I need some advice on how to cope with Restless legs syndrome — Scope | Disability forum
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I need some advice on how to cope with Restless legs syndrome

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LadyRichards55
LadyRichards55 Community member Posts: 2 Listener
edited October 2021 in Rare, invisible, and undiagnosed conditions
Hi, my name is Maria and I've been struggling recently with RLS, not sleeping, pacing the room etc. Can anyone odder some advice on how to cope? Thanks
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  • Antonia_Alumni
    Antonia_Alumni Scope alumni Posts: 1,780 Pioneering
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    Hi @LadyRichards55


    Welcome to the community, thank you for joining us.
    Please have a look at our quick guide about our community and feel free to join in our recent discussions  .  RLS UK  offer some good tips on managing RLS.

    If you have any questions, please let us know, we are happy to help.  
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  • AnkyieSpon
    AnkyieSpon Community member Posts: 138 Pioneering
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    Hi @LadyRichards55 welcome to the community. I started getting RLS over a year ago and it is sooo horrible. As soon as I relaxed it started. The only thing that helped me was Amitriptyline. It helped for a year so I had dose increased which unfortunately affected my gastritis so now I am on Gabapentin which isn't as good. Hope that helps.
    Keep us updated. 
    Tina 
    (Ankyie Spon)
    I'm a Pain Warrior
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  • LadyRichards55
    LadyRichards55 Community member Posts: 2 Listener
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    Thank you, I've been prescribed amytriptaline before for sleep problems, I didn't suffer too much with RLS then, perhaps that was the reason why, will try them again.
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  • underdiagnosed
    underdiagnosed Community member Posts: 30 Courageous
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    Hi I've the same problem but with increasing mobility probs as well. I asked my GP what I could do and he suggested stretching my legs every night before I go to sleep. I do this very thoroughly and hold and repeat my stretches. This has really helped and I haven't had any major probs with it since. Might be worth a try.
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