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Project Twenty21

Parrot123Parrot123 Posts: 5Member Listener
Hiya. My name is Will. I have battled Hodgkin lymphoma stage 4 using cbd oil. Can anyone tell me how I can get on this trial. As they have now found a lump in my Kidney. Any information at all wud b very much appreciated. GB Will xx

Replies

  • chiariedschiarieds Posts: 666Member Pioneering
    Hi @Parrot123  & welcome to this community. I've been trying to look into this for you. Project Twenty21 seems to be saying, from what I can find, that they'll enrol 20,000 patients by the end of 2021 (hence the name) but focusing on just 7 disorders. See: https://drugscience.org.uk/project-twenty21/
    I've also been using CBD to help with my disorders, & researched about 18 months ago before trying it. I found that (mainly USA) studies were suggesting that CBD could be just as effective as medicinal cannabis for some disorders. Might I ask where you get your CBD from? I may be able to help you further with this, & will get back to you later.

  • Parrot123Parrot123 Posts: 5Member Listener
    Thanks very much 😊. I get my oil wherever I can. Will xx
  • chiariedschiarieds Posts: 666Member Pioneering
    Hi @Parrot123 - Thank you for replying, Will.

    May I recommend this facebook page, 'Simply CBD Users Support:' https://www.facebook.com/groups/SimplyCBD/

    The information I learnt there really helped me to try CBD; how to start, & build up gradually to find the dosage that might help. They also correctly stress that many medications (& even over the counter ones you might buy) must be taken into consideration as to the timing of doses. This is because CBD is broken down by a complex of enzymes in the liver where over 90% of medications are also broken down. Therefore time gaps are needed (4 hours is recommended) between taking CBD & most medications, etc. to ensure you get the benefit of prescribed medications (& not an accidental overdose).

    Anyone taking CBD should really discuss this with their prescribing Dr, or a pharmacist. I discussed this with our GP's surgery pharmacist by telephone. If you feel uncomfortable with asking them, just go into your high street chemists, & ask to speak to their pharmacist. Ask if your medication, or any over the counter meds, or supplements you take, are adversely affected by the liver's cytochrome P450 complex (the liver enzymes I've mentioned above).

    I buy online from Simply CBD: https://www.simply-cbd.co.uk/ .....very reasonably priced & lab certified. The above facebook page will be able to say which of Simply's oils may be of a similar strength to what you're already taking, & suggest if you might benefit from going to a stronger oil if ever needed.

    I also vape CBD e-liquids from https://littlehempshop.co.uk. As these obviously do not go through your digestive system, they may help those who want to try CBD, but struggle due to taking medications needing a gap between taking these & CBD. They also sell hempy tea which again you can have any time.

    I hope some of this may help as far as CBD goes. Any other questions, please say.




  • Parrot123Parrot123 Posts: 5Member Listener
    Thanks you so much . I had Hodgkin lymphoma stage 4 so I need high levels of THC low levels of cbd. As. I was a nurse. Hodgkin lymphoma can come back usually in the first 5yeats. Got Hospital on Friday as they have now found a lump on my. Kidney. . Thanks so much for replying Will xx
  • chiariedschiarieds Posts: 666Member Pioneering
    Hi Will, Sorry I was unable to help you. The only other thing I can think of is the Realm of Caring. This is USA-based, but will answer questions from anywhere; I have emailed them myself. They have done a lot of research on CBD.
    You are supposed to register first, which I had difficulty with twice. However from their home page, click to accept cookies at the bottom, then you'll see a 'Support' button, which if again you click on, this opens up a box where you can email them with your diagnosis & any current medications asking for cbd advice. You'll get an automated message, but they then usually get back to you in 2 working days. They'll recommend American cbd. The facebook page people I've mentioned will then convert that to one of Simply CBD's equivalents. Unfortunately they cannot recommend anything with high levels of THC or the site would be shut down. I do know several people facing diagnoses such as yourself are usually recommended to build up as quickly as they can to the black oil: https://www.simply-cbd.co.uk/product/simply-cbd-black-1000-10ml-30ml-50ml/. I've just searched the facebook page's for Hodgkin's lymphoma & this is what they would still advise.
    However, if you're able to source CBD with THC, I do understand you may not wish to try the above, but it does seem to have helped many otherwise I would not have said.
    Do keep having a look around here, & let us all know how you get on with your hospital appointment on Friday. Btw I was a physio, so it's very good to 'meet' you. :)

  • Parrot123Parrot123 Posts: 5Member Listener
    Awww Thank you 😊 that is lovely Will xx
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