Newbie, parent carer with a disability.
Rapunzel
Community member Posts: 9 Connected
Hi, my name is Rapunzel!
I am a parent to a 15yr old daughter who has ADHD and Pathological Demand Avoidance Syndrome, part of the Autistic Spectrum. At the moment I am a full time carer for her but, all that may change when she turns 16.
To add to the whirlwind, chaotic but, extremely interesting and 'keeps you on your toes' lifestyle I have due to my daughter's conditions, I have a list of medical issues myself. The main problems now are I have psoriatic arthritis and fibromyalgia. These are both in the middle of a flare up, making it difficult for me to walk or complete a lot of daily tasks. Then on the odd days I can achieve, anything close to what could be considered a normal daily routine, it takes me numerous days to recover, as I have debilitating fatigue. I am unable to stay awake for longer than 30mins before crashing out again.
I think that's the most interesting facts about my life, sunshine and light are not what most people would use to describe it but, minus the pain I suffer, I have gotten used to the disorganisation and chaos, so I'm not sure I'd want to be without it now. As I said to begin with, it all makes my life extremely interesting and keeps me on my toes.
I am a parent to a 15yr old daughter who has ADHD and Pathological Demand Avoidance Syndrome, part of the Autistic Spectrum. At the moment I am a full time carer for her but, all that may change when she turns 16.
To add to the whirlwind, chaotic but, extremely interesting and 'keeps you on your toes' lifestyle I have due to my daughter's conditions, I have a list of medical issues myself. The main problems now are I have psoriatic arthritis and fibromyalgia. These are both in the middle of a flare up, making it difficult for me to walk or complete a lot of daily tasks. Then on the odd days I can achieve, anything close to what could be considered a normal daily routine, it takes me numerous days to recover, as I have debilitating fatigue. I am unable to stay awake for longer than 30mins before crashing out again.
I think that's the most interesting facts about my life, sunshine and light are not what most people would use to describe it but, minus the pain I suffer, I have gotten used to the disorganisation and chaos, so I'm not sure I'd want to be without it now. As I said to begin with, it all makes my life extremely interesting and keeps me on my toes.
Comments
-
Welcome to the community @Rapunzel We have a parents and carers category that you might like to look through and also an Autism and Aspergers category.
Scope
Senior online community officer -
Thank you @Sam_Scope, that's really useful to know and I haven't got to spend hours trying to find the information as you very kindly gave me the links too. I shall have an I depth look at all of those categories.
THANK YOU FOR YOUR HELP!!! ??? It is very much appreciated, x -
Thanks for sharing
Brightness
Categories
- All Categories
- 13.3K Start here and say hello!
- 7K Coffee lounge
- 101 Games lounge
- 483 Cost of living
- 4.6K Disability rights and campaigning
- 1.9K Research and opportunities
- 230 Community updates
- 9.6K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 807 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 666 Dating, sex, and relationships
- 374 Exercise and accessible facilities
- 845 Transport and travel
- 32K Talk about money
- 4.6K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.2K PIP, DLA, and AA
- 5K Universal Credit (UC)
- 6.4K Talk about your impairment
- 1.8K Cerebral palsy
- 886 Chronic pain and pain management
- 183 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.3K Mental health and wellbeing
- 328 Sensory impairments
- 832 Rare, invisible, and undiagnosed conditions