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Fibromyalgia and diet

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  • DavidJohn1984
    DavidJohn1984 Community member Posts: 99 Courageous
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    Hey @debbiedo49,

    I think it’s classed as a swallowing difficulty.

    The Gastro Doctor isn’t sure what has caused it from the long list, acid reflux, Fibromyalgia, the gastroscope camera, the Cyclical Vomiting or the new thing i’m being tested for is acute intermittent porphyria that causes temporary and permanent paralysis. 

    I stick now to foods that are natural and haven’t been processed in any way,

    Oat milk was my favourite, but it’s a grain and now I can’t consume it. So i’m on Coconut milk and soy.
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  • debbiedo49
    debbiedo49 Community member Posts: 2,904 Disability Gamechanger
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    I tried oat milk I wasn’t keen on it. I haven’t tried coconut milk thanks 
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  • debbiedo49
    debbiedo49 Community member Posts: 2,904 Disability Gamechanger
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    I also have issues with acid reflux and swallowing. I’ve been meds’ for years. My GP just says oh you have a narrow throat and large tonsils. I choke fairly easily on a tiny crumb and then it’s all over as I vomit. Not all the time as I’m very careful but I have to avoid trigger foods. It’s ridiculous. I asked to get my tonsils out to help this and was told no even though I have sore throats and coughs a lot as well. 
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  • DavidJohn1984
    DavidJohn1984 Community member Posts: 99 Courageous
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    @debbiedo49, 

    I had my tonsils out at age 5 and I still have this problem.

    especially with like you say anything that has tiny crumbs in it.

    my acid reflux on started after I had the gastroscopic camera down my throat.

    i had never experienced it before.

    i just had the chronic Vomiting and IBS
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  • debbiedo49
    debbiedo49 Community member Posts: 2,904 Disability Gamechanger
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    I don’t have chronic vomiting oh dear 
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  • DavidJohn1984
    DavidJohn1984 Community member Posts: 99 Courageous
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    @debbiedo49

    I here that Fibro patients have lots of digestive problems.

    I have Cyclical Vomiting Syndrome which has a higher prevalence in FMS 

    Fibro is a never ending nightmare ?

    but it the worst part of it is the CVS

    Do you suffer from Chostochondritis at all?

    Inflamation of the rib cartalidge?
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  • debbiedo49
    debbiedo49 Community member Posts: 2,904 Disability Gamechanger
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    Don’t think so but this past week I’ve been avoiding hugs as my ribs felt tender oh dear 
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  • DavidJohn1984
    DavidJohn1984 Community member Posts: 99 Courageous
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    @debbiedo49

    Yeh keep an eye out

    you’ll notice especially when you cough or sneeze

    mine gets so severe I sneeze and poof the lights go out ??‍♂️
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  • debbiedo49
    debbiedo49 Community member Posts: 2,904 Disability Gamechanger
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    Nah I'm fine thanks take care 
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