NICE set to produce guideline for services for adults with Cerebral Palsy
Richard_Scope
Posts: 3,638 Scope online community team
The document outlines the steps that need to be taken to change the differences in providing social and medical services for adults with Cerebral Palsy and aims to help local and regional services provide clear pathways to social and medical care.
Read the full article here.
NICE set to produce a guideline for services for adults with Cerebral Palsy
Read the full article here.
NICE set to produce a guideline for services for adults with Cerebral Palsy
Scope
Specialist Information Officer and Cerebral Palsy Programme Lead
Want to tell us about your experience in the community? Talk to our chatbot and let us know.
Specialist Information Officer and Cerebral Palsy Programme Lead
'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know.
Comments
-
Interesting read... I’d definitely agree with regular reviews. In my case regular physio and orthotics reviews would be invaluable, even if they’re six monthly it would really help. I’m pretty good at self managing my cp, but when I have issues I have to go to the gp and get re-referred. This obviously takes months, so open referrals with regular reviews would be great, and I believe in the long term would save money.
-
I agree. It seems like a small step in the right direction and has the potential to save money, as you say.Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know. -
I note that this is draft guidance and out for public consultation until August 28th. Individuals or organisations can comment via: https://www.nice.org.uk/guidance/indevelopment/gid-ng10031/consultation/html-content-2
I hope they get lots of engagement on this important matterJean Merrilees BSc MRCOT
You can read more of my posts at: https://community.scope.org.uk/categories/ask-an-occupational-therapist
-
Interesting - I have to say I’m less impressed with the drugs for muscle relaxant recommendations as It implies that the drug I am prescribed (due to not tolerating the ‘popular’ others) is not being recommended. So I am probably going to have problems if this goes ahead!
Brightness
Categories
- All Categories
- 13.3K Start here and say hello!
- 7K Coffee lounge
- 101 Games lounge
- 482 Cost of living
- 4.6K Disability rights and campaigning
- 1.9K Research and opportunities
- 231 Community updates
- 9.6K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 806 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 666 Dating, sex, and relationships
- 374 Exercise and accessible facilities
- 846 Transport and travel
- 32K Talk about money
- 4.6K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 5K Universal Credit (UC)
- 6.4K Talk about your impairment
- 1.8K Cerebral palsy
- 885 Chronic pain and pain management
- 183 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.3K Mental health and wellbeing
- 328 Sensory impairments
- 832 Rare, invisible, and undiagnosed conditions