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Ireana123
Ireana123 Community member Posts: 6 Connected
Hi all, I’m just trying to figure out how the website works. In the meantime I would like to introduce myself, My name is ireana and i care care for my brain injured husband for seven years now. I have not been able to return to work and I have moved country for the care of my husband, I am from Gibraltar where we do not have specialised neurological care, my husband is from Sheffield and we lived in Gibraltar with our three daughters until he suffered a very severe brain injury. 
I decided to get him back yo U.K. for specialised care here and with that me and my daughters moved over. We have had to move a few times from Leicester to London to Kent always looking for the best possible care for him. It has been seven years and I feel very alone and isolated and sometimes think of it was the right move, I have always had his best interest at heart and my daughters have had to adapt to life in U.K.  
my eldest daughter has ASD and ADHD she is 17 now and hard work! 
Just a small introduction as it is a very long story. 
I just want to support/ listen to other members here. 

Comments

  • Connie00
    Connie00 Community member Posts: 252 Pioneering

    Hello @Ireana123          

    My Name is Connie00

    I am one off the community Champion’s here at Scope.  it’s really nice to meet you.

    A very warm welcome to the Community. I trust you are having a good day today

    Here at scope we welcome people from all walks of life, please feel free to have a look around our online community, and join in, we welcome new blood and would welcome your opinion. It would be nice to know what led you into our online community.

    I was very intrigued with your post thank you very much for taking the time to introduce yourself, I know from experience what difficulties you would face with brain injuries, we do have very good Neurologist here we are very lucky. I have empathy for you having to uproot the family I do think you have made the right decision, we are for my Nephew who has a brain injury, I also have a functional Neurological disorder so we are no strangers to neurologists. 

    The Brain is the most vital part of the human body. it's the one organ that can't be fixed. also very sorry to know that your daughter has ASD and ADHD again you are in the right country for support, i'm sure that with a good introduction that you made other members of the community will reach out to you. 

    if we can be of any assistance to you please don’t hesitate to contact us,

    Enjoy the rest of your evening 

    @connie00   :) 


  • thespiceman
    thespiceman Community member Posts: 6,388 Disability Gamechanger
    Hello @Ireana123   Pleased to meet you welcome.

    Thank you for joining and sharing.

    I am one of the team of community champions. We guide, advise and help members who join the community.

    Please if we can help with anything please ask. Some one will know. A member of our community or a member of our team.

    Happy to be supportive. Keep in touch.

    Take care.

    @thespiceman
    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • Ireana123
    Ireana123 Community member Posts: 6 Connected
    @Connie00 and @thespiceman, thank you so much, I feel welcome already ?
  • Adrian_Scope
    Adrian_Scope Posts: 10,821 Scope online community team
    Welcome to the community @Ireana123. If there's anything you need, or any advice we can offer, please don't hesitate to ask. In the meantime, we have a great and supportive community here, so I hope you'll stick around and get involved in our discussions.
    Community Manager
    Scope
  • Ireana123
    Ireana123 Community member Posts: 6 Connected
    Hi, thank you all for your warm welcome. 
    I was wondering if there are any organisations that organise days out for disabled people and their families?
  • Ails
    Ails Community member Posts: 2,256 Disability Gamechanger
    Hi @ Ireana123 and welcome to the Community.  It is lovely to meet you and thank you for sharing your story with us.  That is such a brave step you have taken leaving Gibralter for the UK to get the best medical support for your husband.  I am sorry to hear about your family's health and hope you will receive the best support here for them.  You may find these websites helpful for some support,
    https://www.headway.org.uk/

    https://www.autism.org.uk/?gclid=EAIaIQobChMIn7Kjnenu5AIVBEPTCh1_eg3eEAAYASAAEgIHrvD_BwE

    https://www.adhdfoundation.org.uk/

    Also you will find the Community to be very supportive and am sure you will see that there are some members on here who can relate to your experiences and will be happy to chat to you.  Please feel free to look around the website and join in any discussions.  Everyone is very friendly on here and I am sure you will meet some new friends too.  Let us know how you are getting on and I wish you and your family all the very best.  If there is anything else we can help you with then please don't hesitate to ask.   :)



    Winner of the Scope New Volunteer Award 2019.   :)
  • steve51
    steve51 Community member Posts: 7,153 Disability Gamechanger
    Hi @Ireana123

    Good Evening & Welcome it’s great to meet you.

    I am also a Community Champion here at Scope.

    I had my B/I in 1996 & 32rs of age.

    Yes I found “Headway” myself & I have never “looked back”

    Please please let me know if you need any help in getting more info for them in your local area????

    @steve51
  • emmarenshaw
    emmarenshaw Community member Posts: 710 Pioneering
    Hello @Ireana123 I’m Emma, one of the Community Champions who are here to help and advise. A warm welcome to the community. That must have been an awful lot for you to deal with. Know that the community and Scope team are here to support you if or when you should need us. 

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