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Sensation in hemiplegic hand

Hi Richard.
My daughter has hemiplegia and more recently developed epilepsy.
At the same time as the epilpesy started she began rubbing and shaking her hand as if she was experiencing uncomfortable sensations.
Unfortunately she also has severe communication difficulties, so is unable to tell us what the problem is, so l'm wondering if you could throw any light on this and, more importantly, suggest any ways we could deal with this problem to help make things more comfortable for her.
She is also very sensitive to sudden noises which make her bad arm jerk. Do you have any insights on that?
Very thankful for any help you can give.
Fede

Replies

  • Adrian_ScopeAdrian_Scope Administrator Posts: 6,310 Scope community team
    Hi @Fede, @Richard_Scope's unfortunately not around today, but I'm sure he'll be eager to be in touch with you as soon as he can. Can I ask how old your daughter is? :smile:
    Senior Community Partner
    Scope
  • janer1967janer1967 Community champion Posts: 787 Pioneering
    @Fede Hello and welcome to the community,  I am not trying to quote the obvious but have you spoken to her GP or consultant about this ? We may have members who can share their experiences with you but we are not able to give any medical advice on this forum which is understandable. I hope you get this resolved for her.

    I have peripheral neuropathy which causes tingling, numbness, hot feeling and lack of sensation in the hands and feet. I find I constantly rub and massage my hands  

  • FedeFede Member Posts: 3 Listener
    Yes, we have spoken to our GP who suggested it's carpal tunnel syndrome and that she should wear a hand splint.
    Do you know if peripheral neuropathy is common in CP? lf so l'll mention it next time l see the GP.
    Thanks
  • janer1967janer1967 Community champion Posts: 787 Pioneering
    I'm not at all familiar with CP so unable to advise sorry 
    Hopefully other members may help. Have you looked in the CP group on here 
  • Richard_ScopeRichard_Scope Administrator Posts: 1,987 Scope community team
    edited March 5
    Hi @Fede
    Thanks for posting and it's great to be able to talk with you.
    I am not medically trained so that is the first thing I will say. The tingling and pins and needles you describe in your daughter's affected hand does sound very much like Carpal Tunnel. This will need medical intervention to treat. There are things that you can do to make it more comfortable for her. Keep the hand warm and try to encourage her to move the fingers and hand as much as is possible, this will promote better blood circulation.
    Peripheral Neuropathy is not overly common in CP.
    Your daughter's sensitivity to a sudden noise is something called Moro or Startle reflex. Some people that live with CP have this overly pronounced reaction to sudden noise or movement. The reflex is found in babies but people with CP do not lose it as the majority of people do.
    Scope
    Specialist Information Officer - Cerebral Palsy
  • FedeFede Member Posts: 3 Listener
    Thanks Richard.
    We've just received an appointment to see a neurologist, not until June, but we'll be able to get his advice then.
  • StayceStayce Member Posts: 285 Pioneering
    edited May 3
    Hi @Fede

    Ive only just come across this thread. I’m an adult with Hemiplegia. From my experience two things are common when I experience P&N 

    1. Nerve entrapments are common in CP
    2. If muscle tone gets too high joints can be forced to pop out of position - so this might be why she is rubbing it. When your daughter hangs her wrist down is there like a dent at the top? As that how I know a joint in my wrist is out of alignment (aside from pain)


    Is is it possible that your daughter might have injured her wrist during a seizure?

    I’d recommend (under normal circumstances) seeking advice from an osteopath or physio - some are doing online consultations at the moment which obviously might help to alleviate concerns offer advice etc until you see the neurologist in June

    Best

    S
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