Epilepsy
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woodbine
Community member Posts: 11,658 Disability Gamechanger
Hi I have now had epilepsy for 22 years following my second stroke at the age of 38, I would like to make contact with other people with Epilepsy if possible, its something I have shyed away from doing over the years.
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Hi there welcome to the Forum I am one of The Community Champions I hope you get the information that you need and if there’s anything that we can do please let us know many thanks Tom
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Thanks Tom its not really info I need just some interaction with others with epilepsy, something I have never had sadly2024 The year of the general election...the time for change is coming 💡
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woodbine said:Thanks Tom its not really info I need just some interaction with others with epilepsy, something I have never had sadly
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Hi woodine I am 45 and have had epilepsy for 24 years. I suffered from stress and depression and I was told that was what caused it. It is now controlled by medication and doesn't really affect me that much. It took a lot of playing around with different kinds of epilepsy medication and doses by the doctors before they finally found something that worked. I haven't had any problems with my epilepsy for a few years now and apart from having to take pills everyday to control it most of the time I forget I have got it.
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Hello @woodbine My friend this might help you.
https://www.epilepsy.org.uk.
Helpline 0800 800 5050
Please take care.
@thespiceman
Community Champion
SCOPE Volunteer Award Engaging Communities 2019
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Hi Woodbine, i'm a carer to my wife who has severe epilepsy, her's has continued to progress over the years as it's refractory. I really hope you're able to find support on here.
Best wishes
Paul
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Have you ever heard of the Epilepsy Society or not? https://www.epilepsy.org.uk/
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77bp Hi Woodbine. I have had a epilepsy diagnonsis since I was 5 months old. It was not treated until after I left schooL. I was given a variety of drugs and now thankfully am drug free. It was something I did not talk about so I understand where you are coming from. There was such a stigma and no real information for people
I imagine you are retired. So am I.You can contact me if you would like to talk
i
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