If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
Epilepsy
Options
woodbine
Community member Posts: 11,614 Disability Gamechanger
Hi I have now had epilepsy for 22 years following my second stroke at the age of 38, I would like to make contact with other people with Epilepsy if possible, its something I have shyed away from doing over the years.
2024 The year of the general election...the time for change is coming 💡
Comments
-
Hi there welcome to the Forum I am one of The Community Champions I hope you get the information that you need and if there’s anything that we can do please let us know many thanks Tom
<code><a href="https://twitter.com/lgbtdisability" rel="nofollow">https://twitter.com/lgbtdisability</a> <a href="https://twitter.com/tombyford" rel="nofollow">https://twitter.com/tombyford</a> <br><a href="https://www.facebook.com/tombyford" rel="nofollow">https://www.facebook.com/tombyford</a><br>
http://www.twitter.com/lgbtdisability -
Thanks Tom its not really info I need just some interaction with others with epilepsy, something I have never had sadly2024 The year of the general election...the time for change is coming 💡
-
woodbine said:Thanks Tom its not really info I need just some interaction with others with epilepsy, something I have never had sadly
<code><a href="https://twitter.com/lgbtdisability" rel="nofollow">https://twitter.com/lgbtdisability</a> <a href="https://twitter.com/tombyford" rel="nofollow">https://twitter.com/tombyford</a> <br><a href="https://www.facebook.com/tombyford" rel="nofollow">https://www.facebook.com/tombyford</a><br>
http://www.twitter.com/lgbtdisability -
Hi woodine I am 45 and have had epilepsy for 24 years. I suffered from stress and depression and I was told that was what caused it. It is now controlled by medication and doesn't really affect me that much. It took a lot of playing around with different kinds of epilepsy medication and doses by the doctors before they finally found something that worked. I haven't had any problems with my epilepsy for a few years now and apart from having to take pills everyday to control it most of the time I forget I have got it.
-
Hello @woodbine My friend this might help you.
https://www.epilepsy.org.uk.
Helpline 0800 800 5050
Please take care.
@thespiceman
Community Champion
SCOPE Volunteer Award Engaging Communities 2019
Mental Health advice, guidance and information to all members
Nutrition, Diet, Wellbeing, Addiction.
Recipes -
Hi Woodbine, i'm a carer to my wife who has severe epilepsy, her's has continued to progress over the years as it's refractory. I really hope you're able to find support on here.
Best wishes
Paul
-
Have you ever heard of the Epilepsy Society or not? https://www.epilepsy.org.uk/
-
77bp Hi Woodbine. I have had a epilepsy diagnonsis since I was 5 months old. It was not treated until after I left schooL. I was given a variety of drugs and now thankfully am drug free. It was something I did not talk about so I understand where you are coming from. There was such a stigma and no real information for people
I imagine you are retired. So am I.You can contact me if you would like to talk
i
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 103 Games lounge
- 416 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.3K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 776 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 615 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 737 Transport and travel
- 31.5K Talk about money
- 4.3K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.3K Talk about your impairment
- 1.8K Cerebral palsy
- 867 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 319 Sensory impairments
- 824 Rare, invisible, and undiagnosed conditions
Complete our feedback form and tell us how we can make the community better.