Pyschosomatics
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lozzer25
Community member Posts: 89 Courageous
Can anybody tell me what this is absolutely floored today by neurologist have to have another mri scan to determine what part of my brain has been damaged so may not have cerebral palsy after all confused is an understatement to how I'm feeling I feel as if I'm a hypochondriac don't get this it at all
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Hi @lozzer25Wow, that does sound like a very confusing situation. Did your neurologist actually say that your impairment is psychosomatic? You should not feel like a hypochondriac. I'm here for a chat.
Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
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Trying to infer that I have to go for another brain scan my life thrown into question again can't get my head round it
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Same day I thought I was getting botox too which didn't happen
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Don't understand it all I know is that I have had this symptoms since being very young must of been faking them since then I should be on corrie I'm that good
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@lozzer25 sorry a little confused with your response to Richard, ie did the neurologist mention it was psychosomatic or is this your interpretation?
Either way you have misunderstood what psychosomatic means. There is a strong link between mental health and physical health. Depression, anxiety, stress and phobias are just some of the things which can either cause or exacerbate physical symptoms. This does not mean that those physical symptoms are not real, made up or 'all in your head'.
I don't know enough about it to make an educated suggestion, but as CP is caused by brain damage is it possible that they are just getting an updated information on this damage? (sorry if that is a real stupid question)
I hope this gets sorted out for you soon.As an individual I stood alone.
As a member of a group I did things.
As part of a community I helped to create change! -
I don't know Im just very angry and upset at the moment with it all I fought for a diagnosis to begin with just feels like I'm being dragged from pillar to post again my old practitioners in wigan just swept me under the carpet I was told the signs and symptoms were there but the medical term was never used that was when I was put on baclofen the first time I heard about was when a doctor put it on a hearing test referral just my whole life has been put into question I was just beginning to learn to tolerate it and then something else gets thrown into the mix I was thought I was getting botox that day didn't get botox as she wouldn't do it just got sent home with a load of confusion
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Hi @lozzer25I can completely understand where your anger and frustration is coming from. I think it would be good to have the MRI scan and then when the results are back your neurologist may have a better idea of how to progress. I understand that the feeling of being passed from pillar to post is really annoying. When were you first diagnosed?
Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
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When I was 25
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Perhaps the neurologist is requesting the MRI scan to confirm that you received the correct diagnosis when you were 25. I know it is easier said than done but try not to worry. I am more than happy to talk things through with you.
Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
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I don't know I honestly think the doctors was sick of seeing me thank you that's nice to know I just can't comprehend it the treatment I received in wigan was appalling
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Is Wigan where you were first diagnosed with CP?
Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
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Hi @lozzer25I would think the MRI scan would be to confirm the original diagnosis that you received at Wigan. What was wrong with they way Wigan treated you?
Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
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Richard_Scope said:Hi @lozzer25I would think the MRI scan would be to confirm the original diagnosis that you received at Wigan. What was wrong with they way Wigan treated you?
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Hi @lozzer25Sometimes the medical treatment and advice we receive are not as good as could or should be. I have experience of that too. How are you now? Have there been any updates at all? I'm really happy to talk things through with you
Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know. -
Richard_Scope said:Hi @lozzer25Sometimes the medical treatment and advice we receive are not as good as could or should be. I have experience of that too. How are you now? Have there been any updates at all? I'm really happy to talk things through with you
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There is a cutoff point for negligence claims so I believe. I also tried several years ago with no success. Is the appointment to the second neurologist for a second opinion?
Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know. -
Don't have a clue the neurologist I saw first has reffered me to him/her
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Hi @lozzer25Perhaps it is for a second opinion. I hope you hear back soon, waiting can be really tough.
Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know. -
Richard_Scope said:Hi @lozzer25Perhaps it is for a second opinion. I hope you hear back soon, waiting can be really tough.
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