chloe
    Online Community Officer
  • zakbloodzakblood Posts: 397Member Pioneering
    interview day at 1pm today, so fingers crossed, either way it's another one done, if i get it it's a bonus, if not then it wasn't meant to be and i was just there to make the numbers up again and maybe already went internally :) 
  • Adrian_ScopeAdrian_Scope Posts: 3,858Administrator Scope community team
    Best of luck today @zakblood! :)
    Senior Online Community Officer
    Scope
  • Chloe_ScopeChloe_Scope Posts: 5,202Administrator Scope community team
    I hope it went well today @zakblood! :)

    Chloe
    Online Community Officer
  • zakbloodzakblood Posts: 397Member Pioneering
    thanks, well it was ok, seemed to go okm maybe my last 2 went on too long, as have had now 2 that went over the 2 hours mark, so this one today was around 30 mins, so fair, seemed somewhat shorter and while they spoke alot, and wrote a lot, i didn't really have much or many questions to ask, i'd done my research and told them what i knew, which seemed more of the face to face was then maybe pointless, seems i was over dressed, came with maybe too much knowledge and didn't really need my hand holding and maybe that's what they have either been expecting or had previously done, felt somewhat of a dinosaur tbh, as there very young who had the qualifications that was sure as they mentioned it, but knew little about life as not been on the planet long enough, so guess they will take on a school leaver instead of someone like me, no matter how much experience i have, which is fine and at the end i told them so and wished them luck and to who ever got the job :) 
  • Adrian_ScopeAdrian_Scope Posts: 3,858Administrator Scope community team
    Sorry to hear that Zakblood. Do you have any idea when you'll hear anything? Is there anything else lined up?
    Senior Online Community Officer
    Scope
  • [Deleted User][Deleted User] Posts: 0 Pioneering
    The user and all related content has been deleted.
  • zakbloodzakblood Posts: 397Member Pioneering
    thanks for both your replies,

    had a reply, and another failed lol :) ah well, another one tomorrow morning at 10 am, so back again knocking on the door

    "Dear xxxxxxxxxx,

    Thank you for coming to your recent interview.

    We very much enjoyed meeting you. However at this time we will not be progressing your application further.

    If you would like any feedback following your interview please contact NAME and they will be more than happy to provide you with some feedback.

    We genuinely appreciate the time, effort and consideration made when making your application."

    about normal and par for the coarse, 22 done and dusted, phone interview then a meeting face to face, but then i fail at the next part, either another interview or being offered the job, but feedback is all good, so can't complain tbh
  • Chloe_ScopeChloe_Scope Posts: 5,202Administrator Scope community team
    Sorry to hear this @zakblood, I hope the feedback is useful though! 

    We'll keep our fingers crossed for you tomorrow, I really hope it goes well. :)
    Chloe
    Online Community Officer
  • zakbloodzakblood Posts: 397Member Pioneering
    thanks, it matters less how often i fail tbh, as i shall keep on trying all the same, to me, it's their loss, not mine, and i always send them a reply back thanking them and also wishing the person who got the job all the success in the future and for them and the company, as well, it doesn't cost anything and why not, i'm happy to just keep waking up, money isn't everything and after 20 years without a paid job, but 20 years working for voluntary, can't say that i'll notice the difference tbh either way, what you don't have you don't miss, and what you dream for, isn't no longer a dream once your achieve it, so i'll keep on dreaming for it seems a while longer
  • zakbloodzakblood Posts: 397Member Pioneering
    interview done, that's around 30+ face to face and maybe more phone ones, just over 2 1/2 hours long so par for the coarse, biscuits and tea and coffee provided , 10 others there for 6 jobs, so could have been more on different days, so chances are less, but staying positive, and as they mentioned they will let everyone know by tomorrow, not much longer to wait either.

    wasn't the only male there, which so far is the first, but again and upto yet have been the oldest by a long way,...

    but not the only one with no experience, so a bonus, team session with questions went very well, seemed most didn't want to talk much, where i'm not that shy and spoke to everyone and about everything, researched my questions and had some good answers back, so fingers crossed, seem most are quite nervous, while i'm rather the odd one odd and really enjoy them, gets me out the house and when asked to talk, have plenty to talk about
  • Chloe_ScopeChloe_Scope Posts: 5,202Administrator Scope community team
    We'll keep our fingers crossed for you @zakblood
    Chloe
    Online Community Officer
  • zakbloodzakblood Posts: 397Member Pioneering
    thanks, not heard anything as of yet, but still time, and also seen the same job re advertised so more still needed, so will apply again if i don't get in the first time lol :) 
  • Chloe_ScopeChloe_Scope Posts: 5,202Administrator Scope community team
    That’s good! I hope you have a lovely weekend.  :)
    Chloe
    Online Community Officer
  • zakbloodzakblood Posts: 397Member Pioneering
    thanks, same to you, hope your tucked up somewhere nice and warm and cosy, i will be in my head but my body will be on the pc the whole weekend :) 
  • zakbloodzakblood Posts: 397Member Pioneering
    Dear xxxxxxx,

    Thank you for coming to your recent interview.

    We very much enjoyed meeting you. However at this time we will not be progressing your application further.

    If you would like any feedback following your interview please contact xxxxxx and they will be more than happy to provide you with some feedback.

    We genuinely appreciate the time, effort and consideration made when making your application.

    which im doing now while typing, seems it not yet my time for finding a job it seems, so i again try again :)


  • zakbloodzakblood Posts: 397Member Pioneering
    just finished a phone interview and feedback from my last interview and been offered another interview at another location on Thursday in response to me phone interview and been advised to dress more casual, as tbh i maybe over dress in a suit, well down dressing is fine with me, i'm more old school and was always told to dress up and be formal, so yes time have changed in 20 years, so that's now done and inputted into my brain,...

    next, don't be so overconfident, as last few times i did all my research and knew the answers to every question asked, but in a group questions and answer sessions, when no one else wished or did put there hands up, maybe i did come across as a know it all, ah well, sit on hands then next time  and don't' seem to eager, but have been told that knowing the answers is only part of what there after, so again you learn something every time, so inputted into brain also.

    next, if you intimated the interviewers by being so relaxed and knowledgeable, then maybe your not getting the job office as your selling yourself a bit short, ah well no real answer for this, can't dumb myself down, and only going for the jobs on offer and quite happy to start at the bottom and see where it goes or stay put as long as it's work, seems my way of thinking is too old school now days, so will have the think on this one a bit more and just see how Thursdays interview goes and hope that lack of experience paid isn't such a bad thing when life experience and voluntary work experience is well more than most have by a factor of 10 as my age is double than most of the people there, ah to be young and a school leaver again :) 

    they won't say it's my age, as that's ageist, they can't say i'm going to women only jobs like housekeeping as that's sexist, but something is being put in my way, and that's 20 years of not working, so the work gap is a mountain that i'm climbing alone it seems.

    but i keep trying all the same and will give feedback either way once it's done and results are known, thanks for reading, hope it all helps someone in the same boat, don't give in, as it's not you that's to blame, it's the system your in, imo only mind you,...
  • Chloe_ScopeChloe_Scope Posts: 5,202Administrator Scope community team
    Thank you for the update @zakblood. I really hope tomorrow goes well! I bet the feedback isn't always the easiest thing to have, but I hope it is useful going forward. :)
    Chloe
    Online Community Officer
  • zakbloodzakblood Posts: 397Member Pioneering
    feedback is tbh what it is, i just guess i'm lucky to have the interviews tbh, as many don't, i read all the time how some younger people send over 1k letters and hear nothing back, so 30+ interviews and no idea how many phones one so far i lost count and tend not to track those, so fingers crossed one day someone will give me a chance, as that's all i need, one little change of luck and someone taking a chance, positive and looking forward as backwards is a dark hole,...
  • Chloe_ScopeChloe_Scope Posts: 5,202Administrator Scope community team
    I'll keep my fingers crossed for you @zakblood!
    Chloe
    Online Community Officer
  • zakbloodzakblood Posts: 397Member Pioneering
    well i start my new job all being well on Jan 6th 2020, as long as references and criminal checks come back in 7 days etc, and what do i get through the door this morning, i couldn't make it up?

    a tribunal date for the 26th of this month, what? lol only sent it in on the 22nd of June 2019, so that was quick, and my last one took a year, this one less than 6 months, so as i've had the back dated money today into the bank, minus £1k+ what the won't give me the full amount, only backdated £72 a week, not £115 like i was on, but careless, have a job now and no way going to quibble over that amount for the stress only to win and then say gets stuffed, i'm working next year!!!!!

    so thanks, but no thanks, i wanted to prove a point, and that i have with the assessment center and it's appeal and level 2 tier to hearing done, won the 5 out of my 6 points of order, have taken the nurse and that's still ongoing with the NMC, so that will go the full course.

    but now, chilled and relaxed, same person as before, still have the same condition i had 20 years ago, but no longer wish to jump through hoops and prove it, for what? a pittance, a begging bowl, and now Amber Crudd is also no longer in the job, can smile and see she also got what was coming to her, so Merry Christmas everyone, and hope everyone has a very happy new year,... 
  • poppy123456poppy123456 Posts: 14,200Community champion Disability Gamechanger
    Huge congratulations on the new job @zakblood i'm so pleased for you! You set your mind to get a job and that 's exactly what you did! Good luck when you do start and i hope you'll be very happy! Perfect early Christmas present! :)
  • zakbloodzakblood Posts: 397Member Pioneering
    yes a job was so much better than i could have hoped for, wasn't wanting to get back into the benefits trap, never been ill enough so always borderline tbh, so while they said i wasn't fit enough to work fully, they also said i wasn't ill enough for anything other than incapacity, so once that was changed and taken away, i was a fish out of water on ESA, as there is no middle ground, and so most have found, not really suitable for, so went all out for a job and got a employer who will work with me needs, not against them like the DWP, so thanks to the priory group and it's head CEO Trevor Torrington for actively going out there way to be a inclusive employer 
Sign in or join us to comment.