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We are looking to talk to parents about Medical Negligence

Richard_ScopeRichard_Scope Administrator Posts: 1,895 Scope community team
Are you the parent of a disabled child and currently going through the medical negligence process? Are you able to help?
We are looking for parents to test Scope's medical negligence advice. Please contact me on [email protected]
Scope
Specialist Information Officer - Cerebral Palsy

Replies

  • April2018momApril2018mom Member - under moderation Posts: 2,772 Disability Gamechanger
    I’m interested. I’ll email you tomorrow for further info. 
  • dolfrogdolfrog Member Posts: 371 Pioneering
    Hi @Richard_Scope
    Further to my comment on your other post: regarding this topic: 

    "Currently here in the UK we have a great deal of medical professional negligence.
    In the case of our family the failure of the UKs Audiologists to explin the 4 different types of Auditory Processing Disorders, and provide assessment, diagnosis, and support in all the UKs NHS Trusts.
    Then there are the incompetent medical professionals who should be working as part of a support team for all who are clinically diagnosed as having an Auditory Processing Disorder - Audiologists, Speech and Language, and Psychologists. They describe our issues using different terminology to best suite their egos, and income needs, and fail to understand and provide the support those of us who have Auditory Processing Disorder (the main underlying cause of dyslexia) require. 
    Such is the corrupt nature of the UKs so called medical professions"

    The real problem is greedy and incompetent so called medical professionals employed by the NHS, and their corrupt professional bodies who only try to hide their members ignorance and incompetence. We are being failed by all but one UK Audiologist, all UK Psychologists, and all but one Speech and Language Pathologist (therapist) They purposely use different terminology to describe the same identical issues to protect their incomes, and this also applies to some leading researchers at UK universities.

    Pure corruption failing to provide the support and understanding ,many children and adults need on a day to day basis.

  • alliy_jalliy_j Member Posts: 18 Connected
    I haven't filed a medical negligence procedure but am distraught at the gps negligence and lack of knowledge when it comes to diabetes. From her 5th birthday my daughter started to become seriously I'll and for 10 months was misdiagnosed as it was easier to say it's a virus and send worried parents home with a child who is wasting away in front of their eyes for the sake of a simple urine dip test. 
    Shrop doc refused to come out to a 5 yr old with agonal breathing and whilst waiting 2hrs to see a gp with a child unable to walk on entry to the clinic and slipping into unconciousness in the waitting room to be told bring a urine sample in the next day. If I hadn't refused to leave until everything had been tested for there and then my daughter would have died.
    I am sad and angry that it came to that extreme and that my 5yr old daughter was by then so Ill she spent 5 days in emergency care wired to machines and drips just because gps think they know everything and dont want to pay the price of a few tests.

    Thank you for listening to my rant 
  • Richard_ScopeRichard_Scope Administrator Posts: 1,895 Scope community team
    Would you all be happy to look at and comment on the Scope advice?

    Scope
    Specialist Information Officer - Cerebral Palsy
  • alliy_jalliy_j Member Posts: 18 Connected
  • April2018momApril2018mom Member - under moderation Posts: 2,772 Disability Gamechanger
  • Richard_ScopeRichard_Scope Administrator Posts: 1,895 Scope community team
    @April2018mom and @alliy_j could you please email me with your details.

    Scope
    Specialist Information Officer - Cerebral Palsy
  • dolfrogdolfrog Member Posts: 371 Pioneering
    Hi @Richard_Scope
    I am currently discussing local Medical Professional Negligence with my local county councils various so call administrators who come accross as BUCK PASSERs trying avoid providing any realistic solution to my families disability, more hiding the ignorance of the local NHS staff.  Which is very stressful, and detrimental to my mental health. 
    If you need any research regarding the topics you are discussing just ask and i may be able to find some research as this has been something i have found out I can do in recent years. 
  • EnnazusEnnazus Member Posts: 7 Listener
    I haven't filed a negligence claim but have often thought I have a case against CAMHS for failure to offer treatment to my son despite agreeing he needed it. He ended up hospitalised as a result. We then began paying for it privately until they got their act together. This resulted in them then refusing to engage with his early help as they 'weren't working with him' and refusing treatment completely as we'd sought it elsewhere. I'm not interested in money, I just want better for other kids in the future 
  • TopkittenTopkitten Member Posts: 1,053 Pioneering
    Is this only for parents or is it available to anyone? Personally I have been fighting against cumulative negligence from the hospital, Social Care and GP's for years and found that even the complaints procedures don't work and also that, in this area, the MP isn't interested either. Having complaints ignored and even refused is very depressing.

    TK
    "I'm on the wrong side of heaven and the righteous side of hell" - from Wrong side of heaven by Five Finger Death Punch.
  • davetdavet Member Posts: 69 Courageous
    I could go on for hours about medical negligence, not only have I suffered this myself, but have seen it happen to two important people in my life, a good friend who lost his life on the operating table, and my mother who before she died suffered from dementia she suffered a fall in the care home and hurt her hip, she was taken to the local A&E where she was diagnosed with heavy bruising a few days later a senior care nurse said she wasnt happy with the way my mother was in constant pain and took her back, this time she was kept in and underwent a full hip replacement shortly afterwards, my disability is being post stroke, I could have avoided my disabling stroke if the A&E had diagnosed my first one correctly and not said I had a chest infection, what disgusts me is how easy it is for NHS trusts to simply get away with it even the law prevents you from suing them unless you do it within 3 years, a lot of negligence incidents are also simply recorded by them as non events, filed away and forgotten
  • April2018momApril2018mom Member - under moderation Posts: 2,772 Disability Gamechanger
    Sorry for not responding. Since birth, my son has had serious bowel and bladder issues. Recently he was in the hospital for a UTI and the doctor refused to prescribe medicine. So I contacted PALS for advice and support regarding him. Doctors don’t know everything. 
  • dolfrogdolfrog Member Posts: 371 Pioneering
    davet said:
    I could go on for hours about medical negligence, not only have I suffered this myself, but have seen it happen to two important people in my life, a good friend who lost his life on the operating table, and my mother who before she died suffered from dementia she suffered a fall in the care home and hurt her hip, she was taken to the local A&E where she was diagnosed with heavy bruising a few days later a senior care nurse said she wasnt happy with the way my mother was in constant pain and took her back, this time she was kept in and underwent a full hip replacement shortly afterwards, my disability is being post stroke, I could have avoided my disabling stroke if the A&E had diagnosed my first one correctly and not said I had a chest infection, what disgusts me is how easy it is for NHS trusts to simply get away with it even the law prevents you from suing them unless you do it within 3 years, a lot of negligence incidents are also simply recorded by them as non events, filed away and forgotten
    Hi @davet

    Both dementia and stroke can be a way of acquiring a wide range of sensory and motor information processing disorders. There are various types of dementia whichc can from the age of 30 plus can cause what are described a "Progressive" disabilities, and Stroke causes the equivalent "Acute" types of the came disabilities- Aphasia is a prime example. Aphasia is an acquired version of my type of genetic  (life long) disability Auditory Processing Disorder (APD) (the brain having problems processing what the ears hear, there are 4 different types of APD)
    There was some research done in the UK some years ago regarding these issues, but the clinical professionals did not want  to learn about these issues and be retrained, there is also the marketing of various so called intervention programs which actually provide no benefit at all. So it is all about hiding their ignorance, selling their products and services, and massaging their egos. 
    If you would like to have a look at any of my related research paper compilations just ask.

    I hope things get better for you.
  • KIDNEY444KIDNEY444 Member Posts: 1 Listener
    Hi, My son became very poorly 4 years ago. We have seen 3 GP's , we went to A&E at two hospital begging for blood tests and urine test to be done. Oskar was 4 at the time. He could not walk, he was complaining that he could not breath properly... He didnt eat for a few days. He could not see properly.None of the tests has been done. All GPs stated it is a virus. 
    We did go to  another city then to A&E in another clinical hospital.... After few minutes at A&E GP stated Oskar's condition was alarming. Simple blood test shown he had lots of toxins in the blood. We were told, 2 more days...he would not been with us. His blood pressure was 245... there was a suggestion his brain and heart could be damaged by the toxins as his kidneys failed. They have done a lot of checks on Oskars heart which thanks God the heart was fine. I luckily was able to donate my kidney after a year of dialysing him at home. Shocking...I nearly lost my child. I put a complain...to Obmudsman,,,everything has been swiped under the carpet... how shocking...
    Since the transplant now...I started to notice Oskar does not communicate as he should. There were also lots of anxiety involved. Started to have lots of tics and started to talk less. 
    I was raising an issue with doctors, who finally referred us to neurologist. For a full last year none of neurology tests have been done, Dr stated thats the tics and we can treat it with medications. I did not agree, asked for brain MRI which was refused. As my son's hand started shake going along with tics and his behaviour was alarming for me, he started to talk about death and heaven.... I decided to see specialist privately. We were  also referred to Cahms, who stated...there is a one year awaiting list....to get assess.

    I could not wait anymore, went o Poland, seen private specialist. My son is diagnosed with: autism, learning disability, anxiety, tics, depression, sesnory disorder and all psychological test indicate there is an organic damage on the brain. Psychiatric stated it is shocking , Oskar had such a high blood pressure when his kidney had failed and there was no brain MRI done to check if the brain is not damaged.

    Now I am chasing Neurology clinic to get MRI and EEG done. It has completely drained me out, I cant describe how much that country let my son and myself down. And it has happened second time ..again.... we only just recovered after transplant. I feel like  another hell is staritng. This really needs to be bring up to the public. I feel like system is very discriminatory in terms of treating people in needs. It is certainly negligience! I am not relying on NHs anymore, seeing private specialists and goiung abroad for more tests. How sad... goverment should feel ashamed really, that is the case:(
  • chiariedschiarieds Community champion Posts: 1,659 Disability Gamechanger
    edited September 2019
    Hi @KIDNEY444 Welcome to the Scope community. I'm dreadfully sorry to read about Oskar & yourself. Are there any questions you would like to ask this community regarding your current situation? If you would just like to chat, that's fine too.
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