Mental health issues
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Mental health issues are becoming physical pains.

earthchild23earthchild23 Member Posts: 73 Courageous
Hi 👋 I’m EARTHCHILD23🌍 🌷 
I hope you are all ok and been well and safe through the pandemic.
I am a mum to a beautiful 9 year old, and we are both survivors. But plodding on. We have been through a lot as many others have been on here and I just thought I’d share. I have EUPD, OCD Depressive disorder, ADHD, and dyslexia so I do apologise when my messages get jumbled or cut off.
So I wanted to ask something... 
I know there’s been a post about how people are coping with physical illnesses affecting there mental health but for me it’s quite the opposite I just wanted to ask and share if anybody has a mental health disability that over time is now affecting there physical health? 
At the moment I’m suffering from hyprolactenemia, gallatorea, fatigue, pins and needles, bloated stomach, headaches, back pain, leg and hand numbness. It’s quite bizarre it’s being investigated, I’ve been and had a MRI to check my head and everything is normal, so my GP has ruled out any growths in my brain, but my hormones are elevated especially one called prolactin it’s basically making me feel like I’m pregnant and suffering from stiffness with numbness and pain all at once. I have an appointment on video call with endrincologist, who will probably tell me it’s my anti psychotic medication but I’m on a low dosage and my anti depressants can’t cause it. 

I just want to know if anyone else has experienced this or has any information on how they cope I know you can’t give medical advice as your not GPs. 

Thanks  😃

Replies

  • leeCalleeCal Member Posts: 2,309 Pioneering
    Hi, have you checked out the side effects pamphlet that comes with your anti psychotic medication? That may shed some light on the matter, apart from that I wouldn’t know.
  • earthchild23earthchild23 Member Posts: 73 Courageous
    Hi 👋 @leeCal do you mean leaflet? 
    And if so I don’t get a leaflet I have a dosset box that comes everyweek so I have no idea 💡 hun 
  • leeCalleeCal Member Posts: 2,309 Pioneering
    edited August 13
    Yes, I meant leaflet. That’s all I can suggest personally.
    perhaps @chiarieds could help.
  • earthchild23earthchild23 Member Posts: 73 Courageous
  • janer1967janer1967 Community champion Posts: 4,740 Disability Gamechanger
    Hi you could look up your medication side effects on the internet or contact your pharmacy they can advise you
  • earthchild23earthchild23 Member Posts: 73 Courageous
    Hi @janer1967 I’ve spoken to a consultant today (Friday) who is going to test to see what’s going on. I’ve looked up online some of the symptoms are side effects but when all together as symptoms for a women it can be many other things going on. I’m going to wait on consultant now as I’ll just work my self up again. 
    But thanks for advice 
    😊
  • janer1967janer1967 Community champion Posts: 4,740 Disability Gamechanger
    Hope you get it sorted with the consultant and start to feel better 
  • Ross_ScopeRoss_Scope Administrator Posts: 903 Pioneering
    Hello @earthchild23

    Best of luck with the consultant, let us know how you get on :) 
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  • earthchild23earthchild23 Member Posts: 73 Courageous
    Hi @Ross_Scope 
    i hope you are ok? 
    Yes it was reassuring and I find it more comfortable as your in your home and not worried about everything else with this pandemic, I just hope I’m able to get some more information to understand what is happening from the symptoms I’m experiencing. Which will also be helpful when completing my PIP renewal. (When it magically appears)
  • Tori_ScopeTori_Scope Administrator Posts: 1,526 Pioneering
    I also hope you get some more information @earthchild23, and that you get your PIP renewal soon :) 
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  • NotquitedisabledNotquitedisabled Member Posts: 8 Listener
    I can be in a mental state where I'm stressed and it causes a headache, or when I don't move enough, partly due to depression, and that causes a headache eventually.

    But there's more to it. I believe mental illness IS physical illness. Regardless of any emotional trauma that may have triggered it, "mental" illness is caused by physical illness we label "imbalances" and treat physically (or at least I do, with medication). 

    What I'm trying to say is that, in my personal experience and opinion, the "mental" aspect of mental illness is a SYMPTOM of a PHYSICAL imbalance or illness. And if one symptom of the imbalance/illness is "mental," it is likely that OTHER symptoms of the imbalance/illness exist also, but are classified as "physical." 

    It's possible you have one complex system where all your symptoms are actually connected by ONE disease, condition, or syndrome, and that doctors just miss it or there is no diagnosis for it (which doesn't mean it doesn't exist, just that it hasn't been studied or "discovered" officially). 

    It's also possible that your new symptoms are not connected to your mental illness at all and should be treated differently. What your post reminded me was the book, "Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed and Sick," by Maya Dusenberry. The book is filled with stories and anecdotes, dating back hundreds of years, of women who were seriously ill but were consistently told their symptoms were "mental illness" or that the illness was real but "created" by their minds. The illnesses of course were NOT created by their minds, and so the women never got better, but were blamed for their illnesses and called difficult patients and "malingerers" for seeing doctor after doctor and refusing to accept that they were not "really" ill.

    Only with the 20th century and several waves of western women's increasing social and economic power have we found that more and more of these "nonexistent" diseases are finally getting studied. It took decades, for instance, to get CFS/ME to get real study because the women whom it affected were labelled liars. 

    So what I'm trying to say is, please hang in there, and whatever the case is, whether you ARE actually experiencing physical illness as a result of mental illness, or something totally different than mental illness, please don't give up on yourself or think you're crazy or the only one suffering with your condition.
  • harry01harry01 Member Posts: 91 Connected
    @earthchild23 yes. I had violent episodes of generalised muscular spasms. They were preceded by very high levels of stress. 

    Look up 'functional disorder'.  As far as I know our scientific understanding on this is not very good at all. 


  • Chloe_ScopeChloe_Scope Administrator Posts: 10,673 Scope community team
    Hi @earthchild23, how are you doing today? :)
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  • earthchild23earthchild23 Member Posts: 73 Courageous
    edited October 5
    Hi guys so here’s a update.. 

    @Chloe_Scope

    @janer1967 😊. I’ve found a letter on my heath records that I’ve been rejected from nerve conduction so it looks like because of Covid they won’t be investigating why I’ve got pin n needles in my hands and legs which lead them to spasm and pains 

    It’s one thing after another tbh I’m fed up.
    @Tori_Scope my PIP review has come through I’ve sent it off ma be my partner did it together so I’m waiting to see if it goes ok as there wasn’t much space to explain but I sent in my MH care plans and records. 
    So yes I’ll still need that luck. 
    Don’t know what I’d do without this platform 🤦‍♀️. 
    Thanks guys 
    sorry for late reply 
  • earthchild23earthchild23 Member Posts: 73 Courageous
    harry01 said:
    @earthchild23 yes. I had violent episodes of generalised muscular spasms. They were preceded by very high levels of stress. 

    Look up 'functional disorder'.  As far as I know our scientific understanding on this is not very good at all. 


    harry01
    Yes well I completely understand that one. As my previous medication was giving me restless legs and I’d get pain all the way through them. I called it nerve pain as it was stabbbing and wouldn’t shake off. 
    I will look up functional disorder and enquire with GP. 
    Thanks 😊 

  • earthchild23earthchild23 Member Posts: 73 Courageous
    I can be in a mental state where I'm stressed and it causes a headache, or when I don't move enough, partly due to depression, and that causes a headache eventually.

    But there's more to it. I believe mental illness IS physical illness. Regardless of any emotional trauma that may have triggered it, "mental" illness is caused by physical illness we label "imbalances" and treat physically (or at least I do, with medication). 

    What I'm trying to say is that, in my personal experience and opinion, the "mental" aspect of mental illness is a SYMPTOM of a PHYSICAL imbalance or illness. And if one symptom of the imbalance/illness is "mental," it is likely that OTHER symptoms of the imbalance/illness exist also, but are classified as "physical." 

    It's possible you have one complex system where all your symptoms are actually connected by ONE disease, condition, or syndrome, and that doctors just miss it or there is no diagnosis for it (which doesn't mean it doesn't exist, just that it hasn't been studied or "discovered" officially). 

    It's also possible that your new symptoms are not connected to your mental illness at all and should be treated differently. What your post reminded me was the book, "Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed and Sick," by Maya Dusenberry. The book is filled with stories and anecdotes, dating back hundreds of years, of women who were seriously ill but were consistently told their symptoms were "mental illness" or that the illness was real but "created" by their minds. The illnesses of course were NOT created by their minds, and so the women never got better, but were blamed for their illnesses and called difficult patients and "malingerers" for seeing doctor after doctor and refusing to accept that they were not "really" ill.

    Only with the 20th century and several waves of western women's increasing social and economic power have we found that more and more of these "nonexistent" diseases are finally getting studied. It took decades, for instance, to get CFS/ME to get real study because the women whom it affected were labelled liars. 

    So what I'm trying to say is, please hang in there, and whatever the case is, whether you ARE actually experiencing physical illness as a result of mental illness, or something totally different than mental illness, please don't give up on yourself or think you're crazy or the only one suffering with your condition.
    @Notquitedisabled

    Honestly everything you have said is what I feel! 
    I have gone through leg spasms to headaches dizziness and fainting to fatigue and been in awful pain where my bones feel crippled. I’d understand if I was like 70 y/o but I’m just going 27 ! The effects of my mental health are having an impact on my physical health and it’s hard for me to explain to the GP without them acting as if I’ve become mentally unwell again. 
    A typical day at the moment consists of me being drowsy and fatigued, not feeling any energy, getting a headache needing to lye down, then it gets to the evening I’m wide awake with spasms in my arms and or numbness in my back and legs. It’s actually terrible! 
    I will look up that book too as well as functional disorders 
    ive gone from looking up symptoms of ME Fibromyalgia to try and understand if I am suffering from symptoms of them too as it doesn’t make sense, and on top of that I’m putting on a lot of weight rapidly without changing my eating habits I’ve gone from 13stone to 17 1/2 in less than a year. I’m worried because I feel like my body is going through something but I don’t know what but everytime I try to vent it it’s always the thing that it’s my EUPD and OCD Or Psychosis symptoms starting and it generally isn’t in taking my medication and actually trying to cope with myself. 
    (Sorry for the vent) 
    things sometimes get too much. 
    But thanks @Notquitedisabled 😊
  • Tori_ScopeTori_Scope Administrator Posts: 1,526 Pioneering
    Hi again @earthchild23. There's no need to apologise for the late reply, it's good to see you on here.

    Well, my fingers are still firmly crossed for your PIP outcome! 

    There's also no need to apologise for venting, it sounds like things have been really tough. You're always welcome to vent on here any time.
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  • earthchild23earthchild23 Member Posts: 73 Courageous
    edited October 7
    Hey @Tori_Scope i thought I’d come on as I’m having another night of no sleep, I buckled up the energy and confidence to go on a walk today after taking my son to school on taxi. anyways I went on the walk with earphones in so I don’t have to deal with people or socialiseto see if I could stretch my legs to see if the leg spasms would stop but it seems it’s returned and they are painful when they clench up (it’s like when you clench your fist and your muscle goes tight) but it’s not worked, I am also wide awake so imsomnia has returned but I’m absolutely knackered and then during the day today I’ll be lethargic and fatigued from being up. It’s honestly a pain and Yes coming on here helps  sometimes I just need to let out the frustrations that are going around in my head. 
    I’ve tried calling pip to see if they’ve recieved the form but couldn’t get through so I’ll try again later on if I’m not asleep all day. Mental illness is like being at war some times you win and sometimes you lose but you are forever fighting with yourself. 
    Thank you for getting back to me 😊

  • Tori_ScopeTori_Scope Administrator Posts: 1,526 Pioneering
    That sounds painful, I'm really sorry @earthchild23. Hopefully the other test results will come back soon, and the doctors will agree to investigate your nerve pain further at some point too.

    I'm sorry to hear you're also having trouble sleeping. Are you still receiving mental health support? I think I remember you saying that you had a support worker? Bad sleep always makes things worse, so definitely try and speak to either a member of your mental health team, or your GP. Do you know what might be causing your insomnia?

    I think the phoneline might open at 8am. 

    I hope you managed to get some sleep, and that you feel a bit better today :) Let us know how you're feeling.
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  • earthchild23earthchild23 Member Posts: 73 Courageous
    Hi @Tori_Scope
    ive managed to do a bit of walking but my legs still go numb so I’m going to contact go again to discuss the conduction rejection and pain I’m still having. 
    I really hoped this would be something that could stretch out but it doesn’t do it. 
    I don’t have a mental health support worker but I have one for domestic abuse called a ISVA. She can help with supporting letters to my mental health team so I might ask her to get in contact with them about the insomnia and low mood but I offset feel like once speaking to them I’m being a bother so it’s just more fustrating. 

    I have also managed to get in touch with PIP to speak to them about the review they just said they have recieved it with evidence and I’ll have to wait minimum 8 weeks for a decision and if they don’t accept my review they will stop payments, I guess they tell everyone that but it just makes you think your claims going to end and make things difficult again. 

    Thanks for getting in touch and I hope you are ok too 😊
  • Tori_ScopeTori_Scope Administrator Posts: 1,526 Pioneering
    Contacting them again sounds like a good idea to me @earthchild23. Fingers crossed they'll be able to do something, or at least let give you an idea of how long it might be until you can access the treatment.

    Ah yes, that was what I was remembering. I think it'd be great if she could do that. You're definitely not a bother, and they shouldn't make you feel that way! 

    Well at least they've definitely received it. There's nothing more you can do now, so just try to put it out of your mind for the moment (easier said than done, I know!). 

    No problem. Please do keep us updated with everything. I'm fine, thank you for asking :)


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  • earthchild23earthchild23 Member Posts: 73 Courageous
    Hi @Tori_Scope
    ive managed to put in a Gp request as you have to do it online and tried to explain in (500 characters) what it’s like so hopefully someone will get back to me tommorrow. 

    Yeah I’m going to contact my ISVA about counselling because if it is stress related it can hopefully help. 

    I just hope this PIP isn’t another stress and gets put through, I’m also supposed to be doing my third part of my course with Open University so I hope I actually do that this year and don’t have to postpone because of things getting too much. 
    I am sorry if I am a bother on here I just don’t like putting it on my partner all the time. 
  • Ross_ScopeRoss_Scope Administrator Posts: 903 Pioneering
    I hope the open university course goes well @earthchild23 :) 

    You are absolutely not a bother at all, we very much value your contribution here, you're always welcome :)

    Sometimes it just helps to talk about how you feel, and you can always do that on the community.
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  • earthchild23earthchild23 Member Posts: 73 Courageous
    @Ross_Scope Yes on year 3 out of 6 now so it helps it’s part time and can be done from home and they understanding of people with disabilities and how it affects us, so I’ve had times I’ve taken a break to gather myself. But I hoped this year would be a sailing year but it’s been rocky for everyone. 

    I will continue to keep you all updated on here and use helplines if this get too much with my mental health. 

    We are all struggling at this time and it’s good that this platform is available so Thankyou once again. 
    I appreciate the support 😊
  • Tori_ScopeTori_Scope Administrator Posts: 1,526 Pioneering
    I hope they get back to you today @earthchild23 :) 

    Yes, definitely get in touch any time! 

    No problem, thanks for being here. 
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  • earthchild23earthchild23 Member Posts: 73 Courageous
    Thank you 😊 
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