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Awaiting a decision

HippychickHippychick Posts: 17Member Connected
Hi, I've been waiting for a decision on my PIP assessment for just over 10 weeks now, is this normal? The waiting is making my already high anxiety levels skyrocket, and I just feel I have nowhere to turn to 😩 

Replies

  • poppy123456poppy123456 Posts: 13,541Community champion Disability Gamechanger
    Hi,

    There's no timescales to any decisions. Backlogs is just part of the reason a decision can be delayed. If the report was sent to audit the decision can be delayed further.

    Have you requested a copy of the assessment report to be sent to you? This can give you some idea what the decision is likely to be because they mostly go with the report. To receive a copy of this ring DWP.
  • thespicemanthespiceman Posts: 4,804Community champion Disability Gamechanger
    Hello @Hippychick   Pleased to meet you welcome.

    Thank you for joining and sharing.

    Please may I suggest you contact PIP helpline.

    0800 121 4433

    I am one of the team of community champions. We guide, advise and help new members who join the community.

    Please can I ask if you not receiving any support with your mental health.

    Please consider thinking about any support.

    Finding ways to cope.  I do know it is never easy to deal with at this time.

    You could contact your Doctor explain how you are.

    I would look at mental health charities.

    Used this one last time. Can help with support, advice and guidance on your mental health.

    https://www.richmondfellowship.org.uk.

    Please if this helps . Contac them.  They might not be in all areas but just a thought.

    Please if I can help with anything further. Please get in touch.

    Only too happy to be supportive.

    Please take care.

    @thespiceman
  • HippychickHippychick Posts: 17Member Connected
    Oh and the only support I receive is general counselling x
  • worried33worried33 Posts: 293Member Pioneering
    I personally think 10 is excessive, 4-6 weeks is what DWP quote when they get your report.  If I was 10 weeks after report received, I would be onto my MP to push it along.

    They dont have a time limit but there is such a thing as reasonable time frames.

    Give them a ring and see what they advise, sometimes its been known that people ringing whilst waiting a long time can suddenly get bumped to a DM's desk quickly after that.
  • cristobalcristobal Posts: 689Member Pioneering
    @worried33 - you're right...10 weeks is a long time to wait. They may well be short-handed, particularly with it being school holidays, and doing as best they can...

    If they have to start answering letters from MPs that may make things worse surely? 


  • HippychickHippychick Posts: 17Member Connected
    Thanks, I’m gonna try calling them today and see what they say, obviously if they are their usual ‘helpful’ ?!? selves 🙄 then I’ll have to take it further. It’s just stressful every morning when the post arrives with no letters 🤯 xx
  • Chloe_ScopeChloe_Scope Posts: 4,668Administrator Scope community team
    Welcome to the community @Hippychick! I hope the call today went okay and that you aren't waiting much longer!
    Chloe
    Online Community Officer
  • worried33worried33 Posts: 293Member Pioneering
    cristobal said:
    @worried33 - you're right...10 weeks is a long time to wait. They may well be short-handed, particularly with it being school holidays, and doing as best they can...

    If they have to start answering letters from MPs that may make things worse surely? 


    Its probably isnt DM's responding to MP's so I doubt that affects waiting times, but of course if someone gets bumped following intervention from a MP, then someone else waits longer for been pushed out of the way.

    10 weeks is long enough tho that it may not be down to simply them "been busy" but something may have gone wrong and I think its worth trying to find out.
  • cristobalcristobal Posts: 689Member Pioneering
    @worried33 - you may be right ...I think they have a separate bit to respond to MPs letters...


  • worried33worried33 Posts: 293Member Pioneering
    I did suggest to ring themselves first, as an MP shouldnt be the first thing to do, thats more of a last resort.
  • cristobalcristobal Posts: 689Member Pioneering
    @worried33 I agree.

    When I last worked I dealt with a lot of letters from MPs - those that fell into the "can you hurry it up bit?" category generally went to the bottom of the 'In-tray' as I had better things to be getting on with. It took DWP nearly eight weeks to reply to a letter from my MP so they may have a similar system!!
  • worried33worried33 Posts: 293Member Pioneering
    edited August 28
    My experience has been much better, you may remember my posts on here in Jan 2019 regarding the backdated EDP payments, the DWP was misleading me on what was going on, and when my MP got involved I was put in a high priority pile and dealt with far quicker.  But to point out the MP was used only after I had already called the DWP several times and did an official complaint myself.

    I have also had previous incidents before that when MP intervention has had positive results.  I dont like using my MP but sadly it is needed sometimes.

    My MP told me there is a special department within the DWP that handles their calls (and I assume letters), they dont ring the normal hotline.
  • cristobalcristobal Posts: 689Member Pioneering
    @worried33 - sorry I have just realised I have been talking rubbish! And it's too late to edit it!

    My MP wrote to Capita - not DWP...
  • worried33worried33 Posts: 293Member Pioneering
    yeah that makes sense, they a private company so would likely react different to a government department.
  • ilovecatsilovecats Posts: 962Member Pioneering
    cristobal said:
    @worried33 I agree.

    When I last worked I dealt with a lot of letters from MPs - those that fell into the "can you hurry it up bit?" category generally went to the bottom of the 'In-tray' as I had better things to be getting on with. It took DWP nearly eight weeks to reply to a letter from my MP so they may have a similar system!!
    I’d agree with this.

    I have seen a lot of letters / emails from claimants to MP’s and normally they seem to just be forward to a special DWP email reserved for this sort of this. Nothing seems to be do any quicker?
  • HippychickHippychick Posts: 17Member Connected
    Hi, I managed to get in touch finally, they told me that the reason for the long wait was because they contacted the assessors a couple of times to ask for clarification on a few points of the original assessment, but that I should ring them back tomorrow to ask for more information from the case manager. So right now I’m trying to second guess if that’s a good or bad sign!!! Xx
  • worried33worried33 Posts: 293Member Pioneering
    I will speculate they are considering giving you more points than the AP recommended.  So a good sign.
  • HippychickHippychick Posts: 17Member Connected
    Hiya, well I’ve just got off the phone to PIP, and I cannot believe this- apparently the report has been going back and forth, clarifying different points, for the now 11 weeks since my assessment, and they only received the final clarification on 27th of August, so I asked the advisor if I would be getting my decision back in the next week or so, just to be told that I would have to wait a further (up to) 6 weeks to get it!!! So she then told me I’d get it backdated, but of course I won’t because I’m still getting paid my lowest rate DLA. So I’m feeling all the more anxious now!! X
  • poppy123456poppy123456 Posts: 13,541Community champion Disability Gamechanger
    I'm sorry it's taking so long but in my opinion it's better this way, at least the decision maker has noticed things may not be correct in the report. I know i'd prefer that than have a report full of lies and contradictions.

    You still can't speculate at this point what the decision maybe but if you live in the UK you can request a copy of the report to be sent to you, this will give you some idea what the decision is likely to be because they mostly go with the report.
  • HippychickHippychick Posts: 17Member Connected
    Thank you Poppy123456, I do know what you mean, but my mind cannot stop with the constant conjecture, I keep surmising-‘for these reasons I may get it, for other reasons I won’t’!! It feels as though my brain is having a particularly spectacular argument with itself!! I can’t believe that they are treating people in this manner, well actually I can because there are so many good people out there who are going through hell because they are either having to wait, or being turned down and are having to suffer through the rigmarole of appealing!! Xx
  • worried33worried33 Posts: 293Member Pioneering
    So just to clarify, you have waited 10 weeks (now 11), the reason is because they keep sending the report back for clarification, and now it is apparently up to the required standard you are back at the bottom of the pile for another estimated 6 week wait?
  • HippychickHippychick Posts: 17Member Connected
    Worried33, yep, that’s exactly it. All these weeks I’ve been going through anxiety, depression, my bipolar has been more up and down than usual despite going onto an additional anti anxiety med, and now they’re making me wait for another possible 6 weeks 🤯 xx
  • worried33worried33 Posts: 293Member Pioneering
    ilovecats said:
    cristobal said:
    @worried33 I agree.

    When I last worked I dealt with a lot of letters from MPs - those that fell into the "can you hurry it up bit?" category generally went to the bottom of the 'In-tray' as I had better things to be getting on with. It took DWP nearly eight weeks to reply to a letter from my MP so they may have a similar system!!
    I’d agree with this.

    I have seen a lot of letters / emails from claimants to MP’s and normally they seem to just be forward to a special DWP email reserved for this sort of this. Nothing seems to be do any quicker?
    Its quicker.  On rightsnet e.g. its was revealed on the EDP back payments, there was a special priority queue for people considered vulnerable, and both rightsnet advisors and MPs had access to add people to this priority queue.  I was even added to this queue after I contacted my MP.

    Of course nothing is 100%, I am not saying every single time someone contacts a MP things are going to move quicker, it will depend on the MP, as some are not sympathetic, and it will also depend on the circumstances, I think someone going to their MP when they have been waiting a few days vs someone waiting for 3 months is not going to get the same result.  Also if you write to your MP it may take a couple of weeks to even get anything actioned, whilst going into the MP surgery for a face to face has a chance they will ring the DWP the same day.

    It is a bit like if you contact the CEO of a company, 90% of the time they will do something that your typical customer support person cannot do, as the low level staff dont have the power to do what the CEO (and the CEO's team) can do.

    There is evidence all over the net MPs can get very productive results and I have my own first hand experience as well.  I can understand trying to discourage people from using their MPs tho as what we dont want is every single person going to their MP and just flooding that support channel, but at the same time I dont think its a channel that people should be told to never use, as a citizen its a channel people have the right to use.

    In the old days of housing benefit when it was routine to be waiting 6-12 months for money, I would routinely wait 2 months, then contact my MP who would make it all happen within a week.  Everything has a priority system.
  • poppy123456poppy123456 Posts: 13,541Community champion Disability Gamechanger
    I agree that local MPs can be helpful depending on the situation. When i first applied for SDP in 2013 (before the time you could apply over the phone) i returned 3 forms back to DWP and every time they kept telling me they weren't received. This carried on for almost 2 months and they already owed me 11 months backdated money.

    I contacted my local MP and less than 24 hours later i had a phone call from DWP asking me a few very quick questions and was told over the phone the SDP was awarded. 4 days later i had a large sum of money into my bank.
  • HippychickHippychick Posts: 17Member Connected
    Thanks guys  🙏🏻 I’m gonna give it another few days, then go to my gp first, see if she can buck things up, I’m sure she will try at least. Then if I still hear nothing (very likely) I will contact my local mp, although he’s a bit of an idiot, but maybe he can do something!! But Poppy123456, that’s brilliant that you got sorted, it’s just so stressful and annoying that you have to put a rocket up the bottom of the dwp decision maker to get anything done!! Xx
  • poppy123456poppy123456 Posts: 13,541Community champion Disability Gamechanger
    In your case i'm really not sure what your local MP can do. Yes, i completely agree it's very stressful and stress does make our conditions much worse but the report was returned a few times because there was obviously errors that the DM picked up on. If they weren't noticed the report could have been full on contradictions etc. I'm not saying you'll be awarded because no one can speculate that but of course it's possible.

    Timescales are just a guide and nothing more, backlogs are just part of the reason a decision can be delayed. The only thing i can advise you to do at this point is request a copy of the report, as previously advised.

    Of course see your GP too who maybe able to help with your anxiety.
  • worried33worried33 Posts: 293Member Pioneering
    edited August 30
    Hippychick said:
    Worried33, yep, that’s exactly it. All these weeks I’ve been going through anxiety, depression, my bipolar has been more up and down than usual despite going onto an additional anti anxiety med, and now they’re making me wait for another possible 6 weeks 🤯 xx
    I would give your MP a shot, as personally I think you been expected to wait 6 weeks at this stage when the report is ready to be looked at is nonsense, you should be at the top of the pile.  If you can manage it visit the MP surgery or ring them rather than a letter or the "theyworkforyou" website, as it will be quicker.
  • HippychickHippychick Posts: 17Member Connected
    Thanks so much, I’ll give it till Monday, and if nothing arrives then I’ll be straight onto my MP, I’m going to look up his contact details now so that I’ll be ready to contact him as soon as the post arrives! And the only reason I haven’t requested a copy of the report thus far is because I know I’ll end up catastrophising about it at this stage. Obviously if I get turned down or get less money than I’m on now, then I will require a copy to use in the appeals process xx
  • thespicemanthespiceman Posts: 4,804Community champion Disability Gamechanger
    edited August 30
    Hello @Hippychick   Please can I make a suggestion . If your mental health is causing concern.

    Then I would advise speak to your GP or just if I can please contact the links I provided for you in previous posts.

    This one https://www.richmondfellowship.org.uk.

    I suggested this because they are not only there to maintain and look at your wellbeing.

    Also can intervene in situations you are going through right now .  Be supportive can offer a lot of guidance.

    Do and can be beneficial at times like this.

    I also if I can add if you have contacted them and they are not in your area I am sorry.

    I would still speak to your GP for referring you to some one who can help and advise your mental health wellbeing.

    No one wants to admit there having problems or issues but there is help and support out there.

    Look on line to see what there is.  In your area.  MIND might be answer.  

    If you experiencing difficulties or coping day to day.  This is a stressful experience you are going through.

    I do understand the situation with the benefits as I have being doing this a long time.

    All I know glad of support from those who helped me whether in mental health charities or my support team I have had.  Especially assessments, form filling in and signposting to those who can be supportive.

    With the floating support in attendance.

    Please can I ask do you have a support team. If you do they should be advising you, be supportive, helping you as they should with this situation.

    That is there role.  I do understand with anxiety sometimes asking for some support.  I have been their still am.  Please write down what you need to say.

    If you have a support team please need this . Please can you help.

    I know it is difficult. They should be aware of your situation.

    Some one to talk to help me with forms and anything else I can do with.

    If there not willing then you have to be strong and have courage ask why not.  Even make a complaint. I had to several times no one wishes to but if the care and support team not being there to give you some guidance.

    If it is not working for you. You have to make that choice find some organisations who will.

    I had to many times.

    I wish you well.

    Take care.

    @thespiceman








  • Chloe_ScopeChloe_Scope Posts: 4,668Administrator Scope community team
    Hi @Hippychick, I'll keep my fingers crossed for you! I can't imagine how frustrating it has been to wait so long, but like people have said, it's better to have an accurate report!
    Chloe
    Online Community Officer
  • HippychickHippychick Posts: 17Member Connected
    Thank you Chloe_Scope, and I’ve just rang them- I’ve been awarded standard daily living PIP, but not mobility. So can I still challenge the decision? Xx
  • poppy123456poppy123456 Posts: 13,541Community champion Disability Gamechanger
    Thank you Chloe_Scope, and I’ve just rang them- I’ve been awarded standard daily living PIP, but not mobility. So can I still challenge the decision? Xx
    Yes, you can request the MR within 1 month of the date of the decision but do be aware they look at the whole decision again and not just part of it.
  • WF2kWF2k Posts: 561Member Pioneering
    edited September 5
    @Hippychick I've been waiting 19 weeks, the report was full of discrepancies, I didn't think the DM would dispute anything because of the amount of people that say the DM usually goes with the assessor however.. when my Son called on Monday to see what was happening he was told that the DM is disputing something in the report and has asked my GP twice for further info and my GP has yet to get back to him, hence me waiting for so long, so I've ended up contacting the practice manager about it who has said another person is looking into it.

    Yes you can do an MR if you are not happy with the decision. 
  • HippychickHippychick Posts: 17Member Connected
    @poppy123456 does that mean I might lose my daily living award? 🙁 xx
  • HippychickHippychick Posts: 17Member Connected
    @WF2k that’s awful for you l!!! The waiting is awful I know!!! Sorry if I sound daft, but what does DM stand for? X
  • poppy123456poppy123456 Posts: 13,541Community champion Disability Gamechanger
    @poppy123456 does that mean I might lose my daily living award? 🙁 xx
      MR decisions can either remove the award completely, award more points for a higher award or remain the same, most remain the same but no one can tell you for sure what might happen because no one knows how your conditions affect you on a forum.

    DM = decision maker.
  • HippychickHippychick Posts: 17Member Connected
    @poppy123456 thanks, and  I’ll have to think about it for a day or two, thank you guys for all your help, I’ll let you know what happens xx
  • worried33worried33 Posts: 293Member Pioneering
    Thank you Chloe_Scope, and I’ve just rang them- I’ve been awarded standard daily living PIP, but not mobility. So can I still challenge the decision? Xx
    Yeah I suspected you werent actually put to the bottom as that would have been nonsense.  I guess the guy on the phone who told you that was just quoting you a worst case scenario.
  • HippychickHippychick Posts: 17Member Connected
    OMG I have just received my letter from DWP confirming the amount of pip I can get, and there’s a copy of the report, and it’s packed with lies!!!!! So many things that I told the nasty little beast and she’s reported that I gave different answers than I did!!! I can’t believe it, I’m shaking with anger at the moment!!! 
  • poppy123456poppy123456 Posts: 13,541Community champion Disability Gamechanger
    If you do decide to request the MR then you'll need to put this in writing within 1 month of the date of the decision.

     You need to concentrate on where you think you should have score those points and your reasons why. Adding 2/3 examples of what happened the last time you attempted that activity for each descriptor that applies to you.

    Despite the lies/contradictions in the report you should avoid mentioning those in the MR request, DWP/Tribunal won't be interested in any of those. Any complaints should be made to the health assessment providers.

    Most MR decisions remain the same so you'll very likely have to take it to Tribunal. Good luck.

  • HippychickHippychick Posts: 17Member Connected
    Thank you @poppy123456, looking at the reports on both parts of the assessment report, the assessor has completely contradicted herself on a couple of points saying I couldn’t do the activity on the daily living part, then saying I COULD do something similar on the mobility part. Plus my crippling anxiety wasn’t even mentioned!! I can’t understand how the DM didn’t pick up on these points!!! I’m going to make an appointment with my gp on Monday and see if she can write me a letter outlining my conditions that I can send as evidence with my letter for MR xx
  • HippychickHippychick Posts: 17Member Connected
    Oh and she also lied about giving me a musculoskeletal examination, which certainly didn’t happen!!! I’m almost wondering if they got the reports mixed up, as she’s basically made out that I have the fitness level of Hussain Bolt!!!
  • kezhendo73kezhendo73 Posts: 31Member Courageous
    This was just how mine was to but to be honest I got no where with my M R  fast forward 12 months and I have had my tribunal and I won so please carry it through it gets you down and there will be times when you just want to give up.
      But please stay with it it's well worth it in the end.
  • HippychickHippychick Posts: 17Member Connected
    @kezhendo73 thanks, I just couldn’t believe I was reading it, and of course it’s caused me so much hassle and stress, so I can imagine that you’ve had all that too. I’ll try to stay with it, and thanks, I’m glad you won your appeal, well done 👍🏻 It’s just criminal what they are doing, the lies etc. Horrible nasty people, so it’s always good to hear that people have been validated x btw, did you have to go a long time without your pip whilst awaiting appeal, if you don’t mind me asking x
  • kezhendo73kezhendo73 Posts: 31Member Courageous
    Hiya @Hippychick ;
    It's disgusting what they are doing and they are getting away with it.
      This is why I decided to fight it, the lies which had been written were unbelievable and my husband even said it's like the papers have been mixed up and it had been written about someone else.

    My pip was stopped on the 9/08/18 and my appeal date was the 27/08/19.
    What i would say is keep a diary i did and i sent it off a few weeks before i got my date.
    But please get a copy because i sent mine and they sent it back but to another person and I how to contact them again and explain what mistake they have made so they then sent another one out to me.
    I also took another one with me to the appeal which I'm so glad i did because the appeal board hadn't seen it before...

  • kezhendo73kezhendo73 Posts: 31Member Courageous
    # then had to contact them again 😵
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