Concerns haven't been addressed
Comments
-
Hi There Janice, I'm sorry to read this, I work in the NHS Myself, I also have a Shunt and Hydrocephalus; however mines not programmable. Firstly I would suggest contacting the Patient Advise Liaison Service at the Trust to make them aware of this issue. I can understand how frustrated you are. I completely sympathise with you. They may be able to help you get some compensation for your transport costs but this will be something you would need to pick up with the team at the Trust.
Please come back to me if you need any more advise.
Thanks Tom
<code><a href="https://twitter.com/lgbtdisability" rel="nofollow">https://twitter.com/lgbtdisability</a> <a href="https://twitter.com/tombyford" rel="nofollow">https://twitter.com/tombyford</a> <br><a href="https://www.facebook.com/tombyford" rel="nofollow">https://www.facebook.com/tombyford</a><br>
http://www.twitter.com/lgbtdisability -
I forgot to add that they will be able to raise the issues with the heads of department in the trust to make sure they are aware of whats happened.
<code><a href="https://twitter.com/lgbtdisability" rel="nofollow">https://twitter.com/lgbtdisability</a> <a href="https://twitter.com/tombyford" rel="nofollow">https://twitter.com/tombyford</a> <br><a href="https://www.facebook.com/tombyford" rel="nofollow">https://www.facebook.com/tombyford</a><br>
http://www.twitter.com/lgbtdisability -
Thanks for your reply Tom, I actually went to the Pals office at the hospital to register my concerns but never heard anymore about it, I also got Headway involved who contacted 1 of the consultants but again nothing came of that, numerous consultants have been made aware of my problems and concerns yet not once has anyone acknowledged the matter.
-
Hi Janice, in this instance I would follow up with PALS, see if they can get a response for you. They should be the first point of call, please let me know how you get on! Thanks Tom
<code><a href="https://twitter.com/lgbtdisability" rel="nofollow">https://twitter.com/lgbtdisability</a> <a href="https://twitter.com/tombyford" rel="nofollow">https://twitter.com/tombyford</a> <br><a href="https://www.facebook.com/tombyford" rel="nofollow">https://www.facebook.com/tombyford</a><br>
http://www.twitter.com/lgbtdisability -
If all else fails you can contact NHS England on Telephone: 0300 311 22 33
Email: england.contactus@nhs.net many thanks Tom
<code><a href="https://twitter.com/lgbtdisability" rel="nofollow">https://twitter.com/lgbtdisability</a> <a href="https://twitter.com/tombyford" rel="nofollow">https://twitter.com/tombyford</a> <br><a href="https://www.facebook.com/tombyford" rel="nofollow">https://www.facebook.com/tombyford</a><br>
http://www.twitter.com/lgbtdisability -
Oh dear, what a palaver for you Jancie!
I complained about an A & E problem some time ago and felt it was properly handled and dealt with and I was kept informed of the procedure.
Your problem is much more serious and you should be given the courtesy of at least an acknowledgment.
Hope things improve chick xxx
-
Thank you both for your replies, I have e-mailed Pals again and hopefully they will respond.
-
Hi @Jancie and a warm welcome to the community! I hope PALS are able to support you at all. Please do let us know how you get on and if there is anything else we can do.
Scope -
Thanks Chloe.
-
If you don’t get any luck with PALS I have previously found an email directly to the chief executive often triggers a response. You can usually find name and email on trust websites or try linked in.
-
Thanks Charlotte, may end up doing that.
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 104 Games lounge
- 416 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.3K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 777 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 615 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 737 Transport and travel
- 31.6K Talk about money
- 4.4K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.3K Talk about your impairment
- 1.8K Cerebral palsy
- 869 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 319 Sensory impairments
- 825 Rare, invisible, and undiagnosed conditions