Any morphea sufferers who have heard of systemic scleroderma?

Chutchy_50

I suffer from obstructive sleep apnea, spinal cord bleed, morphea and Achilles tendonitis. Married 29 yrs and 3 grown up kids.

I’m on here looking for fellow sufferers, my main concern at the moment is if there are any morphea sufferers who have heard of systemic scleroderma.

chiarieds

Hi @Chutchy_50 - Welcome to the community. Thank you for joining & saying a little about yourself. I don't suffer your disorders, but have tried to look into it. My limited understanding is that morphea is more a localized scleroderma 'just' affecting the skin.

I'm hoping the following may be helpful, but if you're already under a scleroderma specialist or dermatologist, then please be advised my them, & your GP should always be there to help & advise also. Please see:  https://www.sruk.co.uk/scleroderma/  

& from the same website: https://www.sruk.co.uk/scleroderma/what-scleroderma/scleroderma-morphea/

Ami2301

Hi @Chutchy_50 and welcome to the community! I am aware of systemic Scleroderma, I have Raynaud's disease and I know they can be linked to one another. How are you doing today?

Chloe_Scope

Hi @Chutchy_50 and welcome to the community! How are you today?

Chutchy_50

Hi, sorry for late reply. Today is a good day not a great day but okily as I call it, my sleep apnea is still trying to control me, add morphea and a spinal bleed it gets you down hence anxiety and depression ?. I joined this group to find fellow sufferers of some of my conditions, I've yet to find a twin.

Chloe_Scope

Hi @Chutchy_50, great to have you here.

I'm glad today has been okay, it sounds like you have a lot going on at the moment. Please do have a look around and feel free to get involved with discussions.

If you want something more laid back then the coffee lounge is always a good place to start.