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Too many doctors

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cracker
cracker Community member Posts: 324 Pioneering
in Disability rights and campaigning
In my search for getting better, I have been to all too many specialists. Each one has something different to say, to prescribe. I will depend on my GP much more, take his advice (he will refer me on if need be), and stop all that searching.

He said he just wants me to be as comfortable as possible. No thought of getting better or finding the "Cure". He is a realist.

I feel relieved that I no longer will conduct a search.
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  • Waylay
    Waylay Community member, Scope Member Posts: 973 Pioneering
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    Yes. I think a lot of us go through this.

    Find cure, make it better, fix the problem, focus all your energy and attention on that. But eventually you've tried all the things available to you, and you realise that your life has been on hold while you've gone from doctor to consultant, programme to clinic, treatment to medication to therapy. You haven't been living!

    Accepting your life the way it currently is doesn't mean that you've given up. There may be medical advances in the future, maybe even a cure; you can still keep an eye out for things like that. Meanwhile, make a new life. It probably won't be like your old life, but it can be just as rich and rewarding - just different.
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  • cracker
    cracker Community member Posts: 324 Pioneering
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    Thanks, yes, my life on hold, still trying to believe that I can overcome the disabilities and go back to being fully functional with no pain or deterioration of my bones. All that energy seeking the impossible and missing out on my present life.

    Your words helped me. A   piece of wisdom.
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  • wilko
    wilko Community member Posts: 2,458 Disability Gamechanger
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    When we go to our GP some of us expect a quick fix an explanation or cure for our symptoms, the reality is a prescription or referred to a hospital for more investigation. So the bottom line in some cases our diagnosis becomes a shock or a confirmation of what our GP or ourselves have suspected all along. Having our diagnosis is not the end of the world it’s a new chapter a new start in our lives, changes will have to be made decisions made. And having the support from family friend and your local NHS services is going to our first port of call.  So if you have a good relationship with your GP who understands your situation or not after all they are not specialists hence the referrals then be at peace know you are being care for.
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  • sheZZa
    sheZZa Community member Posts: 259 Pioneering
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    I told my neurologist once that I had had enough of tests and trying to find a cure. I wanted to draw a line in the sand accept my situation and move on. She said it was a good attitude as some people spend their life looking for an answer or a cure but it just isn’t there. Then she looked at my test results, raised her eyebrows and said she wanted to try one more treatment. I was surprised and said okay. I had that treatment twice. The first time was slightly successful but the second time not at all. I went on to question her about some things she’d written in a report about me.  My gp did too. She immediately discharged me. My gp and I were furious and my gp said I should complain to pals. My gp said at the time that you can go and see lots of consultants who are ‘expert’ in their field but unlike your gp they don’t know your whole story. They see you for 30 minutes at a time and then decide what’s next. She does have a point and I do have a supportive gp. 
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