Spina-bifida and problem getting wind up- anyone experienced a similar thing?
Chris8
Community member Posts: 1 Listener
Hello my name is Chris and I have a 4 year old daughter with Spina-bifida and hydrocephalus.
She doesn't have control over her bladder/bowel movements and is a wheelchair user.
She has problems with getting her wind up. Sometimes it causes her to throw up - a lot!
My question is this : Is there anybody else in this forum who has experienced similar problems and if so then what did you do to alleviate this nagging problem?
I fear it's only gonna get worse as she grows.
Any help is much appreciated - thanks guys!
Chris.
She doesn't have control over her bladder/bowel movements and is a wheelchair user.
She has problems with getting her wind up. Sometimes it causes her to throw up - a lot!
My question is this : Is there anybody else in this forum who has experienced similar problems and if so then what did you do to alleviate this nagging problem?
I fear it's only gonna get worse as she grows.
Any help is much appreciated - thanks guys!
Chris.
Comments
-
Hello @Chris8 Pleased to meet you welcome.
Thank you for joining and sharing.
I am one of the team of community champions. We guide, advise and help new members who join the forum.
There will be members of our community or a member of our team be able to advise.
Please have a look around our website.
Please ask if we can help and advise with anything. Some one will know from our community or a member of our team.
Please take care.
Community Champion
SCOPE Volunteer Award Engaging Communities 2019
Mental Health advice, guidance and information to all members
Nutrition, Diet, Wellbeing, Addiction.
Recipes -
Hi @Chris8 and a warm welcome to the community! I hope you are able to gain advice from the community about this. Have you spoken to a medical professional regarding this? Please do let me know if there is anything I can do to help
Scope -
Hi @Chris8 and welcome to the community.
my daughter is a full time wheelchair user and we sometimes have problems with wind with her.
we are lucky she can stand holding onto her wheelchair so we stretch her about a bit and she generally feels relief from that- i get her to stretch her arms in the air and move her waist from side to side.
The other thing is the GP, a lot of kids who are wheelchair users are on gaviscon and similar products to relieve the pain and provide some relief.
Kate
Brightness
Categories
- All Categories
- 13.3K Start here and say hello!
- 6.9K Coffee lounge
- 97 Games lounge
- 479 Cost of living
- 4.6K Disability rights and campaigning
- 1.9K Research and opportunities
- 229 Community updates
- 9.6K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 805 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 662 Dating, sex, and relationships
- 373 Exercise and accessible facilities
- 835 Transport and travel
- 31.8K Talk about money
- 4.5K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 5K Universal Credit (UC)
- 6.4K Talk about your impairment
- 1.8K Cerebral palsy
- 882 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.3K Mental health and wellbeing
- 328 Sensory impairments
- 830 Rare, invisible, and undiagnosed conditions