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You Don’t Look Sick: ‘I was told I was imagining my symptoms for three years’ - The Metro
Nicola Deeley, 22, Winsford, Cheshire, lives with fibrous dysplasia of the skull – a bone disorder in where scar-like tissue develops instead of normal bone.
It causes pain, misshapen bones and can lead to fractures.
The condition can occur in other parts of the body but when it is specifically in the skull, it can cause changes to the shape of the face or in some cases, hearing or vision loss.
For Nicola, it also causes chronic migraines. Research and development
associate scientist Nicola started to notice something was wrong when she was