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Has anyone tried Botox injections?

LSchroederLSchroeder Posts: 4Member Listener
edited February 27 in Disabled people
I was diagnosed in 2017 after 10 years & 12 doctors!  
Has anyone tried Botox injections?  My neurologist wants to try it.  I walk with a cane now.  I lift weights and have a personal trainer { my husband} six days a week.  I try very hard to strengthen my legs.  I would love to know if anyone has tried Botox.

Replies

  • LSchroederLSchroeder Posts: 4Member Listener
    this is LSchrroeder again.  I forgot to say that I was diagnosed with HSP
  • janer1967janer1967 Posts: 550Member Pioneering
    @LSchroeder Hello and welcome to the community, I am a community champion here at scope. I cant comment on your query as I have no experience of botox but just wanted to welcome you. I hope some of our members will be able to share their experience with you 
  • AilsAils Posts: 1,601Community champion Disability Gamechanger
    Hi @LSchroeder and welcome also to the Community from me.  It is nice to meet you.  I too haven't had any experience of botox injections so unable to comment also.  Good luck with the injections though and I hope they help!  Please let us know how you get on with them.  All the best.  :smile:
  • Chloe_ScopeChloe_Scope Posts: 7,268Administrator Scope community team
    Welcome to the community @LSchroeder! I had botox when I was younger for cerebral palsy. How have you found them?
    Community Partner

    Scope
  • LSchroederLSchroeder Posts: 4Member Listener
    Hi Chloe!
    I found a neurologist that specializes in spasisity.   I have an appointment on February 20th to have it done.  Will it help me to walk better?  I walk with a cane.  My ankles are so Spastic that I drag my feet.
    Last summer, at the pool, I developed blisters on the tops of my toes.
  • Chloe_ScopeChloe_Scope Posts: 7,268Administrator Scope community team
    Hi @LSchroeder, how was the appointment?

    If botox are done inline with physio you will get the most benefits. The amount of success is different between each person and will depend on your level of spasticity.

    Botox should help to relax certain muscles which can improve your gait if it was those muscles that affected the way you walk. 

    Really hope it was beneficial for you. :)
    Community Partner

    Scope
  • LSchroederLSchroeder Posts: 4Member Listener
    Hi Chloe!
    The injections weren't bad at all.  I  start physio tomorrow.   I'm waiting for results.  The doctor started me out on a low dose to see how I react to it.  So far, so good. 
    I will keep you posted!
    Thanks,
    Laurene 
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