Dealing with chronic pain
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Hi, my name is Sparklebright62! I have pain and swelling in my leg, shoulder, and elbows

Sparklebright62Sparklebright62 Member Posts: 9 Listener
edited September 18 in Dealing with chronic pain
Hi there,

I keep getting constant joint pain my R leg is swelling and also having problems with my left shoulder waiting for an ultrasound scan also last night both my elbows swollen so much you couldn't see my elbow joints and hospital are saying this is osteoarthritis no way its rheumatiod arthritis I am right.


Sparklebright62.

Replies

  • Tori_ScopeTori_Scope Administrator Posts: 762 Pioneering
    Hi @Sparklebright62! Welcome to the community :)

    I'm sorry that you've been in so much pain. Are you saying you think it's rheumatoid arthritis, not osteoarthritis? Or that you thought you had osteoarthritis, and that they've now confirmed this?

    Just to let you know, I've moved your post into the Chronic Pain category. 
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  • janer1967janer1967 Community champion Posts: 3,106 Disability Gamechanger
    Hi @Sparklebright62 Welcome to the community, sorry you are in such pain and you dont agree with the diagnosis, what makes you think it is wrong ?
  • Sparklebright62Sparklebright62 Member Posts: 9 Listener
    Hi to you,

    The hospital are saying its osteoarthritis its not its rheumatiod arthritis last night both my elbows swollen up you couldn't see my elbow joints at all they were so swollen I get fatigue depressed no energy @t all just want to sleep don't feel like eating have lost lots of weight since I came home from hospital 8.1kg in about 4 or more weeks.

    I am also having bowel problems incontinence/ibs ect really stressfull.
    I am phoning doctors in the morning will see what they say.

    Sparklebright62.
  • janer1967janer1967 Community champion Posts: 3,106 Disability Gamechanger
    Have you seen specialist or was it a&e you went to 

    Phone gp and also see about your other problems 

    Let us know how you get on 
  • Tori_ScopeTori_Scope Administrator Posts: 762 Pioneering
    I'm sorry to hear that @Sparklebright62 :( It definitely sounds like this needs to get sorted as soon as possible.

    Were you able to speak to the doctor yesterday morning? 
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  • Sparklebright62Sparklebright62 Member Posts: 9 Listener
    Yes he just prescribed gel for now to use 4 times per day.
    I have lost 8.4kg since I came home from hospital 
    I have sent in pictures to the doctors via web.
    Think they are supposed to be referring me back to rheumatology but I need to have an ultrasound first don't know how long this will take.

    Sparklebright62.
  • Tori_ScopeTori_Scope Administrator Posts: 762 Pioneering
    Is the gel helping at all @Sparklebright62?

    That is a lot of weight :( I know you said you don't feel like eating, but could you perhaps try some liquids, like a smoothie or some soup? 

    Fingers crossed it won't take very long to get the ultrasound done. Could you ask anyone what they think the wait time might be?
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  • emmarenshawemmarenshaw Community champion Posts: 653 Pioneering
    Welcome to the community @Sparklebrightisright so sorry to hear of your pain. We’re all here if you need our support.
  • Sparklebright62Sparklebright62 Member Posts: 9 Listener
    Hi to all,

    I think the wait time will be debatable as I've still not had my heart scan so no hope of getting my shoulder scan which is very worrying I've a funny feeling this won't be sorted till next year some how its not good enough.

    Sparklebright62.
  • Tori_ScopeTori_Scope Administrator Posts: 762 Pioneering
    Let's hope it gets sorted quicker than that @Sparklebright62! I do think it's worth asking them what they think the wait time might be. How long have you been on the list for a heart scan? 
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  • Sparklebright62Sparklebright62 Member Posts: 9 Listener
    Hi to all,

    I received my appointment today its for October 2 appointments not happy still getting symptoms again

    Sparklenright62.




  • janer1967janer1967 Community champion Posts: 3,106 Disability Gamechanger
    Hi sorry you gave a wait but it isnt too far away only couple weeks 

    Is is for your heart scan or you arm 
  • Sparklebright62Sparklebright62 Member Posts: 9 Listener
    Hi to all,

    Heart Scan

    Sparklebright62.
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