PIP, DLA and AA
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Fibromyalgia verses pip

ToffeeToffee Member Posts: 215 Pioneering
edited July 2019 in PIP, DLA and AA
Looking for people who have applied, been award, been refused to tell there story to help us all on this horrid condition. 

Replies

  • Ami2301Ami2301 Community champion Posts: 6,587 Disability Gamechanger
    Hi @Toffee PIP is not based on the condition itself but is based on how your condition affects your ability to carry out daily tasks and your mobility. I hope our community members will be along shortly to share their experience with you :)
    Community Champion
    Disability Gamechanger - 2019
  • ToffeeToffee Member Posts: 215 Pioneering
    Thank you ami  
  • MKMaleMKMale Member Posts: 24 Courageous
    Hello @Toffee
    I have Fibromyalgia, and I was awarded PIP high rate for both components a few years ago. I will happily help if you still need people. Just let me know if and how I can help.
    Kindest Regards

    Drew 
  • ToffeeToffee Member Posts: 215 Pioneering
    Yes thank you drew
  • sheZZasheZZa Member Posts: 219 Pioneering
    @Toffee
    i have fibromyalgia and several other debilitating illnesses. Four years ago I was awarded enhanced daily living and enhanced mobility. Although nothing has changed, if anything things have gotten worse, in May I was awarded standard for both.
  • ToffeeToffee Member Posts: 215 Pioneering
    Ty for sharing shezza x
  • trezashtrezash Member Posts: 3 Listener
    Hi I have fibromyalgia I was diagnosed 3 years ago I applied for pip a year ago this January I got awarded no points at assessment and mandatory reconsideration waiting for my appeal on the 5 th of August my condition had gotten so much worse my anxiety and panic attacks have lead to two really bad falls one which resulted in me breaking my wrist iam due to go back for a second operation on the 1 st of August not looking forward to any of them fibromyalgia has really changed my life !!x
  • poppy123456poppy123456 Community champion Posts: 18,542 Disability Gamechanger
    trezash said:
    Hi I have fibromyalgia I was diagnosed 3 years ago I applied for pip a year ago this January I got awarded no points at assessment and mandatory reconsideration waiting for my appeal on the 5 th of August my condition had gotten so much worse my anxiety and panic attacks have lead to two really bad falls one which resulted in me breaking my wrist iam due to go back for a second operation on the 1 st of August not looking forward to any of them fibromyalgia has really changed my life !!x
    HI,

    I'm sorry to hear this. Do be aware that the Tribunal won't be able to take into consideration any worsening of condition. They will only look at how your conditions affected you when the decision was made.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • ToffeeToffee Member Posts: 215 Pioneering
    So sorry to here this trezash big hugs thank you for sharing your experience x
  • robt1066robt1066 Member Posts: 33 Courageous
    A lady I know got a basic daily living award for fibromyalgia.
  • robt1066robt1066 Member Posts: 33 Courageous
    ... that's a PIP daily living award. 
  • ToffeeToffee Member Posts: 215 Pioneering
    Ty lovcat and robt x
  • JurphJurph Member Posts: 346 Pioneering
    I applied for PIP in January 2018. I didn't get a single point.

    I'm off to tribunal in a few weeks.
  • ToffeeToffee Member Posts: 215 Pioneering
    Fingers crossed jurph maybe ppl on here can give you some advice x
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