Education for my grandson with severe autism
Options
Crispy1
Community member Posts: 1 Listener
Hi. I reared 2 boys with CMT - a neuro condition. Now have some grandchildren with this condition. However, my main concern atm is my 10 yr old grandson with severe autism. His mum has fibromyalgia, and my son is on crutches, having had many ops, many bits of metal work, and fairly frail steucture, and poor balance.
We are hitting a brick wall re what we would like from education system, and what is on offer.Is this a common problem ( as I suspact)?
We love J but he is becoming a danger to both parents, and a bad role model to younger siblings. We would like residential school,.with home visits and holidays,but have been led to believe they would only consider this as a reactive option. After a crisis, serious injury or other serious at risk situations. Even then it is more likely to be into care.
How do other families deal with this situation. Money is the route of all bad decisions. We have none for this.
Thanks.
We are hitting a brick wall re what we would like from education system, and what is on offer.Is this a common problem ( as I suspact)?
We love J but he is becoming a danger to both parents, and a bad role model to younger siblings. We would like residential school,.with home visits and holidays,but have been led to believe they would only consider this as a reactive option. After a crisis, serious injury or other serious at risk situations. Even then it is more likely to be into care.
How do other families deal with this situation. Money is the route of all bad decisions. We have none for this.
Thanks.
Comments
-
Welcome and you will hopefully get some advice soon
-
Hi @Crispy1 welcome to the community!
I am unsure how to advise but I just wanted to wish you all the best in finding the best school for your grandsonDisability Gamechanger - 2019 -
Hi @Crispy1,
Welcome to Scope's online community! It's great to have you here.
I'm sorry to hear about the problems you've been having. Have you tried contacting your local authority or your local Citizens Advice for advice and support?
The National Autistic Society may also be able to offer some support too. They have a helpline which may be of help to you.
@Jack_W, do you have anything to add?Liam -
Hello @Crispy1,
You might want to consider seeking some advice from your local IAS service about options that can be offered - they are in every local authority in England and you can find contact information from this website here https://councilfordisabledchildren.org.uk/information-advice-and-support-services-network.
Hope you can find some of the answers you need.
Jack
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 69 Games lounge
- 385 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.2K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 768 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 586 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 737 Transport and travel
- 31.6K Talk about money
- 4.4K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.2K Talk about your impairment
- 1.8K Cerebral palsy
- 869 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 317 Sensory impairments
- 818 Rare, invisible, and undiagnosed conditions