Undiagnosed and rare conditions
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

spinocerebella ataxia

JulesredshoesJulesredshoes Member Posts: 2 Listener
I have SCA and sleep apnea, depression but I'm still fighting xx

Replies

  • steve51steve51 Community champion Posts: 7,175 Disability Gamechanger
    Hi @Julesredshoes

    It's great to meet you this evening.

    Yes that's the right way to be within our dis "able" d world !!!!!!

    Please please jump in & have a good look around as there is a "richness" off "info & advice" at your finger tips !!!!!!!!!!

    If you need any help or advice please "knock" on my "door"




  • Sam_ScopeSam_Scope Member Posts: 7,732 Disability Gamechanger
    Hi @Julesredshoes welcome to the community, do you want to tell us a bit more about yourself?
    Scope
    Senior online community officer
  • JulesredshoesJulesredshoes Member Posts: 2 Listener
    I'm a 5'5" bleach blond office manager, diagnosed with late onset spinocerebella ataxia of unknown origin around 5 years ago. Lots of tests, seen many specialists and am proud to say that my DNA is housed in London where it is tested every  time a new strain of SCA is discovered. To keep my SCA company, I was diagnosed with sleep apnea last year and use a CPAP machine at night, I have depression and am undergoing CBT at the moment. Gosh what a bundle of fun! Always fighting and defending what is seen as an invisible disability, I am a warrior!
  • Sam_ScopeSam_Scope Member Posts: 7,732 Disability Gamechanger
    Thanks @Julesredshoes - take a look around the community, jump in and get involved! Let me know if you have any questions :)
    Scope
    Senior online community officer
Sign in or join us to comment.