Going to gym & receiving PIP - Page 2 — Scope | Disability forum
Please read our updated community house rules and community guidelines.

Going to gym & receiving PIP

2»

Comments

  • Friendlyghost
    Friendlyghost Community member Posts: 28 Courageous
    Tried to get help from GP. 
    But despite having gone to special school had operations and repeatedly being put back in the support group of benefits 
    And now only just walking with 2 sticks when in my 20s I could manage with non if steps had rails.. He still says I don't have cp im an attention seeking time waster... His stupidity is not limited to this. He also left me unable to eat anything but wgewtabux for 3 years and now dose not believe the specialist diagnosis and gave me drugs I had an allergic reaction to and was told this by Dr's in a and e yet he says I'm not allergic it's to rare. 
    But the surgery manager says I can't leave and even if I could I can't catch a bus any more because I don't have the strength to push my manual chair that far. 

    Job coach was later fired for bullying but her attitude was only a bit  harder than every other job center staff I have ever met. 
    I tried to get jobs but was always turned down with the reply your not suitable your disabled.. My health is now 10% of what it was then. And this is the rules I was given by job center.

    1 if I refuse to work a minimum of full time 6 days a week then I can't go out more than once a week. And if I do I will be sanctioned. With full benefit stop
    2 all appointments in 1 week must be changed so that they are all in 1 day.
    3 no person is allowed in my house for more than 20 mins unless they are a carer
    4 if I do any activity even in the house for longer then 20 mins or go in the garden and she finds out then she would sanction me 
    5 excersise class is to be stopped and no other social is allowed unless I'm working first 
    6 work Must be traveled to not from home because its about social inclusion. 
     Her reason being if I can do anything for 20mins I'm clearly capable of full time. 

    No one comes to my house for other safety reasons I'm fighting the council to get mould and rats in drains and loft fixed
    But when I broke the rules about social things last year I was followed by dwp and re assessed even though I stayed in the support group after that I try to stay in as much as I can so I won't get sanctioned. I don't follow her rules like she wants.. But I don't do much. Outside. 
  • Richard_Scope
    Richard_Scope Posts: 3,638 Scope online community team
    Hi @Friendlyghost
    Great to meet you! The DWP cannot sanction you for attending physiotherapy or associated exercise classes that are deemed by your GP as beneficial for your impairment and or mental wellbeing. An hour per week is not grounds for a sanction.

    The DWP also cannot dictate who, when and where you socialise. 
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
  • Friendlyghost
    Friendlyghost Community member Posts: 28 Courageous
    They very much are dictating everything!
    My GP takes their side and refuse to do anything for me. He wants me never to go to the surgery unless I have symptoms that could only be cancer. He wants my asthma medication stopped because I'm only fat and lazy.. And at my last asthma clinic he came out into the waiting area to throw me out of the sergery but the practice sister in charge of asthma things told him to take his head out of his bum and leave me alone. 

    Not knowing what any reasonable official limits for activity while keeping your benefit are I have pretty much just stayed in. I would love to be out at work full time. But I'm not strong enough any more. 
    I defiantly appreciate the advice here. Because I feel like I should challenge them and have more life but I'm afraid to do it. 

    Thank you for all the replies :) 
  • April2018mom
    April2018mom Posts: 2,882 Disability Gamechanger
    Tried to get help from GP. 
    But despite having gone to special school had operations and repeatedly being put back in the support group of benefits 
    And now only just walking with 2 sticks when in my 20s I could manage with non if steps had rails.. He still says I don't have cp im an attention seeking time waster... His stupidity is not limited to this. He also left me unable to eat anything but wgewtabux for 3 years and now dose not believe the specialist diagnosis and gave me drugs I had an allergic reaction to and was told this by Dr's in a and e yet he says I'm not allergic it's to rare. 
    But the surgery manager says I can't leave and even if I could I can't catch a bus any more because I don't have the strength to push my manual chair that far. 

    Job coach was later fired for bullying but her attitude was only a bit  harder than every other job center staff I have ever met. 
    I tried to get jobs but was always turned down with the reply your not suitable your disabled.. My health is now 10% of what it was then. And this is the rules I was given by job center.

    1 if I refuse to work a minimum of full time 6 days a week then I can't go out more than once a week. And if I do I will be sanctioned. With full benefit stop
    2 all appointments in 1 week must be changed so that they are all in 1 day.
    3 no person is allowed in my house for more than 20 mins unless they are a carer
    4 if I do any activity even in the house for longer then 20 mins or go in the garden and she finds out then she would sanction me 
    5 excersise class is to be stopped and no other social is allowed unless I'm working first 
    6 work Must be traveled to not from home because its about social inclusion. 
     Her reason being if I can do anything for 20mins I'm clearly capable of full time. 

    No one comes to my house for other safety reasons I'm fighting the council to get mould and rats in drains and loft fixed
    But when I broke the rules about social things last year I was followed by dwp and re assessed even though I stayed in the support group after that I try to stay in as much as I can so I won't get sanctioned. I don't follow her rules like she wants.. But I don't do much. Outside. 
    And this is why I don’t claim benefits. I have never applied for any benefit other than DLA (enhanced mobility only) so we could pay for a wheelchair for my son who cannot walk at all. Virtually everything else, I pay for out of pocket. Or I fundraise. Have you tried looking at fundraising events a to z online? I even pay for his pairs of shoes and braces using my earnings. 
  • Friendlyghost
    Friendlyghost Community member Posts: 28 Courageous
    April I'm not well enough to work even part time :( I have no choice but to claim them.
    I wish I could work instead. 
    As far as I know you can only fundraise for children's things. And I'm 42 haha ? 
    Anyway I wouldn't kmow where to start and don't think I'd deserve it anyway. There's nothing special or important about me. 
    While I was well enough to get on busses and trains to travel I applied for jobs and was always told we don't want you your disabled. 
    Now I can hardly move im a lazy scrounger who should be in full time work?!

    I wish.

    . (has literally spent the last 48 hours asleep because I didn't have the strength to sit up.from the allergic reaction to the mould and other stuff here.. )

    I honestly feel like there's no point in trying any more I'm to disabled for work to well for help or just lying as far as every official person I meet is concerned.. And I don't and never have tell lies. They don't want to do their jobs. I kmow some were fired but their replacements are no better.
    . I want a job and a life. And have no idea how to get it now I can't walk or push manual chair effectively. Enough to get on a bus.
    :(
  • April2018mom
    April2018mom Posts: 2,882 Disability Gamechanger
    April I'm not well enough to work even part time :( I have no choice but to claim them.
    I wish I could work instead. 
    As far as I know you can only fundraise for children's things. And I'm 42 haha ? 
    Anyway I wouldn't kmow where to start and don't think I'd deserve it anyway. There's nothing special or important about me. 
    While I was well enough to get on busses and trains to travel I applied for jobs and was always told we don't want you your disabled. 
    Now I can hardly move im a lazy scrounger who should be in full time work?!

    I wish.

    . (has literally spent the last 48 hours asleep because I didn't have the strength to sit up.from the allergic reaction to the mould and other stuff here.. )

    I honestly feel like there's no point in trying any more I'm to disabled for work to well for help or just lying as far as every official person I meet is concerned.. And I don't and never have tell lies. They don't want to do their jobs. I kmow some were fired but their replacements are no better.
    . I want a job and a life. And have no idea how to get it now I can't walk or push manual chair effectively. Enough to get on a bus.
    :(
    What about volunteering or a desk job? Don’t give up yet. Have you researched your local community college or not? Are you a member of any clubs or not?
    What about art? I’m sure you can do that for a living! Look on YouTube or Google for ideas. https://www.nhs.uk/conditions/social-care-and-support-guide/introduction-to-care-and-support/
    This is a useful guide to what is available out there. Have a read. 
  • Friendlyghost
    Friendlyghost Community member Posts: 28 Courageous
    April
    I'm Not allowed to study at the local collage unless they are forced to take me by the job center. They said if I applied for any courses I had to agree to stay at my desk all day and not go into any public areas so the other students were not upset  at the sight of how I walked or a wheelchair
    then changed their mind to say I was not welcome at all unless they were forced to have me by the job center. 
    Wich they can not refuse 
    I have thought of volunteering even though I get threats from the job center but I need an electric wheelchair small enough to be allowed on a bus to travel now. I hoped I could get well enough to use a manual but the job center said they will stop all my benefits if I'm seen at any physio and my general heath has deteriorated huge amounts due to the mould in the flat  and rats and mice in the drains and loft that the council says is not a problem and won't fix or give me permission to save up and hire people to fix. So it affects my asthma allergies and immune problem and I feel like I'm dying most days but they say I'm lying. 
    I try to just keep going and pretend it's fine. But it's not. I end up so weak I sound like I have had a stroke.  I have written to environmental services and they said the council can choose what's worth doing. 
    I have written to the mp. 
    She sent another rat company and the same council servayor back. 
    The council servayor says I'm just dirty and there is no proplblem and if I complain about him he will say I'm abusive and have me evicted. 
    The rat guy admitted that it still stunk here but that it wasn't the councils problem and there was nothing I would ever be allowed to do. 
    And my GP refuse to write any letters or see me unless I have a lump that might be cancer. He says I'm nothing but an over weight attention seeker and says I don't have any of the things I have been diagnosed with I just put it on for sympathy.. 
    And I can't teavle far enough to even go and ask for another servery to take me. Because even getting a taxi I struggle to walk to the door of places if the floor is wet or it's windy. There's only 1 taxi company in the whole town who will take a wheelchair and it's 3 times the price of anything else.. 

    So right now I'm just feeling like I have no choices at all. 
    Since applying to move house would cost me half my benefits I'd get changed to universal credit and if the council lie to me and say the property has not had anti fungle treatments when it has I could die I have a life threatening allergy to anti fungle everything its as rare as an allergy to paracetamol. And Dr's came from all corners of the hospital to see it in real life.. Students and fully qualified.. 
    But my GP says I'm lying even though when they print out my details it says spastic diaplegia 
    Asthma
    Allergies to the anti fungal and some other meds 
    And my spontaneous disorder.. He says I'm a lier.. 
    :(
  • April2018mom
    April2018mom Posts: 2,882 Disability Gamechanger
    Seems like your only option is to go to the media with your story. Sell it as a human rights feature to catch their attention. 
  • Friendlyghost
    Friendlyghost Community member Posts: 28 Courageous
    Thank you poppy. 

    It makes me feel better to kmow they shouldn't. 
    But they have twice before so I'm weary.. 
  • Friendlyghost
    Friendlyghost Community member Posts: 28 Courageous
    And poppy I was followed. They admitted it when I left a sign language course because of it. The tutor rang them to ask what thry thought they were doing everyone was amazed they were following me for a library beginners sign language and a wea textile beginners. I joined to help my mental heath after their threats. :(

  • Friendlyghost
    Friendlyghost Community member Posts: 28 Courageous
    There was no reason for the surveillance or any evedence against me on my file only that they were following. 
    I haven't heard back from them officially about the fit for work form I sent back there has been no face to face appointment or anything. 
    If this forum allowed you to attach vidio I would so that you could see I'm no scrounger. 
    If I post similar things on the boards it's because it makes me feel less anxious to hear many people's opinions on what's acceptable. Since all of my friends are either able bodied and in work and don't kmow the rules or were told the same as me but don't stick to it 
    But they have much more help and access to equipment than I ever have.. 
    I live alone so I don't want to loose my flat.. Even though its currently not helping my health.. I'm sorry if I have offended anyone. 
    I'm just miserable & confused.. I'm no scrounger. I follow their rules I want to be in work but have genuinely lost 80% of my health and mobility when I did go to the library or the textile class everyone said I was brave to try and was surprised I didn't have an electric wheelchair.. 

    Anyewy
    Sorry to have been a bother. 
  • Adrian_Scope
    Adrian_Scope Posts: 10,821 Scope online community team
    Hi @Friendlyghost, you're not a bother at all! I'm sorry you're feeling miserable at the moment. I just wanted to add that as Richard and Poppy both said, the DWP can't dictate how and wear you socialise nor sanction you for attending physiotherapy or other classes that are meant to help you! I'm really sorry you've been made to feel that way.

    How did you get on with your textile class? 
    Community Manager
    Scope
  • Friendlyghost
    Friendlyghost Community member Posts: 28 Courageous
    Thank you Adrian. 
    Help is the one thing they have NEVER done.. :(

    Honestly I loved that class. And the people in it! .. Can't say I'll ever be any good at sewing but can honestly say spending days up to to my elbows in dye with friendly people  was very good for my mind :)
  • Adrian_Scope
    Adrian_Scope Posts: 10,821 Scope online community team
    Have you looked into doing any other classes or do you think you'll continue with your textile one? 
    Community Manager
    Scope

Brightness