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Looking for suggestions
I am looking for answers to find out what could be wrong with my partner Clive.
In August 2017 Clive started getting tingling in his toes which continued for some months and progressively spread through out his feet. His feet were hot and swollen . We put it down to the long hours at work.
In March this year his symptoms rapidly changed and he was finding it harder and harder to walk . He was unable to put his feet flat on the floor due to the burning numbness and chronic pain. His condition continued to worsen and the feet became discoloured varying from all shades of purple to blue. They became icy cold and very sensitive. He can no longer wear shoes or socks and can only wear shorts as the impact of pulling on trousers is too painful.
Throughout this time he has attended several GP appointments and seen a neurologist who asked for him to have a MRI. He has been prescribed gabapentin which hasnt helped. Liquid Morphine also no relief. He was referred to an orthopaedic doctor which has a NHS waiting list of 25 weeks. We decided to get a private consultation costing £260. Before we saw the Dr he was asked to have xrays, Which we felt was pointless as we knew he hadn't damaged bone. But we went to the x-ray department to be told we had to pay £418.
Even the radiographer was confused as she could tell the xrays weren't needed. The orthopaedic doctor refused to see us with out the xrays so we left.
The next day we managed to get an emergency appointment at our GP surgery. The Doctor we saw was fantastic . She booked him for an emergency vascular test, has written to original neurologist . Also she sent him for xrays just to show we did all we told. Free of charge. My partner is continuing to deteriorate and now his hands are becoming effected. I'm watching an active bubbly fun loving man turn into a shell of himself.
He can no longer stand and get his balance. He stopped going out only to appointments in a wheel chair which is too small for him and he doesn't have the strength in his hands and arms to wheel himself around. He is in constant pain and lays with his feet elevated . This used to help but not as much now.
The pain coldness and discoloration has now spread to below his knees. When moving around our home he has to crawl as the pressure from his feet is too much. We are waiting for a hospital bed as he can't manage to go up and down the stairs. We have managed to get an electric scooter but he can only use it for limited times because he can't stand afterwards. It has been a hard struggle and I hope we make it to a diagnosis soon. His moods are bad he gets frustrated and low. Feels useless.
I've been researching his symptoms but nothing really compares 100% He has now had the MRI which shows no abnormalities just wear and tear in neck . He is going for an ultrasound as now been told he has enlarged lymph node in his neck. Any ideas or thoughts would be gratefully received. Some one out there will have the answer just got to find that person.