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System severity scale ??

maggieomxmaggieomx Posts: 131Member Courageous
I had a hospital appointment report sent back to me today with results.
 it says
 wide pain index is 7
System severity scale is 8   and    
Then for fibro its ... pain index is 7 then
system severity scale for this is 9
Havent got a clue what this means has anyone any ideas what they mean ???

Replies

  • maggieomxmaggieomx Posts: 131Member Courageous
    Is this u.k scale? same as the u.s.a scale ?
  • zakbloodzakblood Posts: 397Member Pioneering
    not 100% sure, so was hoping one the board guru's commented tbh, as while i've been assessed and there again in a months time, i'm not 100% sure either of the overall scales used, or the terms, as tbh i was just given the data myself, with little in the way on anyone explaining to me, what any of it meant either, i'm sorry to say, and as nobody is around alot to ask, i also just left after the assessment
  • maggieomxmaggieomx Posts: 131Member Courageous
    Thankyou zakblood.
    the explanation could of been wrote in double Dutch !!
    iv rang hospital and nobody there knows anything either?
    its like its wrote in a secret language 
    at least thankyou for trying 👍
  • maggieomxmaggieomx Posts: 131Member Courageous
    This is the first time iv been diagnosed for the fibromyalgia 
    i haven’t got a clue about all these markings.
    due to the markups I don’t know the level of my fibromyalgia ?  I just know I can’t stop falling asleep !!
  • atlas46atlas46 Posts: 827Community champion Pioneering
    Hi

    I have reviewed the link provided.

    These are all US based pain score studies, in the UK they should be considered, with caution.

    I have assumed that you have undertaken the assessment, as part of a Pain Management Programme.

    If that is the case, then the results should have been explained to you both in detail.

    If proper feedback is not provided to patients, then the quality of such assessments, should be called into account.

    Best wishes
  • maggieomxmaggieomx Posts: 131Member Courageous
    Hi atlas46 I went to the hospital about my arthritis, whilst being asked loads of questions I thought she was asking the questions and linking them to my arthritis?
    until I got my report back on Wednesday.
    i was diagnosed with fibromyalgia!!
    this didn’t even go through my mind ? didn't even know what it was?
    she didn’t say anything about the pain clinic as I’m already under a pain specialist for my back.
    defo haven’t got a clue about all these number !!!
  • atlas46atlas46 Posts: 827Community champion Pioneering
    Hi @maggieomx

    Who was the female that conducted your assessment?

    How on earth she comes to such a conclusion, based on a US dodgy study.

    Perhaps you might wish to consult your GP, with your assessment report, to see if he/she can explain it further.

    Keep us informed.
  • April2018momApril2018mom Posts: 2,217Member - under moderation Disability Gamechanger
    Contact the GP. Ask for a referral to a pain specialist. Take a copy of the report. 
  • maggieomxmaggieomx Posts: 131Member Courageous
    Hi atlas46 my assessment was done at the hospital in Manchester.
    she was a rheumatologist consultant.
    she didn’t come to the conclusion about dodgy us study ??
    she examined me and asked questions about my health ?
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