Disabled people
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

Community updates

• Read over some of our recent discussions and have your say!

• Upload a new profile picture and give your profile a personal touch.

• Get the latest information on issues relating to coronavirus.


Audinut70Audinut70 Member Posts: 30 Courageous
edited August 2019 in Disabled people
I would like to thank everyone for the help I will possibly need, and hope that I can help others, I have a rare lung disease called COP, alongside anxiety and depression and mild paranoia. 
COP is cryptogenic organising pneumonia, and is a nightmare disease. It is treatable but not yet curable. 


  • Chloe_ScopeChloe_Scope Administrator Posts: 10,026 Scope community team
    Welcome to the community @Audinut70, it's great to have you here!
    Community Partner

    Tell us what you think?
    Complete our feedback form to help us to improve your community.
  • Ami2301Ami2301 Community champion Posts: 6,763 Disability Gamechanger
    Hi @Audinut70 welcome to the community! I've not heard of COP before, would you mind telling us a bit more about it? :)
    Community Champion
    Disability Gamechanger - 2019
  • Audinut70Audinut70 Member Posts: 30 Courageous
    Thanks for the swift reply. 
    COP is a lung disease which is attacked by the immune system, finding why is the problem with this disease. I have had 3 bronchoscopies and 5 biopsies but still cannot find what my immune system is attacking. 
    It leaves you feeling fatigued and constantly tired with no energy, the easiest of tasks is now almost impossible for me, I get out of breath very quickly. 
    Waking up is not very nice either, pain and fatigue means I sometimes can not get up. 
    Then there is the medication,too many to list, but all affect my muscle, which has deteriorated vastly, skin so thin I can not scratch without it peelings off to flesh. I could go on forever but hope it gives a general idea. 
    I will say that changing gp's is a nightmare as very few have heard of it. 
  • AilsAils Community champion Posts: 2,268 Disability Gamechanger
    Hi @Audinut70 and welcome to the Community.  It is nice to meet you and thank you for sharing with us.  I'm sorry to hear of your health struggles, but you have come to the right place for support and to meet new friends.  I hope you enjoy your time on the Community.  If there is anything we can help/support you with then please just ask.  All the best.  :smile:
    Winner of the Scope New Volunteer Award 2019.   :)
  • Audinut70Audinut70 Member Posts: 30 Courageous
    I have a link to the only forum for cop if it is helpful to anyone. 
    [email protected] It is a free forum, you just need to register but it is a specific forum for cop sufferers. I hope it is helpful to anyone. 
  • AilsAils Community champion Posts: 2,268 Disability Gamechanger
    Many thanks for that, @Audinut70.  I'm sure members will find the link helpful.  :smile:
    Winner of the Scope New Volunteer Award 2019.   :)
  • steve51steve51 Community champion Posts: 7,125 Disability Gamechanger
    Hi @Audinut70

    Good Morning & Welcome to our Community/Family.

    I am also one off the Community Champion’s here at Scope.

    Yes I have also got a 
    rare health condition.

    I can also relate to your post.

    I do hope that you have got a good start to your day ????

  • Audinut70Audinut70 Member Posts: 30 Courageous
    Some are better than others, I have had 3 years to get used to it, thanks anyway 
Sign in or join us to comment.