Hello all

jayramphal

Hi everyone decided to join as I don’t know anyone who is in a similar situation as me so was hoping to find people who understand

leeCal

Hi @jayramphal welcome to the community and nice to meet you.
best wishes.

jayramphal

Thanks you to

jayramphal

New to this

janer1967

Hi and welcome to the community glad you have joined us here

Have a look around and feel free to join in and if there is anything you want help with just ask

You said you want to find people in same situation who understand we are all very understanding here and very friendly

Maybe if you can tell us a bit about your situation we can point you in the right direction

Cher_Alumni

Hi @jayramphal

It's lovely to have you here, how are you today?

To get started in the community you can have a browse of our different groups to see if anything takes your fancy or interests you.  Otherwise you might enjoy our virtual coffee lounge where our members are playing different games and having varied discussions.

Feel free to jump in and get involved, and if you need any help just give us a shout.  You are never alone in our community 

Ross_Alumni

Welcome to the community @jayramphal, glad you've joined us  

Do you want to tell us a little bit about yourself?

jayramphal

I have a rare brain condidion called leukodystophy as well as Aspergers syndrom 

Ross_Alumni

Hi @jayramphal, thanks for replying  

I have to say I've not heard of leukodystrophy in the past, I hope you are getting along okay with both of those things. 

You might find some helpful discussions over in our talk about specific conditions section, and you may also find others who have similar experiences to you. 

If you ever need any help navigating the community don't hesitate to ask.

Ami2301

Welcome to the community @jayramphal

steve51

Hi @jayramphal

Good Afternoon & Welcome it’s great to meet you today.

I am one of the Community Champion’s here at Scope.

Yes I also have rare brain condition (AVM)

Please come back to me if you need a hand.

@steve51

jayramphal

@steve51
Yes are there any way i can get help with funding. I am in need of an electric wheelchair

steve51

Hi @jayramphal

Yes there is some info below for you with regards to funding.

https://www.disability-grants.org/grants-for-wheelchairs-one.html

https://www.scope.org.uk/advice-and-support/wheelchairs/

Please let me know if you have any problems with these????

@steve51

chiarieds

 Hi @jayramphal - & welcome to the community from me too. I hope the links Steve has given may help you find out more about funding.

jayramphal

Yes thanks