How do you feel motivated?

hi @UmaPuma and welcome to the forum, My name is Kate and while I am a parent adviser here at the navigate service at scope- I am also a parent to a beautiful daughter called Eve. Eve is now 18, she is a full-time wheelchair user, she has Cerebral palsy and epilepsy. Having a disabled child and working full time is very difficult, trying to get to all of the appointments it so hard as is trying to keep going. 


I really started taking it a day at a time, as your daughter has a diagnosis of disability your employer should be able to give you time off for appointments. 
It does get easier, and once Eve was in school- she attended mainstream, the physiotherapists would go in and teach the one to one staff how to do therapy with her, therefore taking some of the load off me. 


The appointments do settle after some time and they start to get less once all interventions are in place. 
I started to practice mindfulness in the evenings when she was asleep and also sort support from a place like Scope where I was able to chat with other parents- I found this the motivation needed, there are a lot of parent forums on Facebook and other places and I was managed to get support from others in the same situation.


For me, the early years were the most stressful, like I said previously- once the interventions were in place it started to calm down. 
What I would say is really take it a day at a time, if you are feeling very overwhelmed it may be a time to talk to your GP, don't do this alone- or feel you have to be superwoman. 

I am not sure how long ago your Son/daughter was diagnosed but we have a service here at Scope, called Navigate. it is for parents of children who have had a diagnosis in the last year, we can offer emotional support for a period of six weeks if you live in England or Wales, here is the link if you feel it may be of use to you. 

https://www.scope.org.uk/navigate


I wish you well 

Kate