Medical intervention in adulthood — Scope | Disability forum
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Medical intervention in adulthood

lucyscoobs
lucyscoobs Community member Posts: 2 Listener
Hi there, I was hoping to get some advice on medical intervention for cp in adulthood.
I'm 25 and was diagnosed with cp when I was 3. I had quite a bit of medical input as a child but as soon as I turned 16 I've had nothing. I was discharged from physio, my speciallis and any investigationI I was having at the time stopped.
I carried on as normal, plodded along and did my best and struggled my way through the past 9 years with help from only family. 
It wasn't until last year when they completely stopped my disability benefit that I realized that this is crazy. I had no evidence to support my struggles and I was penalised massively for this. I was being told that what I was claiming was a lie and my daily pain was non existent. 
I realised then that my pride had not just scuppered me for any financial help but for medical help too. I pretend I'm "normal" but in actual fact, I'm in pain ALL of the time and I'm getting more exhausted as time goes by.
I'm hoping that someone has been in a similar situation as mine but has accessed help. Where do I start? Something has to give but I'm sure there's something out there for me? Any advice would be so much appreciated. TIA.

Comments

  • Richard_Scope
    Richard_Scope Posts: 3,638 Scope online community team
    Thanks for your post and the warmest of welcomes! If I have read your post correctly you have CP and are not receiving any benefit, such as PIP? The first thing I would do is make a PIP claim (you should have been assessed and moved on to this automatically). You can do this as you have been diagnosed with CP. I would see your G.P. and ask for a physiotherapy referral. Be prepared referrals can take a while. You can also be referred to a neurologist.
    I am interested to hear more so I can provide as much help to you as possible. By the way, you are 'normal':smile:


    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

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  • lucyscoobs
    lucyscoobs Community member Posts: 2 Listener
    Hi @Richard_Scope
    Thank you so much for your reply.
    I received DLA up until last year but didn't qualify for Pip. I'm currently going through the appeals process which is going pretty horribly really. I have nothing to back my claim up and can't access any medical evidence. The whole process has made me feel more disabled than I ever have.
    I will definitely do what you have suggested although I doubt it will help for my pip appeal as it's being heard end of January. Regardless it will be great to maybe manage my pain so thank you ?
  • Richard_Scope
    Richard_Scope Posts: 3,638 Scope online community team
    Hi again @lucyscoobs
    As you received a diagnosis you G.P. can and should provide you with all of the medical evidence. We have lots of information on PIP also we have a helpline on 0808 800 3333 my colleagues on the helpline have lots of PIP knowledge. Stay in touch.

    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 

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