Any other TPN users on here?
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Toejam
Community member Posts: 10 Connected
Hey,
I'm a 32 year old suffering from severe crohn's since I was 16. Had major surgery to remove my whole large bowel and was giving an ileostomy. Living life with crohn's from 16 to 22 wasn't easy but I could manage a normal life, family, work and everything else... Then bam! Once I hit 22 my health my started to deteriate even more. I was then diagnosed with intestinal failure and have been on TPN for the last 10 years.
So now it's a combo of crohn's, ileostomy, TPN, anemia and everything else that comes with it.
Any other TPN users on here?
Any other TPN users on here?
Comments
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Hi @Toejam welcome to the community! Our fabulous senior community Officer @Sam_Scope who has a ileostomyDisability Gamechanger - 2019
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Welcome to the community @Toejam how are you doing today? You may be interested in joining our dealing with chronic pain discussions.
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Hi @Toejam
I have ulcerative colitis and an ileostomy, I havent had experience of TPN though.
Have you seen the charity Crohns and Colitis UK? They are a great charity and they have lots of support.Scope
Senior online community officer -
Sam_Scope said:Hi @Toejam
I have ulcerative colitis and an ileostomy, I havent had experience of TPN though.
Have you seen the charity Crohns and Colitis UK? They are a great charity and they have lots of support. -
Hi @Toejam
I have Ulcerative Colitis just gone through Ileostomy surgery been diagnosed since 2019 near 5 years. Came as a shock yo me too for surgery but where I was I went into hospital and after various biological treatment nothing worked so had to go through surgery. So I am just learning stoma and living with it. Still in hospital now as we speak. I am member of Chrons and they are great help with my Ulcerative colitis.
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