Parents and carers
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.
Keep on top of what's being talked about in our recent discussions and have your say!

High functioning autistic with traits of PDA, 7 year old daughter

MishnbelleMishnbelle Member Posts: 1 Listener
edited April 21 in Parents and carers
Hi I'm new to here and have just had some help from a clinical psychologist who thinks my daughter is high functioning autistic with traits of PDA anyone else have a similar diagnosis my daughter is 7 years old and now I need to ask for a referal from my GP.  

Replies

  • Katy44Katy44 Member Posts: 4 Listener
    Hi there I’m new too :) I don’t know how much help I can be but I have worked with children and know people with high functioning autism so if you have any questions then please feel free to let me know (I’m new to this forum so don’t know how their private message function works) feel free to add me on Facebook name is Katy Burgess (I’ll just check what profile pic I currently have up... ah it is my dog (beige Alsatian type) with a happy Easter thing over her :) 
  • chiariedschiarieds Community champion Posts: 4,722 Disability Gamechanger
    Hi @Mishnbelle & @Katy44 - Welcome to this friendly & supportive community, & thank you both for joining. We have a section on Autism & Aspergers where you can see previous discussions which may be helpful.
    Katy you can send a PM after you've done 25 posts, tho you can receive one from someone else who already has 25. I'm sure you'll fit right in with us all here, offering help straightaway! :)
    Please both of you, do look around & join in with the discussions, or enjoy our virtual 'Coffee lounge.' https://community.scope.org.uk/categories/coffee-lounge
    I look forward to seeing you around the forum. :)


  • AilsAils Community champion Posts: 2,268 Disability Gamechanger
    Hi @Mishnbelle and @Katy44 and welcome also to you both from me.  It is nice to meet you and thank you for joining us.  I hope you will enjoy your time with us on the Community.  People are lovely and friendly on here and so supportive too.  I look forward to seeing you both around the forum.  If there is anything we can help/support you with then please just ask.  All the best.  :smile:
    Winner of the Scope New Volunteer Award 2019.   :)
  • Chloe_ScopeChloe_Scope Administrator Posts: 10,619 Scope community team
    Hi @Mishnbelle, just wanted to check in to see how things are doing. :)
    Community Partner
    Scope

    Tell us what you think?
    Complete our feedback form to help us to improve your community.
  • Sorry_SusanSorry_Susan Member Posts: 54 Courageous
    Welcome!
    Also, well done for getting this far. My daughter (now 16) who is high functioning autistic with (unconfirmed) PDA. Our psychiatrist and psychologist did not want to put the PDA on paper due to the fact that is perceived in a negative light and is confused with ODD.
    Since we have been treating her as PDA, she is behaving better and all together life is more manageable and she is much less likely to have a melt-down or shut-down. I regret waiting as long as I did to have her 'labeled' - she was 14. 
    They key thing (in my opinion) to remember is that she cannot help it and does not do it on purpose and it is NOT your fault.
    My daughter is pretty amazing now - attending a military boarding school (by choice) that specialises in engineering and I am well proud of her. She is still super hard work, but that is okay.
  • Betty200Betty200 Member Posts: 9 Connected
    edited June 30
    Hi  @Mishnbelle i hope you don’t mind me jumping in on this chat??
    I’m also new to the group, my daughter is at the beginning of her journey for asd, sensory processing disorder and maybe dyspraxia too..I’m slowly learning about different disabilities and feel she may also be high functioning but I didn’t know what PDA was until I have just researched it and I feel this may be also something she has but I don’t know if I’m just being worried or overly paranoid. Since lockdown I fear she is getting worse and I’m really struggling with her as I also have an 18 month old and it breaks my heart to see her struggle.. I’ve googled everything u can think of and it’s driving me insane..

  • justjoejustjoe Member Posts: 6 Listener
    Check out the PDA Society - they have everything you need there. Hope that helps, best wishes. 
  • Sorry_SusanSorry_Susan Member Posts: 54 Courageous
    PDA society is good.
    Start the journey to diagnosis, having a label opens doors and puts you in contact with others in a similar position who understands and does not judge.
Sign in or join us to comment.