Cerebral Palsy
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Cerebral Palsy and Coronavirus (COVID-19)

Richard_ScopeRichard_Scope Administrator Posts: 1,906 Scope community team
edited March 23 in Cerebral Palsy
Cerebral Palsy affects every individual differently that is why it is difficult to create a one size fits all guidance about the impairment and coronavirus.

If you have respiratory issues, like getting chest infections quite a lot. O
r are invited to have the yearly flu jab, you have swallowing difficulties normally, as some people with CP do, due little to no mobility, then you will be classed as having an underlying health condition. It is not the CP itself. 

Here are the latest Government Guidelines on Social Distancing and who should be doing it.

If you are still worried please contact your G.P. or 111

Scope
Specialist Information Officer - Cerebral Palsy

Replies

  • tristantristan Member Posts: 3 Listener
    Hi 

    Just looking for some advice on this really please
    Our 2-year-old daughter was recently diagnosed with mild CP (only last week) so this is all a bit new to us
    Should we be on full lockdown then?

    thanks

    Tristan 
  • Richard_ScopeRichard_Scope Administrator Posts: 1,906 Scope community team
    Hi @tristan, welcome to the community.
    Without knowing your daughter or her history it's impossible for me to advise you of that.

    Please contact her G.P. or Paediatrician.
    Scope
    Specialist Information Officer - Cerebral Palsy
  • tristantristan Member Posts: 3 Listener
    Hi Richard - Many thanks for your reply - We are trying to get hold of him now - tristan 
  • Richard_ScopeRichard_Scope Administrator Posts: 1,906 Scope community team
    I hope you are able to get in contact with him soon, @tristan.


    Scope
    Specialist Information Officer - Cerebral Palsy
  • tristantristan Member Posts: 3 Listener
    Hi Richard - We managed to speak to the Paediatrician and due to her having such a mild case she would not be on the "vulnerable" list so good news there - thanks for you help its very much appreciated 

    Tristan 
  • Adrian_ScopeAdrian_Scope Administrator Posts: 5,686 Scope community team
    That's good news @tristan and must come as a bit of a relief. I'm glad you were able to get in touch with her paediatrician and that they were able to reassure you. 
    Senior Community Partner
    Scope
  • WestHam06WestHam06 Community champion Posts: 202 Pioneering
    Hi @Richard_Scope
                                       Thank you for sharing this advice with us, it is greatly appreciated. Please take care and look after yourself. Thank you. 
  • WestHam06WestHam06 Community champion Posts: 202 Pioneering
    Hi @tristan
                       Thank you for getting in touch. I am so pleased to hear that you were able to get in touch with the paediatrician who was able to advise you. Please let us know if there is anything else we can help you with. Please take care and look after yourself and your family. Thank you.
  • Katy7Katy7 Member Posts: 1 Listener
    Hi,

    I hope you are all keeping well in these troubling times. I just wanted to know if I need to isolate for 12 weeks or not? I'm currently isolating as a relative has symptoms, and I think I may be starting to show symptoms. So obviously I will be isolating for the time being anyway. But is there a way to know if the recommended extended period of isolation is necessary for me?

    Thank you, Stay safe x
  • buffster72buffster72 Member Posts: 3 Listener
    Hi
    My son is 25 and has mild CP. He's also offered the flu jab every year - he also has hydrocephalus which is a medical condition so possibly the reason for him being offered the flu jab - or a combination of the two.

    At first I was really worried and upset when they extended the at risk list to include those with CP.
    The thing is, he's never suffered with any colds, flu etc any more than most people. Doesn't have weakened immune system, respiratory problems, is pretty robust etc. He works part time.
    My question is: should he take the precautions and social distance? He works in a shop *rolls eyes* so not ideal. But he/they are taking all the precautions. 
    Should he be telling his boss that he will be unable to work now?  
    He has various issues with his conditions but they are physical and mental as opposed to respiratory, weak immune system etc.
    Thanks in advance.
    Angie x


  • WestHam06WestHam06 Community champion Posts: 202 Pioneering
    Hi @buffster72
                      How are you? On the forum, we are not in a position to offer medical advice but would suggest speaking with your son's GP and asking for their advice regarding social distancing.  I hope this helps, take care and look after yourself. Thank you. 
  • Richard_ScopeRichard_Scope Administrator Posts: 1,906 Scope community team
    Katy7 said:
    Hi,

    I hope you are all keeping well in these troubling times. I just wanted to know if I need to isolate for 12 weeks or not? I'm currently isolating as a relative has symptoms, and I think I may be starting to show symptoms. So obviously I will be isolating for the time being anyway. But is there a way to know if the recommended extended period of isolation is necessary for me?

    Thank you, Stay safe x
    Hi @katy7
    As you and a relative are showing symptoms it is vital that you self-isolate for 14 days. 
    The extended period of isolation, 12 weeks, is recommended for people at high risk and the NHS will contact these people by letter. More information about this can be found on the NHS COVID-19 Conditions page.
    Scope
    Specialist Information Officer - Cerebral Palsy
  • Richard_ScopeRichard_Scope Administrator Posts: 1,906 Scope community team
    Hi
    My son is 25 and has mild CP. He's also offered the flu jab every year - he also has hydrocephalus which is a medical condition so possibly the reason for him being offered the flu jab - or a combination of the two.

    At first I was really worried and upset when they extended the at risk list to include those with CP.
    The thing is, he's never suffered with any colds, flu etc any more than most people. Doesn't have weakened immune system, respiratory problems, is pretty robust etc. He works part time.
    My question is: should he take the precautions and social distance? He works in a shop *rolls eyes* so not ideal. But he/they are taking all the precautions. 
    Should he be telling his boss that he will be unable to work now?  
    He has various issues with his conditions but they are physical and mental as opposed to respiratory, weak immune system etc.
    Thanks in advance.
    Angie x


    Hi @buffster72
    People who are in the at-risk group and need to isolate for 12 weeks should be contacted by the NHS. More information about this can be found on the NHS COVID-19 Conditions page. 
    Scope
    Specialist Information Officer - Cerebral Palsy
  • Julianos1969Julianos1969 Member Posts: 1 Listener
    Hi
    I am 50 years old I have Mild CP, but due to back pain, club feet, wear and tear on my spine, I use a Manual Wheelchair. I also have High Blood Pressure and Cholesterol issues, but it is controlled by medication.
    Do I have to self- isolate
    thanks

    Julian  
  • Richard_ScopeRichard_Scope Administrator Posts: 1,906 Scope community team
    Hi @Julianos1969,  People who are in the at-risk group and need to isolate for 12 weeks should be contacted by the NHS. More information about this can be found on the NHS COVID-19 Conditions page. 

    Scope
    Specialist Information Officer - Cerebral Palsy
  • BazaladBazalad Member Posts: 20 Connected
    People are saying 12 weeks, but I personal think it might be longer but I am hoping to be wrong
  • Richard_ScopeRichard_Scope Administrator Posts: 1,906 Scope community team
    @Bazalad, I hope you are wrong too. How are you?  

    Scope
    Specialist Information Officer - Cerebral Palsy
  • AlexW_ScopeAlexW_Scope Scope Team Posts: 208 Scope community team
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