Cerebral Palsy
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4 year old starting school in September

Christina114Christina114 Member Posts: 5 Connected
I’ve had really good advice from this site in the past so here I go again. He can walk now unaided, a brave determined lad, but wants to get in his pram after walking so far. This is the issue, he’s getting too big for his pram. Where do we go from here? We want to go for days out, after this lockdown is over, and he also wants to walk to school.  Are there bigger ‘prams’. He won’t manage a full day out or walking to school without some sort of chair to help him. 

Replies

  • janer1967janer1967 Community champion Posts: 3,301 Disability Gamechanger
    Hi I understand your dilemma, maybe you could get him a wheelchair I know as a wheelchair user this may be daunting reality.

    They do make some really funky children's designs with character wheels 


    Just a thought 
  • WestHam06WestHam06 Community champion, Scope Volunteer Posts: 635 Pioneering
    Hi @Christina114
                                  How are you? Welcome back and please do ask any questions you have at any time, there will be someone on the forum who will be able to help. Fantastic news that he is now walking unaided, you must be really proud! It is tiring though so I would think that a wheelchair is the next option to enable him to get a balance. Does your family have contact with an Occupational Therapist or other professional who may be able to help with this? @Richard_Scope may be able to give some more detailed advice for you. It can be quite daunting but as @janer1967 they can do some really funky designs for children. I'm sorry I can't be of anymore help. Thank you.

  • Richard_ScopeRichard_Scope Administrator Posts: 2,257 Scope community team
    Hello @Christina114, it's great to talk with you.
    I think that looking to get your son a wheelchair is a good idea. The children's wheelchairs now are great and are far better than a buggy, far better than when I was a kid. 
    Here is an example it's called the ZIPPIE
    I would make contact with your G.P. or Occupational Therapist and get a referral to your local NHS wheelchair service
    Scope
    Specialist Information Officer - Cerebral Palsy

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  • Christina114Christina114 Member Posts: 5 Connected
    Thank you for all your replies, you're always really helpful. You've given us a way forward to explore and also advice on how we may go about it. We couldn't manage without your help.
    Chris
  • Christina114Christina114 Member Posts: 5 Connected
    Hello all, just an update. Thank you for recommending NHS WHEELCHAIR SERVICES, they delivered a large buggy type chair yesterday, a McLaren. He seems to have taken to it. He thought it looked a bit high up, the seat, but then felt comfortable in it. Fingers crossed he will like it. So we can see how it goes. Many thanks again. 
  • Richard_ScopeRichard_Scope Administrator Posts: 2,257 Scope community team
    That's great news @Christina114
    Scope
    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
  • Adrian_ScopeAdrian_Scope Administrator Posts: 7,488 Scope community team
    Brilliant news @Christina114, I'm glad he has taken to it too. 
    Senior Community Partner
    Scope

    If you have a few minutes to spare, we'd appreciate your feedback on our online community.
  • Christina114Christina114 Member Posts: 5 Connected
    Thanks Richard. Of course this chair doesn’t give him any independence, and come the day he may want to mobilise himself. But hopefully it’s a good solution for the moment. 
  • WestHam06WestHam06 Community champion, Scope Volunteer Posts: 635 Pioneering
    Hi @Christina114
                                 I'm so pleased to hear a McLaren was delivered, that's brilliant news :) I'm glad that he is comfortable in it. Thank you for letting us know.  
  • Richard_ScopeRichard_Scope Administrator Posts: 2,257 Scope community team
    Thanks Richard. Of course this chair doesn’t give him any independence, and come the day he may want to mobilise himself. But hopefully it’s a good solution for the moment. 
    When that time comes, we can support you guys with that too. I love wheelchair shopping!!!
    Scope
    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
  • Christina114Christina114 Member Posts: 5 Connected
    Thank you again. 
    And one day I know I’ll be in touch again. 
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