Brain AVM
arrywillz
Community member Posts: 1 Listener
Hi everyone New here but I needed to know if someone’s been through a similar thing as I’m really struggling, at the age of 21 I was diagnosed with an avm back in 2013 and had radio surgery (gamma knife) in 2014 to treat it, unfortunately I suffered quite a lot of trouble post surgery I then developed epilepsy and started to suffer from severe aura migraines and headaches witch both still effect me to this very day 7 years later and have impacted my life, work and mental health greatly just wondering if anyone else suffered anything similar and did it get better? As I just feel it’s never going to end thanks.
Comments
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Hi @arrywillz
Good Morning!!!!!
I am one of the Community Champion’s here at Scope.
Yes I have also had a Brain AVM.
Mine was at the base of my “Brain” at the top of my “Spinal Cord”
I have also had :SRS Radio Surgery here in Birmingham.
This didn’t work & it has given me “Chronic Pain 24/7”
Please come back if you need any further help?????
@steve51 -
Hi @arrywillz - & welcome to the community. Great that you've met Steve, as you will have much in common, tho very sorry you've both had complications. Hope to see you around the forum.
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A warm welcome to the community @arrywillz! I'm really sorry to hear about your post-operation complications. Do you currently get any support at work?
Please do have a look around, get involved and please shout if we can do anything to help.Scope -
Hi and welcome to the community glad you have joined us here. I am sure there will be lots of members who can share their experience with you and I look forward to seeing you around
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Hi there! I’d really appreciate it if you would share or donate to this GoFundMe, Brain Avm rupture - Stroke at 21 - He deserves your love and support (Removed, crowdfunding is not allowed on the community)
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