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Brain AVM

arrywillzarrywillz Member Posts: 1 Listener
Hi everyone New here but I needed to know if someone’s been through a similar thing as I’m really struggling, at the age of 21 I was diagnosed with an avm back in 2013 and had radio surgery (gamma knife) in 2014 to treat it, unfortunately I suffered quite a lot of trouble post surgery I  then developed epilepsy and started to suffer from severe aura migraines and headaches witch both still effect me to this very day 7 years later and have impacted my life, work and mental health greatly just wondering if anyone else suffered anything similar and did it get better? As I just feel it’s never going to end thanks. 


  • steve51steve51 Community champion Posts: 6,961 Disability Gamechanger
    Hi @arrywillz

    Good Morning!!!!!

    I am one of the Community Champion’s here at Scope.

    Yes I have also had a Brain AVM.

    Mine was at the base of my “Brain” at the top of my “Spinal Cord”

    I have also had :SRS Radio Surgery here in Birmingham.

    This didn’t work & it has given me “Chronic Pain 24/7”

    Please come back if you need any further help?????

  • chiariedschiarieds Community champion Posts: 2,867 Disability Gamechanger
    Hi @arrywillz -  & welcome to the community. Great that you've met Steve, as you will have much in common, tho very sorry you've both had complications. Hope to see you around the forum. :)
  • Chloe_ScopeChloe_Scope Administrator Posts: 9,361 Scope community team
    A warm welcome to the community @arrywillz! I'm really sorry to hear about your post-operation complications. Do you currently get any support at work?

    Please do have a look around, get involved and please shout if we can do anything to help. :)
    Community Partner
  • janer1967janer1967 Community champion Posts: 2,008 Disability Gamechanger
    Hi and welcome to the community glad you have joined us here. I am sure there will be lots of members who can share their experience with you and I look forward to seeing you around
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