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PIP paper based report arrived

RollingRhino
RollingRhino Community member Posts: 10 Connected
This is my first PIP assessment and I have to say there are many areas I would disagree with their scoring on, but it seems utterly futile to contest it as I have scored 21 for care and 12 for mobility so I assume that if carried through by the decision maker is adequate for the enhanced for both elements. 

My big concern is that they have suggested a two year review. I had hoped to get a motability specialist vehicle to transport me which would be pretty life changing, however, with a two year review where there is the risk for some (any) reason they might pull it, I don’t feel confident committing to a five year contract for a costly Wheelchair accessible vehicle.  

They do however say, they expect the restrictions on my mobility to be present at the next assessment.

Not sure what to do now to be honest... obviously it’s pending the final result of the decision makers but assuming it goes as usual this will be my circumstance to navigate. Any advice? Thank you ? 
Just a regular dad and husband, was active global travelling board level business executive, who had fought cancer, then suddenly struck down. Became severely incapacitated. Chronic pain, lack of muscular control, cramps, fasciculations, muscle wasting etc and so much more on this 14 months of abject misery so far.

Comments

  • pollyanna1052
    pollyanna1052 Community member Posts: 2,032 Disability Gamechanger
    Mmm, I see your quandary.

    But I think if it were me, I would go for the motability car...assuming you get the necessary award. Let`s say you do.....your condition most probably wont improve.

    I daresay someone better qualified to answer will be along shortly.
    Pollsx
  • wilko
    wilko Community member Posts: 2,458 Disability Gamechanger
    Hello and welcome, I would get your mobility car or better still looking on line for a second hand model may give you peace of mind. But with mobility all expences are covered except fuel so buying your own car would r tail all the running costs insurance, servicing breakdown cover and the initial purchase price. Go for it and enjoy your new freedom. 
  • soconfused
    soconfused Community member Posts: 102 Courageous
    Hi @RollingRhino

    I had a initial 2 year period for Enhanced Living and Standard Mobility. I won a tribunal and got Enhanced Mobility - I would agree with everyone else - get a car if it's going to make things better for you - The car will take away the £61.20 a week ( some basic cars are about £40 a week) but it will give you freedom - as others have said with Mobility all you do literally is add fuel - everything else is covered. 

    As long as you have 12 months or more, which you do - then you qualify and will be invited to join the scheme with a code you take to the dealer of your choice - You can gert wheelchair adapted vehicles and scooters etc, but most people go for the car option.

    As for the Decision Maker - yes they go 100% on what the Assessor puts - so congrats you have the high award no need to sweat it. After fighting them for over a year please trust me when I say that! 
  • skullcap
    skullcap Posts: 169 Courageous
    As for the Decision Maker - yes they go 100% on what the Assessor puts - so congrats you have the high award no need to sweat it. After fighting them for over a year please trust me when I say that! 
    Sorry but not entirely true as some claimants have found out. There have been instances where the Case Manager has disagreed with the length suggested and has made it much longer.
  • [Deleted User]
    [Deleted User] Posts: 0 Listener
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  • skullcap
    skullcap Posts: 169 Courageous
    This is my first PIP assessment and I have to say there are many areas I would disagree with their scoring on, but it seems utterly futile to contest it as I have scored 21 for care and 12 for mobility so I assume that if carried through by the decision maker is adequate for the enhanced for both elements. 

    My big concern is that they have suggested a two year review. I had hoped to get a motability specialist vehicle to transport me which would be pretty life changing, however, with a two year review where there is the risk for some (any) reason they might pull it, I don’t feel confident committing to a five year contract for a costly Wheelchair accessible vehicle.  
    Yes, a difficult one. If only it could follow that with health situations like this that all future assessments and decisions would broadly be the same.
    Unfortunately any future decision maker and assessor is not bound by what was previously awarded. As you have pointed out it is not unknown for someone to have had enhanced both for care and mobility for a few years only to find that a different assessor and decision maker would say that it should be standard all round. Then the vehicle would go back whilst you wait for a Tribunal hearing in the hope that your award is reverted back to what it was originally.
    Personally I have no faith in the Motability system because of this never knowing what the future may hold. I have heard of cases where it has been a roller-coaster ride with losing an award and then getting it back into play via the appeal system time and time again.
    Whilst I have had the opportunity to have a Motability vehicle since the late 90's I have always purchased a vehicle privately. I simply could not put up with the threat of losing a car. Yes it is more expensive to go privately but with that extra cost does come total peace of mind and the knowledge that you will always have transport. 

Brightness

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