i desperately need accessible kitchen adaptions made - help
loobyloulou
Community member Posts: 3 Listener
Ive been on group a while now but this is my first post,so hi everyone.i could really do with some help and advice please.i am physically disabled and struggling to advocate for myself this year.i desperately need accessible kitchen adaptions made to my council adapted bunglaow.but have been dealing with council ànd social services staff who have had no previous experience of this type of work.it became a nightmare with all the tooing and froing,meetings,phone calls and emails.i tried to explain my issues with the plans which were totally impractical quite a few times and then became hospitalised earlier thi year with heart problems due to the stress.so I've been putting of restarting the whole process as I also have to find about £1500 for new appliances aswel I can't even face filling out the forms for the grants I need, so I know I couldn't cope with advocating for myself again.can anyone please suggest how I go about finding someone to speak on my behalf who is independent from social services or council.i would be so so grateful.x
Thankyou.
Loobyloulou
Thankyou.
Loobyloulou
Comments
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Hi @loobyloulou
Good Afternoon it’s great to meet you today!!!!!
We have got some good info on “advocates”
I will post a link below for you:
https://search.scope.org.uk/s/redirect?collection=scope-meta&url=https%3A%2F%2Fcommunity.scope.org.uk%2Fdiscussion%2F50977%2Fhow-do-i-get-an-advocate&index_url=https%3A%2F%2Fcommunity.scope.org.uk%2Fdiscussion%2F50977%2Fhow-do-i-get-an-advocate&auth=cqOgHv1DgfZKDW19PVPSfA&profile=_default&rank=1&query=Advocates
Please please let me know if I can help you further??? -
Thankyou Steve,very helpful link,could I just check something.
How do I go about getting a social worker or care co ordinator or mental health worker please?as who do I contact,would it be social services?x -
You absolutely do need an advocate to fight against the council. I've seen one wheelchair user forced out of her kitchen by the 'improvements' imposed despite her protests.
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Thankyou newborn,that's what I'm worried about.i don't really want to go through social services to ask for advocate either unless it's last straw.as my occupational therapist already shows more loyalty to the council,I don't need another!
Do you have any suggestions? -
@Jean_Scope can you help at all?
Scope
Senior online community officer -
Loubilouolu I've tried to find how to get private advocates because Im s are of the power of social workers. How can we get someone in scope to reply?
There's someone else, saying she wants to stand up for herself. Another person has posted for a friend who is able to run a business, but lives at home due to c.p., but his mum hits him
Lots of people need advocates, but it seems like social work and o.ts, that they work for organisations, not for people. You would think they would do part time for extra money, or else in retirement. Or, ones who are disillusioned might do poacher turned gamekeeper so they can really help real people -
Thanks to @Sam_Scope for inviting me to join this conversation.
Hi @loobyloulou
It does sound as if you might need to find an advocate to assist you. A local disability information service or Citizens Advice may be able to signpost you to a local source of advocacy if there is one. Action on Advocacy might also be able to signpost you: http://www.actionforadvocacy.org.uk/index.jsp
I have already responded to @newborn 's other post about freelance advocates at: https://community.scope.org.uk/discussion/comment/195089?
I have also know people with Disabled Facilities Grants issues commission the services of an Occupational Therapist in Private Practice to help fight their corner with the council. However, this is really only worthwhile when there is a major adaptation that warrants the additional investment in the independent OT's fees. To find an independent OT see: https://www.rcotss-ip.org.uk/find
@newborn I am concerned to read that you have a friend with cp who is abused by his mother, this needs to be reported to the police and social services adult safeguarding team.
Best Wishes
JeanJean Merrilees BSc MRCOT
You can read more of my posts at: https://community.scope.org.uk/categories/ask-an-occupational-therapist
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Thanks @Jean_Scope
@newborn can I echo what Jean says, if your friend is being abused, it does need reporting
Scope
Senior online community officer -
@newborn
I am aware of the person you have mentioned. I wasn't informed that the person was being physically abused. Please report if you can or I can help with it.
Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
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