CP: Im interested in how things have changed for others and would like to share experiences & ideas
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JackyO
Community member Posts: 1 Listener
Hello. Thought Id join this group because my CP has become a problem with age. Im interested in how things have changed for others and would like to share experiences and ideas
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Hi @JackyO welcome to the community! You may like to chat with our Cerebal Palsy Specialist Information Officer - @Richard_Scope, he is a lovely gent who has Cerebal Palsy too. Let us know if we can help you further
Disability Gamechanger - 2019 -
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Hello @JackyO welcome to the community. I’m Emma one of the Community Champions. I have Cerebral Palsy as well. Lovely to meet you here,
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Hi @JackyO
Thanks for your post and another very warm welcome to the community.
I live with quadriplegic CP and now have much more pain in my joints than when I was younger. People living with CP can experience 'physiological burnout' due to the stresses and strains that we place on our limbs/joints when we move.
I will include some information on Ageing with CP and Post impairment Syndrome
Would love to talk further
Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know. -
We also have a thread that I find useful Things that you have found useful for managing your CP
It's quite a large discussion.
Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know.
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