Hi, my name is maria — Scope | Disability forum
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.
Please read our updated community house rules and community guidelines.

Hi, my name is maria

Options
mariajayne16
mariajayne16 Community member Posts: 1 Listener
in Start here and say hello!
I have a multitude of long term illness, all with lots of side effects, each one with no cure ...yet. 
Postural Orthostatic Tachycardia syndrome 
Gastroparesis 
Idiopathic intracranial hypertension 
Joint hypermobility syndrome 
Fibromyalgia 
Chronic fatigue syndrome/ME

· Share on FacebookShare on Twitter

Comments

  • chiarieds
    chiarieds Community member Posts: 16,103 Disability Gamechanger
    Options
    Hi @mariajayne16 - Welcome to the community & thank you for joining. I'm a little similar in that I have the hypermobile type of Ehlers-Danlos Syndrome + neuropathic pain (from Complex Chiari I Malformation) & orthostatic intolerance at least, or PoTS. :( If you find the cure, please share it!
    Anyway, it's good to 'meet' you, & I hope you enjoy being part of this community. :) Please have a look around, & join in any discussions. If you have any questions, do say.
    · Share on FacebookShare on Twitter
  • thespiceman
    thespiceman Community member Posts: 6,388 Disability Gamechanger
    edited January 2020
    Options
    Hello @mariajayne16   Pleased to meet you welcome.

    Thank you for joining and sharing.

    I am one of the team of community champions. We guide, advise, help members of our community.

    Please have a look around our website, we are friendly.

    Please can I advise additional support, information the following may be of interest to you.

    Organisations, connected to your illness, conditions.

    https://www.potsuk.org

    https://www.iih.org.uk.

    https://www.fmauk.org

    https://www.meassociation.org.uk.

    Please if I can help with anything further please get in touch.

    Happy to be supportive, offer compassion and empathy.

    Please enjoy your time with the community any questions please ask.

    Please take care.

    @thespiceman




    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
    · Share on FacebookShare on Twitter
  • Chloe_Scope
    Chloe_Scope Posts: 10,586 Disability Gamechanger
    Options
    Welcome to the community @mariajayne16! :)
    Scope

    · Share on FacebookShare on Twitter

Brightness

Categories

Complete our feedback form and tell us how we can make the community better.