How did you all learn to cope after having a stroke? — Scope | Disability forum
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How did you all learn to cope after having a stroke?

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laineylou
laineylou Community member Posts: 1 Listener
edited October 2021 in Rare, invisible, and undiagnosed conditions
Hello all. I had a stroke in Oct last year. This has left me with left sided weakness, blurred and double vision and also a brain aneurysm.  I've had brain surgery but they can't guarantee success.  I've had a complete life change in one go.
I feel tired all the time and fed up with everything. I've always been working and driving and completely independent.  Now it's a 100% turnaround. 
How did you all learn to cope ?
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  • thespiceman
    thespiceman Community member Posts: 6,388 Disability Gamechanger
    edited March 2019
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    Hello @laineylou Pleased to meet you welcome.

    Thank you for joining  and sharing. Sorry to hear this. You come to the right place for support, advice and information.

    Most important of all friendship, care and share.

    I am one of the team of the community champions who guide and advise, help new members who join the forum.

    To answer your question . I was born with a genetic disorder and have mental health issues. We as a community just support each other.

    Offer words of comfort, solace. Have a look around our forum, website.

    You will meet many members like your self.

    Feel free to join in discussions. Need a chat, feel lonely always some one here.  Ready to listen.

    Need a friend plenty on the community. Always happy to be one anytime you wish to.

    Pleasure to meet you.

    Take care.

    @thespiceman

    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
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  • Ami2301
    Ami2301 Community member Posts: 7,942 Disability Gamechanger
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    Hi @laineylou welcome to the community! I am sorry to hear what you've been through.

    Last year completely turned my world upside down. One day I was able to walk (not perfect but I could) then the next day I became critically I'll and woke up in hospital teo days later unable to move.

    I stayed in hospital and a specialist neurological rehabilitation centre for 9 months. 

    I can choose to focus on what happened but I don't want to choose that route. Cliché as it sounds, all of what happened taught me that life is too short and I need to make the best out of what I can do.

    Do you have any hobbies?
    Disability Gamechanger - 2019
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  • Antonia_Alumni
    Antonia_Alumni Scope alumni Posts: 1,780 Pioneering
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    Welcome to the community @laineylou thank you for sharing this with us. I'm sorry to hear this. How are you doing today? 
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  • cursors
    cursors Community member Posts: 1 Listener
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    Hi laineylou, sorry to hear you are feeling down. 16 years ago I had a massive stroke which left me unable to speak for a long time. I have right sided hemiplegia, aphasia, homonymous hemianopsia, not able to read or write, cannot feel anything on my right side and I get incredibly tired all the time. I am very very slow when I speak and I do not understand what people are saying if somebody is speaking quickly. But I am so happy now compared to when it happened. I've had lots of help from family, medical personnel and the Internet. There are so many things to feel grateful for. Even five years ago new hardware/software are making things more user-friendly. When I go to YouTube I use the subtitles and I can understand what people are saying, I wouldn't understand without it. You will find that slowly over time you will be less tired, but it does need time :-) Have you spoken to your doctor to see if there's medication you can try, for me 10 years ago I was allowed to try donepezil and modafanil.
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  • Aran
    Aran Community member Posts: 12 Courageous
    edited March 2019
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    Hi and welcome @laineylou sorrry to hear about your situation, have you tried any groups for people who have had strokes 

    Take care Aran :) 
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