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Has anyone ever heard of Bickerstaff’s Brainstem Encephalitis?
I am a carer now to my husband who was an extremely fit man last 6th September. On the 7th September 2017 he had a UTI, went into a coma with E-Coli Euro Sepsis. An I dusted coma for nearly two weeks, then his one functioning kidney failed for quite a few weeks needing dialysis. He was then left with a rare condition called Bickerstaff’s Brainstem Encephalitis. This took away his speech and ability to walk. He has had to learn to walk again but he has no balance or coordination. His speech is still very poor. If he had had a stroke he would have immediately had intensive physio and speech therapy. I had to fight for this for him so it was several months before it was available. It is hard as no one seems to know much about the illness. Has anyone ever heard of Bickerstaff’s Brainstem Encephalitis?