Disabled Partner

SimoneW

Hello. My husband has MS and has recently started using a wheelchair more regularly. We live in West Sussex and have an eight year old daughter. We’d like to meet other families like us. I don’t feel my daughter and I know anyone who can relate to the situation we’re in. Do Scope run local events for families or does anyone know of other organisations I could contact? (MS Society don’t do much in our town and I’ve ruled out Carers’ Support Network as I don’t feel I’m a carer.) I really need to talk to someone who understands and I don’t want to bother friends and family.

steve51

Hi @SimoneW

Welcome to our online community/family.

I am one off a number off Community Champion’s here at Scope.

Can you please phone our helpline: 0808 800 3333.

They are there 8am - 8pm Mon-Friday. 
10am-6pm Sat-Sunday.

Please please come back to me if you experience any problems ????

@steve15

chiarieds

Hi @SimoneW - Welcome to the community & thank you for joining.

I wonder if the Multiple Sclerosis Trust may be helpful. See: https://www.mstrust.org.uk/ 

or the National Multiple Sclerosis Society: https://www.nationalmssociety.org/

In Southwick there's a MS Centre. See: https://mssussex.com/services/social-activities/     this info was from MS-UK : https://www.ms-uk.org/

I hope you might find further information from some of the above.

Chloe_Scope

Hi @SimoneW and a warm welcome to the community. Is the information above helpful at all? You are more than welcome to talk to us about anything that is concerning you or if you need to get things off your chest. We are a friendly bunch.

Han_

Hi @SimoneW. Thank you for your post. How have you been getting on?