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Hi, my name is Jennifer Hamilton and I have narcolepsy.
I have narcolepsy with cataplexy on the severe spectrum and struggle with anxiety and depression because of it. I struggle with daily living for many reasons but I feel people don't talk me seriously (apart from my consultant) as I look ok, so unless I am having a sleep attack or my cataplexy sets in people don't think there is anything wrong with me so assume things like I am being lazy ,which I am far from, I think I have OCD to an extent because I can't bare people thinking that of me. I have a 3 year old son who is amazing and so full of energy which I love but I feel so guilty sometimes that I can't do all the things with him that I wish to do. My family are amazing but still don't quite understand the impact it has on my life. My husband understands as he sees it first hand but isn't the most proactive person and can be very lazy which is the last thing we need as a family and he doesn't always help me even when he can see me struggling. I saw scope on Facebook actually and just thought I could maybe try it to see if it or someone can help. My dad has recently been diagnosed with cancer so that had made my mental health a bit worse. Thankyou in advance. Jennifer Hamilton