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Brother's home to be 'de-regulated'

FallonFallon Posts: 3Member Listener
My brother Mark has Special Needs and lives in 'the community'. I was told yesterday that the Local Authorities are looking to change his tenancy agreement and that his home us to be 'de-regulated'. I was also told that in doing this his support hours would be reduced by 10 hours per week. This might seem like nothing but it means he will be unsupported when he desperately needs it.
Mark not only has brain tumours, seizures along with his diagnosis of Autism, Bells Palsy and diabetes but chronic disability walking abilities.
I have been told I have 2 choices; keep the 'regulated' tenancy as it is but with a threat he will be moved after 18 years into a non-communal larger home or agree to the new terms of 'de-regulation... under a Court of Protection Order.
Has anyone had any experience of this please? 


  • Chloe_ScopeChloe_Scope Posts: 5,841Administrator Scope community team
    Hi @Fallon and welcome to the community!

    I'm so sorry this post has been missed. I really would advise getting some specialist advice on this. 

    Here's an article from Citizen's Advice about discrimination within housing, and you can contact them here.

    Please do let us know how you get on.
    Online Community Officer
  • Sam_ScopeSam_Scope Posts: 7,732Administrator Scope community team
    HI @Fallon 
    Welcome to the community, I am sorry to hear about your brother, this must be so distressing to you all. I don't have any experience of this, I hope someone will be able to share their experiences soon.

    Have you asked anywhere else about this? Perhaps the CItizens Advice or Shelter?
    Senior online community officer
  • FallonFallon Posts: 3Member Listener
    Thank you both so much for replying. I've only just got off the phone from a call from the Health Authority who want to meet with me to discuss thus asap.
    I'm to speak to the care home director tomorrow as it's all very confusing as trust isn't something I feel very comfortable with when it comes to something so important and out of the blue.
    It is distressing terribly as I hold my brothers care in my hands in a tumble dryer of papers
    I will keep you posted though thank you again ... think this is going to be quite significant for our families and loved onesxxx
  • Chloe_ScopeChloe_Scope Posts: 5,841Administrator Scope community team
    I'm glad the Health Authority are eager to meet. It sounds like you are doing a great job at managing all of this and it's understandable that it has been so distressing.

    I really hope it goes well with the care home director tomorrow and we are always here if you need anything.
    Online Community Officer
  • FallonFallon Posts: 3Member Listener
    Oh .... thank you Chloe; it's always a minefield out there xxx
  • jajajaja Posts: 74Member Pioneering
    Hello @Fallon

    This must be so difficult. It is good they want to meet. I just wanted to say that they must give you time to consider your options and access professional advice. I'm afraid I can't help you further but didn't want you to be pushed into a corner. Take the time you need to consider your options.

    I hope it all goes well.

  • atlas46atlas46 Posts: 827Community champion Pioneering
    Hi @Fallon

    Have you got Enduring Power of Attorney on behalf of your brother’s health and care?

    You need to seek the assistance of an expert family law specialist, they usually provide a free consultation, in the first instance.

    Also, has your brother got a named social worker and/or advocate?

    Have a look at the Court of Protection web site, they deal with specific issues, like yours.

    They consider the “best interests” of your brother’s needs and not what the local authority thinks.

    Keep us informed.
  • Chloe_ScopeChloe_Scope Posts: 5,841Administrator Scope community team
    It certainly can be a minefield @Fallon, I hope the call today goes well :)
    Online Community Officer
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